Prostatectomy

Thoughts or ideas about the web site.
oldgoat
Posts: 105
Joined: Thu Nov 14, 2013 12:58 pm
Location: northern illinois

Prostatectomy

Postby oldgoat » Wed Sep 07, 2016 4:38 pm

Since most men that get an implant have had a prostatectomy.
Usually the reason for the implant.
I think it would be good to have a section about prostatectomy experiences.
People could share the psa levels and Gleason scores and the outcome of surgeries or radiation treatments.
Implanted with colorplast Titan 3 years ago. Davinci radical prostatectomy 6 months ago. Very happy with the outcome of both procedures.
Dr Jonas Benson. Uropartners, Wheaton, IL.

Unclebob81
Posts: 36
Joined: Fri Dec 02, 2016 3:46 pm

Re: Prostatectomy

Postby Unclebob81 » Mon Dec 19, 2016 4:53 pm

I agree. Sharing stories online and with other survivors has been very encouraging to me.
Born in 1953. Robotic prostectomy in 2013.PSA 0 Began Trimix 3 years after surgery. Couldn't be more satisfied.

Donnie1954
Posts: 2518
Joined: Wed Feb 19, 2014 9:04 pm

Re: Prostatectomy

Postby Donnie1954 » Mon Dec 19, 2016 8:11 pm

In 2009 I had radiation treatments for prostate cancer. Shortly thereafter, trimix quit working and I started using a VED. :x My gleason score is still .03 (no signs of cancer). Now I'm very happily implanted! ;)
Donnie
Implant AMS 700 CX, MS (18cm x 12mm with 5.5cm RTEs) on 10\4\16. 64 Dr. Edward Kata of Orlando. Awesome surgeon. Check out, 'DD Bryan. My implant journey, Wit and Wisdom, Stretching routine, Implant Pics, Natural Hang. Live in Ga.
.

Artist
Posts: 48
Joined: Tue Nov 12, 2013 11:05 pm

Re: Prostatectomy

Postby Artist » Mon Dec 26, 2016 10:09 am

I was diagnosed with prostate cancer in October of 2003 at the age of 50. The PSA number was low, 1.68 but it had doubled from the previous year. The digital exam indicated some problem and it was enlarged. The needle biopsy found 3 of 8 samples with cancer cells. A bone scan found no issues.

Surgery was performed in January 2004. The gland contained cancer cells but adjacent tissue and lymph nodes taken in surgery were clean. PSA tests ever since have been "0.0"

Various Meds have been taken with succes but I hate the " hangover". I now use a VED.

I will admit that orgasms are different, some can be very intense! BUT, I psychologically miss ejaculation. I apologize if this sounds crude but I miss shooting my load into my wife.

I have never considered an implant. If my wife was high drive I might consider one.
72 years of age, afflicted with ED in my late 40’s and treated with Viagra. Started treatment for hypertension at the age of 50; diagnosed with PC at age 50, RP at age of 51 years.

#31forthescore
Posts: 5
Joined: Sun Mar 18, 2018 1:22 pm

Re: Prostatectomy

Postby #31forthescore » Tue Oct 09, 2018 12:58 pm

I agree. A board Index of just prostatectomy would be a great idea. Natural / age related ED and therapies are unique and different when brought about by prostatectomy.
Open RP 6-2017 @ 65 years old..Nerve sparing..Post Op PSA's all undetectable..occasional Viagra user prior to RP.. Healthy/athletic..normal weight..Indianapolis area

Cajun Jeff
Posts: 1212
Joined: Sat Aug 01, 2009 11:44 pm

Re: Prostatectomy

Postby Cajun Jeff » Tue Oct 09, 2018 1:56 pm

10/ 08 I had open radical surgery.
Dr never did penile rehab, I pushed him all the way.
All he wanted to do was implant. Insurance said no way.
So I did the pills, ved, then injections. EdEx. That is still kind of working. But not great.

At some point I will do an implant. Such a big decision.

Oh the good thing is my PSA has been zero after surgery and continues that way.
68 years old, Married 48 years. Prostate Cancer surgery 11 years ago. Tried Pills, VED, moved to injections (EdEx) for past 6 years. Implanted with AMS 700 LGX by Dr Hellstrom in New Orleans at Tulane Medical. 1/13/20

David_R
Posts: 2145
Joined: Mon Nov 02, 2015 1:03 pm

Re: Prostatectomy

Postby David_R » Tue Oct 09, 2018 10:56 pm

Cajun Jeff wrote:Oh the good thing is my PSA has been zero after surgery and continues that way.

Congrats, brother!

Frank Talk Admin
Site Admin
Posts: 668
Joined: Mon May 18, 2009 11:06 am
Location: NYC

Re: Prostatectomy

Postby Frank Talk Admin » Thu Oct 11, 2018 9:27 am

Your idea is a good idea, obviously.
I had prostate surgery at 47 - diagnosed at 45.
I had found many sites about the PCa experience where I could ask any question about surgery, incontinence, etc. I noticed questions about sex and ED were not handled well at all. First, I often saw remarks like "There are daughters and wives here, we don't need to see talk about penises!"
I also totally understood that some men who were dying did not want to hear healthy men complaining about a limp dick. It's all a matter of perspective.
So, that is why I started Franktalk.org. After i started it, one of the big doctors at Mt. Sinai told me that ED was way bigger than PCa and I needed to open it up to all men. So I did - and boy, was he right!
We then became a 501c3 with the IRS and we have a mission statement now that has to guide all of our decisions. I completely understand the desire to talk about prostatectomies. But the truth is there are other great sites that are doing a great job at this. For example, www.healingwell.com is a great site. Also, www.ustoo.org has good support. But since we are a 501c3 we need to stay true to our mission and that means that adding PCa discussion (while it totally gives men ED) would not be in line with what we say we are about.
So, I would really encourage you to get involved on those boards since they are designed for the PCa journey. Franktalk needs to remain totally true to its mission of ED.
Paul

David_R
Posts: 2145
Joined: Mon Nov 02, 2015 1:03 pm

Re: Prostatectomy

Postby David_R » Thu Oct 11, 2018 11:23 pm

Thank you, Paul.


Return to “Suggestions”

Who is online

Users browsing this forum: No registered users and 0 guests