UK - Brush of from the Urologist - maybe

The final frontier. Deciding when, if and how.
RugbyDave
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Location: Dorset, United Kingdom
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UK - Brush of from the Urologist - maybe

Postby RugbyDave » Tue Mar 06, 2012 1:05 pm

Hi all

I have just been to see my Urology consultant to start the process off having implant surgery. He has told me that because of the surgery I had for pc originally (Open Rp. I have a 5” or so scar on my stomach) he does not think I will not be able to have implant surgery. Has anyone else got any similar experience? If you are in the UK and have any ideas, even better but welcome any advice.

Please feel free to contact me direct if easier.

Dave
Diagnosed at 49 with PC - Biopsy Gleason 3+4=7
Radical Prostatectomy 14/07/08 - PSA now undetectable
ED since op
Implanted with AMS 700LGX - 26/07/13 @ UCLH London
http://rugbydave.blogspot.co.uk

bob1138
Posts: 449
Joined: Wed Sep 28, 2011 6:41 pm

Re: UK - Brush of from the Urologist - maybe

Postby bob1138 » Wed Mar 07, 2012 2:53 am

Welcome Dave,

I'm in New Jersey here in USA but will share my experience since it might be of some help.
I developed ED in February 2004 after an Open Radical Prostatectomy ( so I have the same 5 inch scar on my stomach).
The traditional ED treatments did not work satisfactorily for me and, therefore, I underwent the Coloplast Titan Penile
Implant Procedure in December 2007. Thankfully, this completely corrected my ED.
My surgeon never even mentioned my Prostatectomy scar.
To my knowledge, Implants are done via either Intra-pubic or Scrotal Incision.
Mine was done Intra-pubic and the Open Prostatectomy Scar was no problem at all.
Hope this is helpful.
Please feel free to contact me if you have any questions or would just like to talk.

Bob
-----------------------------------------------------------------------------------------------------------------------------------------
Age: 73; Developed ED Post-ORP in February 2004; Pre-op PSA 2.2 with Positive DRE; Gleason 3+3= 6;
Post-op PSA remains undetectable as of 12/13/2011; Implanted December 13, 2007 (Coloplast Titan); Completely
Corrected my ED.

Daverx
Posts: 63
Joined: Mon Dec 19, 2011 6:34 pm

Re: UK - Brush of from the Urologist - maybe

Postby Daverx » Wed Mar 07, 2012 11:14 pm

There are many of us here who had RP surgery and implant surgery later. I had open RP in May of 2010 and had implant done Jan. of this year. My doctor used scrotal method with no problems. Be persistent, it has been done quite successfully many times. Best of wishes.
75 yr old survivor of aggressive PC, original implant in 2012, revision Apr 19 2018. AMS 18cm 3cm RTE Happy man.

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Dave48003
Posts: 355
Joined: Wed Nov 03, 2010 7:10 pm
Location: Almont, Michigan USA

Re: UK - Brush of from the Urologist - maybe

Postby Dave48003 » Thu Mar 08, 2012 11:02 pm

I don't think I would let him near me with a knife though. If he is that unfamiliar with the procedure, let him learn on someone else!
Charter member of the Brotherhood of Bionic Boners.
69 YO with a venous leak since puberty, made worse by meds & diabetes. Tried pills, a VED, and injections before my AMS 700LGX was implanted 3-17-2011. A life changing event!

RugbyDave
Posts: 128
Joined: Tue Dec 27, 2011 2:15 am
Location: Dorset, United Kingdom
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Re: UK - Brush of from the Urologist - maybe

Postby RugbyDave » Fri Mar 09, 2012 12:53 am

Thanks all for your info. I have finally been referred to a doctor who specialises in implants.

Will keep you posted.

Dave
Diagnosed at 49 with PC - Biopsy Gleason 3+4=7
Radical Prostatectomy 14/07/08 - PSA now undetectable
ED since op
Implanted with AMS 700LGX - 26/07/13 @ UCLH London
http://rugbydave.blogspot.co.uk

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LGX_Man
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Location: San Francsico, CA
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Re: UK - Brush of from the Urologist - maybe

Postby LGX_Man » Wed Mar 14, 2012 12:18 am

Looking forward to your updates as you make your way through the process of learning. The "brotherhood of bionic boners" are all here to answer your questions and I expect that you'll have many. Best of luck!

LGX_Man
62. Retired. AMS 700 LGX implanted Nov. 18, 2013. Ask me any questions about being implanted or life afterwards.

RugbyDave
Posts: 128
Joined: Tue Dec 27, 2011 2:15 am
Location: Dorset, United Kingdom
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Re: UK - Brush of from the Urologist - maybe

Postby RugbyDave » Tue May 22, 2012 3:53 am

I have my appointment with another Urologist tomorrow to start discussing implant surgery. My urologist is not sure if this one can or does implant surgery - slightly different way of doing things here in the UK - still it's stage 1

Will let you know how it goes.

Dave
Diagnosed at 49 with PC - Biopsy Gleason 3+4=7
Radical Prostatectomy 14/07/08 - PSA now undetectable
ED since op
Implanted with AMS 700LGX - 26/07/13 @ UCLH London
http://rugbydave.blogspot.co.uk

Mstone
Posts: 29
Joined: Fri Jan 01, 2010 9:40 pm

Re: UK - Brush of from the Urologist - maybe

Postby Mstone » Tue May 22, 2012 10:32 am

Good luck RugbyDave. I had a RRP in 2007 and Titan implant in September 2011 with no problems. Because of the RRP the implant Uro made a separate incision to insert the reservour. He actually used the same RRP incision site so that I would not have another scar.
Age 60, married, PSA 12.4 PCa 3/07, RRP 5/07, no extension, nerves spared, subsequent PSAs<.01, continent 10/10, ED continued with no effect from pills or injections, implanted 9/19/11 Coloplast Titan OTR.

RugbyDave
Posts: 128
Joined: Tue Dec 27, 2011 2:15 am
Location: Dorset, United Kingdom
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Re: UK - Brush of from the Urologist - maybe

Postby RugbyDave » Sun May 27, 2012 1:30 am

Not sure if this is best in implants or injections, will put with my previous post but please feel free to move if better elsewhere.

Well the visit to the Urologist about an implant was a bit good and a bit of bad….

First the good – he says can do the implant and he prefers to use the AMS 700 Implants, even better. He has applied for funding – something else different here in the UK – and seems to think it could take 2/3 months for approval, if given, though he cannot see any problems.

Now the bad – I just happened to mention the ache I was getting with the Caverject Injections. “I used to use something called Papaverine Hydrochloride years ago, good results and no pain” he said. “You could use that until the surgery”. “Great lets try it” I said.

To cut a long story short he couldn’t find a fine needle to use but said the thicker gauge he had would be OK. Great I thought after all he is a leader in his field and knows what he is doing, wrong!!!!

Although I got a good hard erection, lasted 2 hours or so and no aching, I have ended up with the entire left side badly bruised and a largish lump deep inside on the injection site, though I am not sure if it was the drug or his technique that caused it. I have been so careful to avoid any bruising etc. so slightly pissed

If the funding does come through I am not convinced I’m going to now let him near me for the implant, will see where I stand with using a different doctor.

My one question though if anyone can help – will the lump disappear or am I stuck with it and will I have to avoid that area on future injections??
Diagnosed at 49 with PC - Biopsy Gleason 3+4=7
Radical Prostatectomy 14/07/08 - PSA now undetectable
ED since op
Implanted with AMS 700LGX - 26/07/13 @ UCLH London
http://rugbydave.blogspot.co.uk

asmith
Posts: 31
Joined: Fri Dec 30, 2011 2:42 pm

Re: UK - Brush of from the Urologist - maybe

Postby asmith » Mon May 28, 2012 11:59 am

As a former Trimix user for several years (now an IPP implantee), I am familiar with the lumps and bruises occasionally produced by injections.

First, it seems unconscionable that your physician would inject with anything other than a typical insulin needle and syringe. Realize that every time one injects through the corpora, one is piercing a closed, pressurized chamber. Ideally, the pierce should be made with the smallest needle possible to avoid potential damage (scarring, bruising, bleeding).

After having injected several hundred times before getting an IPP, I developed a fibrotic nodule about 1 cm in size at the site where I frequently injected. A fibrotic nodule can be treated with prescribed vitamin E (oral) and a steroid injection at the site to break up the fibrosis. In my case, however, the surgeon indicated that the fibrosis would be treated/removed during IPP surgery. Post-operatively, I now have no fibrosis.

Bruising is inevitable and will fade over time.


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