Titan Cylinders Fully Emptying?

[stephen54]

So this really is a process, to continue to learn how this Titan works. I remain confused as hell by the issue I am experiencing with the mechanics of how the Titan deflates.

I confirmed that I was implanted with the Titan Touch. My understanding of the Touch via my surgeon, and via a lengthy, frustrating, weird phone conversation experienced yesterday with Coloplast, is that, in fact, the Touch version of the Titan is designed for the user to hit the deflate buttons for a few seconds, this initiates a one-way outflow of fluid from the penis back into the reservoir. Sounds simple enough, except that is clearly not how my Touch is deflating.

What I at first thought was a semi-stiff flaccid after deflation, was in fact an incompletely deflated dick. I was walking around with what I thought was my new flaccid at 100% deflation, and I was getting frustrated with the fucking javelin pointing the way around and trying to climb out of my pants. Except, turns out, I was not fully deflated.

I've been experimenting with the buttons and what I found yesterday after cycling was that if I keep the deflate buttons firmly depressed, my dick deflates notably more completely than if I hit the buttons and release the buttons and squeeze my penis. To achieve full deflation, I need to keep my buttons depressed. So what the hell is that? This is not how this device is designed, marketed, nor explained by either Coloplast nor my surgeon.

So I am going to schedule an appointment to go see Dr. Levine soon to get his firsthand appraisal and opinion of what's going on. For me, it's not a deal breaker by any means if my reality is that I need to keep the buttons depressed the entire time I'm deflating. I don't honestly care. I will have to figure some different contorting of my wrists, hands, fingers...because right now I'm a two-handed button presser and if this thing requires a continuous button depression, then I need to find a way to free up my other hand entirely to squeeze the fluid out of my dick. Again, nothing I guess I can't figure out with some diligence and practice and time. Ultimately what I care about is that this thing reliably inflates and reliably deflates as I need it to. But of course it's a nagging question in my mind - why is it not operating as Coloplast stipulates it is designed to operate?

So I call Coloplast yesterday with the intention of hopefully connecting with, and having a conversation with, a patient liaison, a support specialist, a clinical expert - you know, someone who is public-facing, patient-facing, and who has deep knowledge of the device itself and its functionality, and who understands its optimal functionality in the human body. I work in the medical device industry myself. These patient-supporting liaisons and advocates are ubiquitous - they're literally everywhere in our industry, and for good reason. Not uncommon. And they're used frequently by patients who have questions about devices.

Except Coloplast told me they don't do this.

Coloplast told me yesterday that they'd be happy to answer my questions. But the young lady who answered the phone...and who ostensibly was willing to answer my questions...no clarity at all on what her credentials are, what her expertise with the Titan is...this was the frontline person who picked up the phone. She's nudging me to just ask my question. I told her that I have multiple questions but, ok, I'll play along. I lay out the above scenario to her about deflation. She verifies that I have the Touch version. Then she says, well the question you're asking is really best directed to your surgeon.

My reply to her, and my obviously steadfast view of this is: you, Coloplast...you are the manufacturer of my implanted medical device and you have nobody...literally, no one…?...you can put on the phone with me...to hear me out on a handful of questions related directly to the intended vs actual functionality of your marketed device, and to provide what I would presume would be, by definition, the most highly informed view possible...ie, from the people who fucking conceived, designed, built, revised, marketed, tested, re-designed, tested, and sold my device? Really, Coloplast? You have precisely zero product support your implanted patients can avail themselves of? If true, then you are truly almost utterly unique in the medical device industry, and that's absolutely not a compliment. So I was told to submit my questions in writing via email to Coloplast and "someone" would route those to the "right person" to respond to me.

??

Honestly, Coloplast, you should be embarrassed. But you certainly don't seem to be. God almighty, that is frustrating and disappointing and just lousy. We called and got infinitely more practical information and product support last week from the manufacturer of our fucking kitchen faucet. Not kidding. And it wasn't even close.

I'm probably going to post some version of that Coloplast rant separately. So google can index the post's title and so someone at Coloplast can eventually run across it and (hopefully) reflect a little on how they're perceived on support.

Or lack thereof.

Thanks for enduring my outburst.

Still happy and grateful to hear the input and experiences of any other guys with the Touch who have or are experiencing this same deflate contradiction and what you've learned or resolved along the way.

[Biker60]

Well your deflate process sounds like the genesis pump like I have. You have to hold the 2 bars to deflate. Btw, only 2 weeks postop and I don’t think I am deflated. But just starting to be able to feel something of the bars. I called coloplast prior to my surgery and received similar non support.