How Much Research did you do before getting an implant??

The final frontier. Deciding when, if and how.

How many hours of research did you do before receiving an implant?

0-1 Hour
2
7%
2-5 Hours
0
No votes
6-10 Hours
1
3%
11-15 Hours
0
No votes
16 - 20
3
10%
21+
23
79%
 
Total votes: 29

Minnesota
Posts: 201
Joined: Mon Oct 05, 2009 7:32 pm

How Much Research did you do before getting an implant??

Postby Minnesota » Thu Oct 29, 2020 9:36 pm

Hi bionic brothers - I'm wondering how much research you all have done through the decision making process to receive an implant. This could be online videos, FrankTalk forum research, articles, etc.

Those who are scheduled to receive one or contemplating one can vote too!

I've decided to ask in hours. Best guess!

Thank you!
Diagnosed with ED at age of 19, Implanted with Coloplast Titan at age 20. Now 34 (2023)
Titan failed 09/2020, replaced on 10/2/2020 by Kolher @ Mayo Clinic in Minnesota

hope794
Posts: 278
Joined: Wed May 30, 2018 7:59 am

Re: How Much Research did you do before getting an implant??

Postby hope794 » Thu Oct 29, 2020 10:19 pm

Just voted bro. I bet that every man on here as looked out for infos more than 21 hours.
26 yo from Italy.Peyronie's disease probably since 2015.Since then,penis bends of about 20-25°. PD keeps progressing. Moderate ED since 4 years and things getting worse.From pornstar-like to depressed, but still fighting for a solution.

Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Re: How Much Research did you do before getting an implant??

Postby Lost Sheep » Thu Oct 29, 2020 10:23 pm

300+ hours over 14 months.

I searched some before finding FrankTalk, then spent probably 30-40 hours over a couple of weeks reading through old threads (reaching back a bit more than 2 years prior to my joining as I recall). I spent a lot of time poring through Medical Journal Articles on line (The Internet is an INCREDIBLE asset!)

I spent some time corresponding with AMS and Coloplast (when I could get responses) and interviewed 6 Surgeons before finding one that met my expectations and was within my reach.

I don't leave much to chance. There is a saying "Chance favors those who are prepared."

I voted 21+

Can I vote 14 more times?
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Waynetho
Posts: 1768
Joined: Wed Nov 27, 2019 11:22 pm
Location: Dallas, TX

Re: How Much Research did you do before getting an implant??

Postby Waynetho » Thu Oct 29, 2020 11:05 pm

Minnesota wrote:Hi bionic brothers - I'm wondering how much research you all have done through the decision making process to receive an implant. This could be online videos, FrankTalk forum research, articles, etc.

Those who are scheduled to receive one or contemplating one can vote too!

I've decided to ask in hours. Best guess!

Thank you!


I can't even begin to quantify in hours how many videos I watched on YouTube, including circumcision incisions, degloving and tunica excision and grafting, along with other extreme surgical interventions. Many hours of reading as many medical papers and other documentation as I could find.

From June 2019 through October 2019 when I got my surgery, I had spent probably in excess of several hundred (200-300+) hours researching this and had made my mind up before I even found and spoke to my urologist for the first time. I went through one month of BPH treatment (in advance of UroLift implant procedure) and 2-3 months of Cialis for ED prior to implantation but never did any injections, MUSE or other treatments besides oral medications.
62yo, married 41 yrs. Urolift (x4) 8/12/19. AMS 700CX 15cm (no RTE) penoscrotal 10/28/19, Frisco, TX. PD 1995/ED 2011. Cialis helped but hinged. (1995)L:6/G:5.5+, (2019)Pre-op L:5/G:4.5, (2/2020)L:6.0/G:5.0

hopeful_future
Posts: 255
Joined: Thu Oct 31, 2019 7:58 pm

Re: How Much Research did you do before getting an implant??

Postby hopeful_future » Thu Oct 29, 2020 11:44 pm

I'm with Waynetho and Lost Sheep here, hundreds of hours of research, reading medical studies, watching videos, checking out Franktalk, months of back and forth with multiple doctors. I wanted any solution that was not an implant, but was also scientifically proven. Since pills only worked a bit, and injections didn't work at all, there were no such solutions.

So here I am! :)
39yo, ED since sexually active, moderate to severe. Bisexual. Pills helped a little, trimix and muse failed. Implanted 8/25/20 by Dr. Karpman, 22cm+1RTE Titan Touch.

Gt1956
Posts: 2889
Joined: Fri Apr 05, 2019 2:47 pm

Re: How Much Research did you do before getting an implant??

Postby Gt1956 » Thu Oct 29, 2020 11:58 pm

hopeful_future wrote:I'm with Waynetho and Lost Sheep here, hundreds of hours of research, reading medical studies, watching videos, checking out Franktalk, months of back and forth with multiple doctors. I wanted any solution that was not an implant, but was also scientifically proven. Since pills only worked a bit, and injections didn't work at all, there were no such solutions.

So here I am! :)

I think that most of us have went thru that process. Some get to the implant decision faster than others.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

LuisFernandez
Posts: 408
Joined: Tue Jun 16, 2020 8:45 pm

Re: How Much Research did you do before getting an implant??

Postby LuisFernandez » Fri Oct 30, 2020 12:20 am

I don't have an implant yet, but i've spend hundreds of hours. Watching every Kramer, Eid, Perrito, and Clavel video. Pouring through tons of journals. Reading tons of papers, etc.
Born 1986. ED. Peyronie's.
Considering an Implant. Consulting with Dr. Eid.
Using Cialis 10mg/day + 20mg for sex. Injections of PGE-1.
See my story: viewtopic.php?t=15016

LookingUp
Posts: 352
Joined: Wed Aug 08, 2012 9:16 pm

Re: How Much Research did you do before getting an implant??

Postby LookingUp » Fri Oct 30, 2020 5:01 am

Lost Sheep wrote:300+ hours over 14 months.

I searched some before finding FrankTalk, then spent probably 30-40 hours over a couple of weeks reading through old threads (reaching back a bit more than 2 years prior to my joining as I recall). I spent a lot of time poring through Medical Journal Articles on line (The Internet is an INCREDIBLE asset!)

I spent some time corresponding with AMS and Coloplast (when I could get responses) and interviewed 6 Surgeons before finding one that met my expectations and was within my reach.

I don't leave much to chance. There is a saying "Chance favors those who are prepared."

I voted 21+

Can I vote 14 more times?


Do Years count?

LUp


Taken from: "Fortune favors the prepared mind." Louis Pasteur
ED 26 years. 1995->Pills->Shots->Implant penoscrotal Implanted Feb2021, AMS CX, 18 CM + 3 RTE, penoscrotal, 100cc reservoir. Looking forward to revision with a better Doctor.

Old Guy
Posts: 2513
Joined: Tue Mar 31, 2020 4:31 pm
Location: Ohio

Re: How Much Research did you do before getting an implant??

Postby Old Guy » Fri Oct 30, 2020 7:40 am

Well I got to say almost zero. After pills and injections stopped working and I found out about implants, made an appointment with an urologist. The first urologist I talked to passed me on to his associate with more experience. A consult with that surgeon didn't offer much info, but he said it was a routine thing for him. It took me a year to get approved by insurance and save up my deductible. I kept trying injections in the meantime, but didn't find any other info on implants. At 5 months after getting my implant the place I was buying my Trimix from steered me to Frank Talk. Wish I had found FT before my surgery.
Nov. 8, 2019
4+ years, Coloplast Titan OTR
Married 36 years to my beautiful young bride
Always here to answer questions if you PM me

wewokarents
Posts: 73
Joined: Thu Oct 29, 2020 12:04 pm
Location: Texas

Re: How Much Research did you do before getting an implant??

Postby wewokarents » Fri Oct 30, 2020 6:29 pm

All the study I have done and now the AMR recall leads me to believe that Coloplast Titan is the way to go for an implant. I haven't pulled the trigger yet and am currently trying Trimix as a last ditch effort to avoid surgery. I'm on Medicare and that covers implant subject to deductible and co-pay. I have had no problem with Coloplast answering my questions or getting back to me. The only thing I have a question on (Coloplast reps listening in). Where are your "centers of excellence" located? Lots of docs listed on website doc locator but no "centers of excellence" listed. Those of us that have done due diligence in "implantology", what are your reasons for choosing an AMR over Coloplast or vice versa? What questions can you think of that you should have asked the surgeon prior to your surgery?
Implant 1/28/2021. Dr Stephen A Johnson. Done at Baylor, Scott and White in Sherman, Texas. TRT since 2005, serious ED from 2004. Used nearly all PDE5 drugs. Injections failed. Started cycling at 1 week. Cycle most days. AMS 700 CX 23cm, 100ml reservoir.


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