3 years of ED

Anything goes when it comes to ED.

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Welshman
Posts: 12
Joined: Fri Nov 24, 2017 11:40 am

3 years of ED

Postby Welshman » Wed Nov 29, 2017 4:22 pm

Hi

I only joined the forum a few days ago but I have been an observer for some time. I am here because I have ended up with ED as a result of prostate cancer surgery, which has turned my life upside down.

I am making this post for 2 reasons:

1) To get 3 years worth of emotions off of my chest. Apart from my wife and on occasions my ED specialist I have not been able to discuss my ED issues within anyone else. I have found ED a rather lonely journey.

2) Just to tell my story.

Here goes...

I won't go into detail regarding my prostate cancer diagnosis. Suffice to say that on the day my wife and I were informed I definitely had prostate cancer we were both devastated. When I got home from the hospital I sobbed my heart out. To be honest (this is going to sound awful) I was more upset about the potential loss of sex life rather than dying whereas my wife just wanted me to live even if it meant no sex.

I eventually had prostate removed by surgery and so far it looks like this was successful.

On the night before going into hospital my wife and I indulged in some intimacy for old times sake. Afterwards as I was laying in bed waiting to go to sleep, despite the usual smile on my face I get on my face after sex, I felt rather down. I realised:

1) That was the last time I would ever ejaculate.

2) That might be the last time I would be involved in a sexual activity with my wife.

3) That might be my last ever erection.

4) And worst of all that might be my last ever orgasm.

The first realisation has of course materialised - it is impossible to ejaculate after prostate surgery. However, I am pleased to say the other 3 concerns I had have not come about.

I had to have a catheter in for a week. That in itself is a passion killer but after it was removed my libido came back quite quickly much to my amazement.

About 6 weeks after surgery my consultant prescribed me Viagra but it had no effect whatsoever, except for making me feel ill. I then tried Levitra and Cialis but also had unpleasant side effects (and didn't work anyway).

I read that it was possible to achieve an orgasm with a flaccid penis. As soon as I felt my wounds were healed enough I started to experiment. It took several attempts before I achieved an end result. As you know it takes quite a bit of muscular effort to reach an orgasm and I found the whole procedure exhausting, wore me out and took ages (well over 30 minutes). However, I eventually got there. The end result for the first few times was disappointing - hardly any feeling at all. I can only describe the orgasm as a tiny kitten sneeze for a fraction of a second.

Fortunately after some persistence and practice I have now got the procedure down to a fine art. If I put my mind to it I can easily achieve a very nice orgasm with a flaccid penis in about 5 minutes. Still tiring though! If I am lucky, sometimes I can get about a 50% erection but it is the exception rather than the rule.

Within about 4 months of surgery I obtained a vacuum erection device (VED). I found this great and at last I had something to get hold of. It took some practice and persistence but I eventually mastered the rings and was able to use it for penetrative sex. However, I could never finish and found it virtually impossible to orgasm. So I had to give up and finish by hand. Even then it was extremely difficult to get there and the end result was very poor. I still use the VED whenever I can but only for rehab purposes.

I then tried Muse. I found this very easy to use and the side effects are tolerable. Only about a 75% erection but despite that I find this the most pleasurable to use. I haven't succeeded with full sex yet but it's great for a hand job and it has given me some of the best orgasms since my surgery. For this reason I still use it when I know full sex is not on the agenda.

I am currently working with asprotadil injections. It was necessary to have a demonstration on hospital premises. My ED nurse performed the first injection and a fortnight later I had to go back and carry out an injection with my nurse watching. Both of these ended up with some action that finally made me feel like a proper man again - big smiles.

Since then I have been on my own and the injections haven't worked every time but sometimes I have been lucky.

Some of you might be thinking what about my wife and her needs. My wife is slightly younger than me and not in the best of health and if I am honest doesn't have the interest she had in pre surgery days. However, she is the most wonderful wife and has stood by me in all of my ED rehab.

If I am successful with an injection she will oblige me but if not, or if I take a Muse it is a matter of a hand job. However, I am not complaining because the quality of orgasm has improved to a degree I never thought would be possible. So physically my needs as a man are met and on a regular basis.

My main problem is psychological in that I don't get natural erections any more. The male ego within me hurts badly that my manhood no longer works, also that I have lost some size. I know that the size of a penis doesn't make a man but to me it's what gives a man drive. It's what gets him up in the morning, what drives him to succeed in his work, home and family. I am probably being over sensitive here but I just cannot shake these feelings off. Maybe my wife doesn't mind but the fact I am not ready and able (but I am willing) hits me to the core as a man.

Some of you might be thinking I have a one track mind. Well yes I do, lol! No not really. I am just an average guy, a happily married man who loves his wife and is attracted to her. I am by no means a super stud, just ordinary.

I am grateful to any one who reads my story. My ED problem continues but it has done me good off loading all of this after all this time.

For all those suffering with ED I wish you all the best. I hope my post will help in that you will be encouraged by my successes and learn from where I have gone wrong.

Apologies for a long post but thanks for listening.
Married man. Diagnosed with prostate cancer 2014 age 64. Underwent radical prostatectomy 2014. ED ever since.

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Larry10625
Posts: 2305
Joined: Sat Apr 15, 2017 10:56 am
Location: Ontario, CANADA

Re: 3 years of ED

Postby Larry10625 » Wed Nov 29, 2017 4:55 pm

Welshman wrote:Hi

I only joined the forum a few days ago but I have been an observer for some time. I am here because I have ended up with ED as a result of prostate cancer surgery, which has turned my life upside down.

I am making this post for 2 reasons:

1) To get 3 years worth of emotions off of my chest. Apart from my wife and on occasions my ED specialist I have not been able to discuss my ED issues within anyone else. I have found ED a rather lonely journey.

2) Just to tell my story.

Here goes...

I won't go into detail regarding my prostate cancer diagnosis. Suffice to say that on the day my wife and I were informed I definitely had prostate cancer we were both devastated. When I got home from the hospital I sobbed my heart out. To be honest (this is going to sound awful) I was more upset about the potential loss of sex life rather than dying whereas my wife just wanted me to live even if it meant no sex.

I eventually had prostate removed by surgery and so far it looks like this was successful.

On the night before going into hospital my wife and I indulged in some intimacy for old times sake. Afterwards as I was laying in bed waiting to go to sleep, despite the usual smile on my face I get on my face after sex, I felt rather down. I realised:

1) That was the last time I would ever ejaculate.

2) That might be the last time I would be involved in a sexual activity with my wife.

3) That might be my last ever erection.

4) And worst of all that might be my last ever orgasm.

The first realisation has of course materialised - it is impossible to ejaculate after prostate surgery. However, I am pleased to say the other 3 concerns I had have not come about.

I had to have a catheter in for a week. That in itself is a passion killer but after it was removed my libido came back quite quickly much to my amazement.

About 6 weeks after surgery my consultant prescribed me Viagra but it had no effect whatsoever, except for making me feel ill. I then tried Levitra and Cialis but also had unpleasant side effects (and didn't work anyway).

I read that it was possible to achieve an orgasm with a flaccid penis. As soon as I felt my wounds were healed enough I started to experiment. It took several attempts before I achieved an end result. As you know it takes quite a bit of muscular effort to reach an orgasm and I found the whole procedure exhausting, wore me out and took ages (well over 30 minutes). However, I eventually got there. The end result for the first few times was disappointing - hardly any feeling at all. I can only describe the orgasm as a tiny kitten sneeze for a fraction of a second.

Fortunately after some persistence and practice I have now got the procedure down to a fine art. If I put my mind to it I can easily achieve a very nice orgasm with a flaccid penis in about 5 minutes. Still tiring though! If I am lucky, sometimes I can get about a 50% erection but it is the exception rather than the rule.

Within about 4 months of surgery I obtained a vacuum erection device (VED). I found this great and at last I had something to get hold of. It took some practice and persistence but I eventually mastered the rings and was able to use it for penetrative sex. However, I could never finish and found it virtually impossible to orgasm. So I had to give up and finish by hand. Even then it was extremely difficult to get there and the end result was very poor. I still use the VED whenever I can but only for rehab purposes.

I then tried Muse. I found this very easy to use and the side effects are tolerable. Only about a 75% erection but despite that I find this the most pleasurable to use. I haven't succeeded with full sex yet but it's great for a hand job and it has given me some of the best orgasms since my surgery. For this reason I still use it when I know full sex is not on the agenda.

I am currently working with asprotadil injections. It was necessary to have a demonstration on hospital premises. My ED nurse performed the first injection and a fortnight later I had to go back and carry out an injection with my nurse watching. Both of these ended up with some action that finally made me feel like a proper man again - big smiles.

Since then I have been on my own and the injections haven't worked every time but sometimes I have been lucky.

Some of you might be thinking what about my wife and her needs. My wife is slightly younger than me and not in the best of health and if I am honest doesn't have the interest she had in pre surgery days. However, she is the most wonderful wife and has stood by me in all of my ED rehab.

If I am successful with an injection she will oblige me but if not, or if I take a Muse it is a matter of a hand job. However, I am not complaining because the quality of orgasm has improved to a degree I never thought would be possible. So physically my needs as a man are met and on a regular basis.

My main problem is psychological in that I don't get natural erections any more. The male ego within me hurts badly that my manhood no longer works, also that I have lost some size. I know that the size of a penis doesn't make a man but to me it's what gives a man drive. It's what gets him up in the morning, what drives him to succeed in his work, home and family. I am probably being over sensitive here but I just cannot shake these feelings off. Maybe my wife doesn't mind but the fact I am not ready and able (but I am willing) hits me to the core as a man.

Some of you might be thinking I have a one track mind. Well yes I do, lol! No not really. I am just an average guy, a happily married man who loves his wife and is attracted to her. I am by no means a super stud, just ordinary.

I am grateful to any one who reads my story. My ED problem continues but it has done me good off loading all of this after all this time.

For all those suffering with ED I wish you all the best. I hope my post will help in that you will be encouraged by my successes and learn from where I have gone wrong.

Apologies for a long post but thanks for listening.



Welshman;
Are you considering an implant? All of the men on here who have been implanted are more than satisfied and almost all of their women are as well. As we all know, ED just plain sucks the life out of us and when we take care of it, life as we knew it MANY YEARS ago, returns with full force. If you haven't considered it, maybe it's time you did. :)

Larry
51 years old, married 29 years. Implanted Mar 30/17 by Dr. Brock of London, Ont, CANADA. (AMS 700 CX 18 + 2). Had implant removed Apr 29/17 due to Septic Shock. Liposuction By Dr. Gan and re-implant by Dr. Brock (AMS LGX 15 + 2) Dec 14/17.

rotor64
Posts: 3
Joined: Mon Aug 28, 2017 7:59 pm

Re: 3 years of ED

Postby rotor64 » Wed Nov 29, 2017 8:30 pm

Hello Welshman,
Your story could be mine! Similar circumstances, similar responses, similar younger and understanding wife. PCa Aug 2015, RP Sep 2015, "Nerve sparing" but ED ever since. I usually just read and learn here, but your particular post struck a chord with me. Hang tough, and know you're not the only one. We all find our way
b. 1964,3 time cancer survivor. Gleason Score 7 (3+4) St 2A PCa Aug 2015, RP Sep 2015. ED since RP. Extreme 10+ pain from Edex/TriMix/BiMix. Sildenafil and tadalafil ineffective. T2 Diabetes Jul 2017. Central Texas, USA

David_R
Posts: 1078
Joined: Mon Nov 02, 2015 1:03 pm
Location: Northeast Maryland

Re: 3 years of ED

Postby David_R » Wed Nov 29, 2017 9:45 pm

Welshman, you have come to the right website. We can certainly identify with you on many, many things. Please listen to Larry's suggestions. And ask any of us questions, here or as pm's. You are among brothers.
Baltimore area. Age 68. Prostatectomy in 2000, CX inserted in 2002. Wore out after 12 yrs., got LGX in 2014. I am glad I had them both. My great urologist is Dr. Marc Siegelbaum. (After regular inflating I regained my original length and girth.)

bldoink
Posts: 557
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: 3 years of ED

Postby bldoink » Thu Nov 30, 2017 11:20 am

Hi welshman,

Your story will sound familiar to many of us here. It can be a lonely experience at times.

I no longer have any emotional issues from my RP caused ED. It wasn't anybody's fault and certainly not mine. I'm still a man and from what I see in the world a better man than many. Yeah my erections might be drug educed, as others might be by prosthesis but so what. We enjoy the miracles of modern medicine, starting with not dying from prostate cancer.

It sounds to me like you don't have your injection technique down yet. It's my understanding the drug will either work or not which leads me to think you're missing the sweet spot on those occasions where it doesn't result in an erection. Try to remember what you do when it works and when it doesn't. Take notes. Are you using regular syringes or Edex or the other proprietary brand?

If you haven't yet you might consider adding toys to the routine to get wifey more enthused again. She sure sounds like a keeper!

Many men are satisfied with the effectiveness of injections. Many men have passed through your emotional state.

Welcome to the site and try to enjoy your journey of discovery.
R.R.P 2011 Mayo Jacksonville by Dr. Michael Wehle. Nerve sparing but damaged. V.E.D, Viagra and Alprostadil manually injected. Originally Edex20. Switched to Alprostadil from compounding pharmacy - cost. Injecting 5-6 yrs. It works. Treasure coast of FL.

Welshman
Posts: 12
Joined: Fri Nov 24, 2017 11:40 am

Re: 3 years of ED

Postby Welshman » Thu Nov 30, 2017 2:02 pm

Thank you friends for your comments, advice and encouragement.

I wish I had joined the forum when I found it a while ago. Loading off 3 year's worth of bottled up tension, stress and emotional baggage yesterday has done me much good. This morning I woke up feeling that a large heavy weight had been lifted off of my shoulders.

I am not completely in a bad place. It is just the psychological issues I need to work on, but I am determined to get there.

Thanks for advice re injecting and toys!

I am waiting for my next ED specialist appointment to come through (anytime soon) and will discuss prospect of implant when I see him.
Married man. Diagnosed with prostate cancer 2014 age 64. Underwent radical prostatectomy 2014. ED ever since.


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