Hello! New here!

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AT1961
Posts: 9
Joined: Fri Sep 01, 2023 10:46 am

Hello! New here!

Postby AT1961 » Wed Sep 13, 2023 10:00 am

Hello! Just joined. I’m 62. In August 2021 I was diagnosed with prostate cancer. In November I had it removed.

Upside: no incontinence, zero cancer margins to date, all for which I am very grateful.

Downside: lost my 7” cock, my jizz, my sex life. Peyronie’s disease has set in and there is a bend - but I only see the bend in the VED tube, any erection totally lost once out of the tube. I tried shots, but the building plaque has made it too painful, plus I have an essential tremor and the possibility of sticking a needle in my dick correctly is about zero!

I got to FT through a Facebook prostate cancer group - I am so glad! Reading these posts - before I could register - made me so hopeful! Now I can take you guys up on all your offers to speak from your experience!

I’m active duty military and just got back from being stationed overseas. Medical was limited. I am now in the D.C. area and have first appointment with urologist next week. I think I am going to walk in saying, “Implant, please!”

Looking forward to the conversations and camaraderie. PM about anything.

Thanks!
62 years old. Prostate removed for cancer NOV 2021. Testosterone has tanked. Total ED and for icing on the cake, Peyronie’s came knocking. Pills and shots don’t work. VED and Cialis for blood flow. Appointment to discuss implant JAN 2024 at Johns Hopkins.

User avatar
bldoink
Posts: 3719
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: Hello! New here!

Postby bldoink » Wed Sep 13, 2023 11:58 am

Welcome to the forum!
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Nerve sparing - damaged. C in margin. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ ~ 14 units. Originally Edex20, then compounded PGE-1 - cost. Inject. 12 yrs. It works. Treasure coast of FL.

Old Guy
Posts: 2514
Joined: Tue Mar 31, 2020 4:31 pm
Location: Ohio

Re: Hello! New here!

Postby Old Guy » Wed Sep 13, 2023 3:30 pm

Welcome to Frank Talk!
Hope you have good luck finding all the info you need. The guys here are always helpful if you have questions.
Good news is no incontinence and zero cancer margins. And yes, needles and tremors really don't mix.
Nov. 8, 2019
4+ years, Coloplast Titan OTR
Married 36 years to my beautiful young bride
Always here to answer questions if you PM me

AT1961
Posts: 9
Joined: Fri Sep 01, 2023 10:46 am

Re: Hello! New here!

Postby AT1961 » Wed Sep 13, 2023 9:18 pm

Thank you!
62 years old. Prostate removed for cancer NOV 2021. Testosterone has tanked. Total ED and for icing on the cake, Peyronie’s came knocking. Pills and shots don’t work. VED and Cialis for blood flow. Appointment to discuss implant JAN 2024 at Johns Hopkins.

Lost Sheep
Posts: 6147
Joined: Mon Jul 04, 2016 11:16 pm

Re: Hello! New here!

Postby Lost Sheep » Wed Sep 13, 2023 10:09 pm

AT1961 wrote:Hello! Just joined. I’m 62. In August 2021 I was diagnosed with prostate cancer. In November I had it removed.

Upside: no incontinence, zero cancer margins to date, all for which I am very grateful.

Downside: lost my 7” cock, my jizz, my sex life. Peyronie’s disease has set in and there is a bend - but I only see the bend in the VED tube, any erection totally lost once out of the tube. I tried shots, but the building plaque has made it too painful, plus I have an essential tremor and the possibility of sticking a needle in my dick correctly is about zero!

I got to FT through a Facebook prostate cancer group - I am so glad! Reading these posts - before I could register - made me so hopeful! Now I can take you guys up on all your offers to speak from your experience!

I’m active duty military and just got back from being stationed overseas. Medical was limited. I am now in the D.C. area and have first appointment with urologist next week. I think I am going to walk in saying, “Implant, please!”

Looking forward to the conversations and camaraderie. PM about anything.

Thanks!

Welcome to the forum AT1961 and thanks for serving.

I got my implant after discharge and before prostate cancer. The Veteran's Administration has been very good to me. If you can widen your choices of implant surgeons outside the military establishment, keep this in mind: The experience and judgement of your surgeon is VITALLY important to a good outcome. So a surgeon who has done a lot of implants is important. You also want to have confidence in his/her dedication to his/her craft and to your welfare. I searched for 14 months to find a surgeon I trusted. I contacted the two "superstar" surgeons mentioned frequently on FT, two local surgeons and one in the Washington State VA in Seattle when another surgeon almost literally "fell into my lap". A surgeon who was expert enough to have taught the procedure was recently assigned to the local base hospital. We immediately hit it off and I scheduled surgery as soon as I could.

About my finding a surgeon. I had difficulty at first (not unlike trying to find a partner or to have sex with a limp dick). Blind alleys and obstructions everywhere. Still, I pressed on. I got my "ducks in a row". I enrolled in the Maryland VA. A travel nurse at first was almost obstructive told me that the Maryland VA would not do it, would not provide housing for recovery, etc. I worked around those negativities talking to clerks and nurses and arranged things. Everything but the air fare. Then, that (obstructive) nurse called me up out of the blue and told me of Dr Shaw and asked if I would be willing to consider him? "Hell, YEAH!" was my response, but what I said on the phone was, "Why, yes, I would meet with him, thank you."

Every person I talked to, I took notes, tried to remember their names, thank them by name at the end of the phone calls or visits and call them by name the next time we spoke. People love to be remembered. I thanked them even if they were no help. They at least gave you their time. This travel nurse responded to my attitude, I think, and my need and reached out when she had no expectation for reward for doing so. I got off-base housing while a single Staff Sergeant (USAF) by being polite and getting my ducks in a row, not just the ducks behind me but the ducks before me, too.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

AT1961
Posts: 9
Joined: Fri Sep 01, 2023 10:46 am

Re: Hello! New here!

Postby AT1961 » Thu Sep 14, 2023 10:30 pm

Thank you!
62 years old. Prostate removed for cancer NOV 2021. Testosterone has tanked. Total ED and for icing on the cake, Peyronie’s came knocking. Pills and shots don’t work. VED and Cialis for blood flow. Appointment to discuss implant JAN 2024 at Johns Hopkins.

wolfpacker
Posts: 944
Joined: Thu Dec 12, 2013 10:16 pm

Re: Hello! New here!

Postby wolfpacker » Fri Sep 15, 2023 4:02 am

AT1961 wrote:Hello! Just joined. I’m 62. In August 2021 I was diagnosed with prostate cancer. In November I had it removed.

Upside: no incontinence, zero cancer margins to date, all for which I am very grateful.

Downside: lost my 7” cock, my jizz, my sex life. Peyronie’s disease has set in and there is a bend - but I only see the bend in the VED tube, any erection totally lost once out of the tube. I tried shots, but the building plaque has made it too painful, plus I have an essential tremor and the possibility of sticking a needle in my dick correctly is about zero!

I got to FT through a Facebook prostate cancer group - I am so glad! Reading these posts - before I could register - made me so hopeful! Now I can take you guys up on all your offers to speak from your experience!

I’m active duty military and just got back from being stationed overseas. Medical was limited. I am now in the D.C. area and have first appointment with urologist next week. I think I am going to walk in saying, “Implant, please!”

Looking forward to the conversations and camaraderie. PM about anything.

Thanks!


What urologist are you seeing in the DC area for your implant? I am also active duty military in the DC area.
Early 30s with ED for years from penis enlargement stretching and jelqing. Implant by Dr Eid on 24 June 2021 with a Titan 24cm with +1cm RTE on one side and -1cm cut off on the other side

My journal: viewtopic.php?t=17202

AT1961
Posts: 9
Joined: Fri Sep 01, 2023 10:46 am

Re: Hello! New here!

Postby AT1961 » Fri Sep 15, 2023 6:23 am

Wolfpacker I have first appointment with Dr. Hawksworth at Walter Reed next week. First urology since returning State side so a lot to discuss.
62 years old. Prostate removed for cancer NOV 2021. Testosterone has tanked. Total ED and for icing on the cake, Peyronie’s came knocking. Pills and shots don’t work. VED and Cialis for blood flow. Appointment to discuss implant JAN 2024 at Johns Hopkins.

wolfpacker
Posts: 944
Joined: Thu Dec 12, 2013 10:16 pm

Re: Hello! New here!

Postby wolfpacker » Fri Sep 15, 2023 7:22 am

AT1961 wrote:Wolfpacker I have first appointment with Dr. Hawksworth at Walter Reed next week. First urology since returning State side so a lot to discuss.


Very cool thank you! I also booked my first uro/implant appointment at Walter Reed urology recently but they gave me some young Captain... Might see what availability Dr Hawksworth has, I have heard better things about her
Early 30s with ED for years from penis enlargement stretching and jelqing. Implant by Dr Eid on 24 June 2021 with a Titan 24cm with +1cm RTE on one side and -1cm cut off on the other side

My journal: viewtopic.php?t=17202

AT1961
Posts: 9
Joined: Fri Sep 01, 2023 10:46 am

Re: Hello! New here!

Postby AT1961 » Fri Sep 15, 2023 8:56 am

You already have an implant, right? Let’s switch to PM if you’re okay with that.
62 years old. Prostate removed for cancer NOV 2021. Testosterone has tanked. Total ED and for icing on the cake, Peyronie’s came knocking. Pills and shots don’t work. VED and Cialis for blood flow. Appointment to discuss implant JAN 2024 at Johns Hopkins.


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