Questions for men who have recovered their sexual function after RP.

Anything goes when it comes to ED.
brian188
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Questions for men who have recovered their sexual function after RP.

Postby brian188 » Sun Oct 29, 2023 10:30 pm

A question for any men who have experienced the return of natural erections after their nerve sparing prostatectomy.

After that period of time that you would consider as your penile rehabilitation period including prescription medications, vacuum device, injections, etc., and when you first experienced the return of your natural spontaneous erection .......

Q. Did it happen slowly or gradually or did you just one day get your hard-on back?

Q. Was the return of your natural erections the same or similar in size, shape, angle, firmness as before?

Q. When your natural erection returned, did your level of and ability for arousal also return as before?

Q. Do you stay hard as long as you use to?

Q. Is your orgasm and climax ( of course with no ejaculation ) the same as before?

Q. What would you say was the same, and what would you say is different?

Is there anything else that you would like to tell us about you "getting your erection back"?
Age 69. RP March 2023. Sildenafil 50mg. Tri-Mix 20/30/2 @ 30 units. VED with Vacurect. Penile Rehab Program including, Vacuum Therapy, stretching, and routine masturbation. Married 38 years. Solo sex only.

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AussiePete
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Re: Questions for men who have recovered their sexual function after RP.

Postby AussiePete » Mon Oct 30, 2023 3:26 am

I'm waiting in great anticipation for replies and answers to your questions.... Sadly it didn't happen for me.
Pete
RP 2001, Radiation. Pills, Caverject, Tri-mix Injections all useless. Implanted 2016 AMS 700 LGX 15cm +3 RTE. Happy with the results. Better than having a limp dick.
Married 40+ yrs.
Up for show and tell here in Perth, AU.

SteveD
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Re: Questions for men who have recovered their sexual function after RP.

Postby SteveD » Mon Oct 30, 2023 5:51 am

I'd also like to 'follow' to learn - thanks...
Somewhere on the journey after prostate cancer surgery 2019 - AMS 15/5 IPP 2 years later - saved by a very supportive wife and a great surgery team at Johns Hopkins.

ftwabeck3533
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Re: Questions for men who have recovered their sexual function after RP.

Postby ftwabeck3533 » Mon Oct 30, 2023 7:45 am

brian188 wrote:A question for any men who have experienced the return of natural erections after their nerve sparing prostatectomy.

After that period of time that you would consider as your penile rehabilitation period including prescription medications, vacuum device, injections, etc., and when you first experienced the return of your natural spontaneous erection .......

Q. Did it happen slowly or gradually or did you just one day get your hard-on back?


I obsessed over this question for about two years following my nerve-sparing prostatectomy in Oct 2018 (I was a few weeks shy of my 63rd birthday at the time). My SHIM score prior to surgery was 24 (max score is 25), no ED.

I researched, I studied, I prowled and posted on all the ED and men's sexual health forums and websites. I discovered one man who claimed to have achieved the holy grail -- a "natural" erection after having his prostate surgically removed. There may be hundreds, if not thousands more of these me out there -- they just quietly resume their sexual lives following surgery with no symptoms of ED. They have no need for pills, injections, implants -- nor the desire to tell the rest of us how fortunate they are.
Born 1955, Erectile Dysfunction, Robotic Prostatectomy (Oct 2018, Dr Bugg @ UCA, Birmingham, AL), PSA<0.007, Trimix User (30 mg Papaverine HCL, 1 mg Phentolamine MES, 10 mcg Alprostadil per 1 ML. My dose is 0.16 ML)

brian188
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Re: Questions for men who have recovered their sexual function after RP.

Postby brian188 » Tue Oct 31, 2023 10:33 am

ftwabeck3533.........thanks for responding. Yes, when I decided to post this questions I thought that I may not get any responses simple due to the fact that anyone who recovers there ability to have a natural erection may no longer visit this website. There is no longer a need to talk about it. But lets see if anyone remains here and will talk about it. OK............hope to hear from someone.
Age 69. RP March 2023. Sildenafil 50mg. Tri-Mix 20/30/2 @ 30 units. VED with Vacurect. Penile Rehab Program including, Vacuum Therapy, stretching, and routine masturbation. Married 38 years. Solo sex only.

RJ_in_Pa
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Re: Questions for men who have recovered their sexual function after RP.

Postby RJ_in_Pa » Tue Oct 31, 2023 8:28 pm

Brian188 - I just reached two months since my RP surgery and would love to know the answers to these questions. I’ve tried Cialis but it did nothing for me. I’m still dealing with leakage/incontinence. It has gotten a little better, but feeling yourself piss your pants (in a pad) knowing there is nothing you can do about it is very disheartening.

I sometimes wonder if the alternative, having 3 or 4 goods years, may have been better decision. I know I need to be patient, but there are times I just can’t believe how much my life has changed in the last two months.

Hang in there Brian.
63 Radical Prostatectomy 2023

SteveD
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Re: Questions for men who have recovered their sexual function after RP.

Postby SteveD » Tue Oct 31, 2023 9:35 pm

RJ Don't give up - my strategy was to do almost constant kegal exercises - standing, sitting, watching TV, etc. I also learned to let my bladder fill as much as possible - and then while standing in a warm shower, release some urine and then kegal as hard as possible - pee a little / kegal a lot and repeat until the bladder empties. And yes, with the excision of your urethra and the sensations your bladder experiences its hard to know when you've really emptied. Keep it up ... kegal and then shower routine. It works - it can get better!
Somewhere on the journey after prostate cancer surgery 2019 - AMS 15/5 IPP 2 years later - saved by a very supportive wife and a great surgery team at Johns Hopkins.

RJ_in_Pa
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Re: Questions for men who have recovered their sexual function after RP.

Postby RJ_in_Pa » Wed Nov 01, 2023 6:06 am

SteveD. Thanks so much for the supportive comments and great advice. I was doing the exact opposite. I thought if I kept my bladder empty, there would be nothing to leak, but there always seemed like something would be there to frustrate me. Also, I would only do kegel exercises in the evening as to not weaken the muscles during the day when I needed them to be strong. Lastly, I am able to do the complete stop and start while relieving myself and that seems to be a good sign of progress.

Again, thanks for the helpful response.
63 Radical Prostatectomy 2023

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bldoink
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Re: Questions for men who have recovered their sexual function after RP.

Postby bldoink » Wed Nov 01, 2023 7:58 am

RJ_in_Pa wrote:Brian188 - I just reached two months since my RP surgery and would love to know the answers to these questions. I’ve tried Cialis but it did nothing for me. I’m still dealing with leakage/incontinence. It has gotten a little better, but feeling yourself piss your pants (in a pad) knowing there is nothing you can do about it is very disheartening.

I sometimes wonder if the alternative, having 3 or 4 goods years, may have been better decision. I know I need to be patient, but there are times I just can’t believe how much my life has changed in the last two months.

Hang in there Brian.


Like most everyone I initially had pretty bad incontinence. It didn't resolve right away. Yes I did the kegel exercises. That helps. But what gave me my most improvement (after some initial recovery) was going for walks with no protection. It would force me to keep a kegel clamp on. Some serious concentration was often involved. There were times I had to hide behind a bush and times I had some mistakes. But it was the fear of a bad accident that helped me develop control. I eventually worked my way up to 4 mile walks without an accident but in the beginning a 100 yards was difficult.

I think you'll be fine. Not overnight of course, but you'll be OK. It does kinda suck there at the beginning.
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Nerve sparing - damaged. C in margin. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ ~ 14 units. Originally Edex20, then compounded PGE-1 - cost. Inject. 12 yrs. It works. Treasure coast of FL.

ftwabeck3533
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Re: Questions for men who have recovered their sexual function after RP.

Postby ftwabeck3533 » Wed Nov 01, 2023 8:19 am

SteveD wrote:RJ Don't give up - my strategy was to do almost constant kegal exercises - standing, sitting, watching TV, etc.
I also learned to let my bladder fill as much as possible
- and then while standing in a warm shower, release some urine and then kegal as hard as possible - pee a little / kegal a lot and repeat until the bladder empties. And yes, with the excision of your urethra and the sensations your bladder experiences its hard to know when you've really emptied. Keep it up ... kegal and then shower routine. It works - it can get better!


Steve, you're the first person to state the importance of treating your bladder as a muscle, fill it up and prepare it to hold a LOT of fluid. This worked for me as well. And the Kegel exercises continue to be an important routine to my continence. I'd say I was in full control of my bladder about 6-8 months after my prostatectomy.
Born 1955, Erectile Dysfunction, Robotic Prostatectomy (Oct 2018, Dr Bugg @ UCA, Birmingham, AL), PSA<0.007, Trimix User (30 mg Papaverine HCL, 1 mg Phentolamine MES, 10 mcg Alprostadil per 1 ML. My dose is 0.16 ML)


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