Venous Leak Journey
I've had significant anxiety since being diagnosed with venous leak three years ago and have undergone numerous treatments. I wanted to share what worked for me and to what extent, as this kind of detailed breakdown was something I desperately needed when I was first diagnosed. Everyone’s different, so what worked for me might not necessarily work for you—but here’s my experience:
Cialis: My first line of defense. Initially, it worked very effectively, though the efficacy diminished over time. Still, it consistently offers some benefit, so I continue taking 5mg daily.
Levitra: Stronger than Cialis but has time period/cost issues. But worth a try if cialis is not working or you have a date night.
PRP: I had eight sessions of platelet-rich plasma treatment. Unfortunately, it didn’t seem to do much. If it helped at all, the effects were minimal. I wouldn't recommend it based on my experience.
Stem Cell Therapy: This also didn’t have noticeable benefits for me, and it was quite expensive. Methodologies vary significantly—mine used my own fat cells without the tourniquet method, which might affect the outcomes.
Shockwave Therapy: This was genuinely helpful. While the improvements weren't dramatic, they were certainly noticeable, and some research supports its effectiveness. There might be a placebo factor involved, but I honestly recommend trying it.
Kegels: Pelvic floor exercises significantly helped me, prompting me to try the next treatment.
Tesla Chair: This also made a positive impact. It reinforced my suspicion that my venous leak might be largely mechanical, linked to pelvic floor weakness.
Vertica Device: I didn't seem to benefit much from this either. It was umcomfortable to use, made a painful burning sensation in high settings. And the manufacturing quality had issues.
Alpha-blockers: Initially taken for bladder issues, these had a significant positive impact on my erections when combined with Cialis. However, tolerance developed over time. Cycling on and off seemed to restore some benefits. This is a serious medication, so definitely consult your doctor before using it, especially with Cialis, as it can lower blood pressure significantly.
Epimedium Pastes: Initially skeptical, I found this product genuinely helpful when taken about an hour before intercourse.
Enclomiphene: I'm taking a very low dose (12.5mg once a week) orally. It seems to enhance my libido, improving erections. I had mid-range testosterone levels initially and will soon retest to measure its full effect. Please do thorough research and consult your doctor—this medication can significantly alter your hormonal balance.
Psychotheraphy: Honestly this didn't help a bit, i quit after one session. But i understand for some people it might be the ultimate need.
Lifestyle Changes: An obvious but critical aspect. Regular exercise, healthy eating, and cutting out harmful habits have substantially benefited my erection quality.
Quitting Caffeine: This also seems to help me a lot. I am experimenting with it now.
Embolization: I haven't pursued this option but discussed it extensively with multiple doctors. They consistently mentioned the benefits are typically temporary and that venous leak problems often stem from other issues. I consider this treatment a last resort before considering an implant.
After this three-year journey, I am doing significantly better, experiencing steady improvement. Although not always perfect and some weeks are worse than others, most of the time I can have intercourse with Cialis alone. I wrote this to emphasize that venous leak doesn’t necessarily mean a rapid progression to implants. While I might eventually require one, the combined treatments above have certainly given me many additional years. I will keep exploring new treatments to manage this condition effectively. And with all the advancements in technology i am hopeful something will come out eventually to fix this problem for all the men.
My Venous leak Journey, Review of Various Treatments
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My Venous leak Journey, Review of Various Treatments
38 M Mild Venous leak Doppler Confirmed that has been difficult to manage.
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Re: My Venous leak Journey, Review of Various Treatments
Excellent information. I too have venous leak, officially diagnosed in 2019. I’d done the Cialis 20mg, prior to 2019 for a few years because of less firmness when erect. But it stopped working. I still take 5mg for BPH, which helps with that issue. Then I did the shockwave therapy, which helped but didn’t sustain erections after stopping the treatments. Next the PRP injections. This certainly made a difference, for a while. I was told to do the VED along with the PRP. I still use VED to keep the tissues stretched out and corpus filling to maintain length. Kegel exercises are helpful too. I can get about 75% hard. My urologist put me on trimix which works extremely well. I like the erections it gives. Urologist says as long as that works no need for implant unless I want one. His thought, stay as close to natural as possible as long as possible.
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Re: My Venous leak Journey, Review of Various Treatments
Ahchuykak wrote:Venous Leak Journey
I've had significant anxiety since being diagnosed with venous leak three years ago and have undergone numerous treatments. I wanted to share what worked for me and to what extent, as this kind of detailed breakdown was something I desperately needed when I was first diagnosed. Everyone’s different, so what worked for me might not necessarily work for you—but here’s my experience:
Cialis: My first line of defense. Initially, it worked very effectively, though the efficacy diminished over time. Still, it consistently offers some benefit, so I continue taking 5mg daily.
Levitra: Stronger than Cialis but has time period/cost issues. But worth a try if cialis is not working or you have a date night.
PRP: I had eight sessions of platelet-rich plasma treatment. Unfortunately, it didn’t seem to do much. If it helped at all, the effects were minimal. I wouldn't recommend it based on my experience.
Stem Cell Therapy: This also didn’t have noticeable benefits for me, and it was quite expensive. Methodologies vary significantly—mine used my own fat cells without the tourniquet method, which might affect the outcomes.
Shockwave Therapy: This was genuinely helpful. While the improvements weren't dramatic, they were certainly noticeable, and some research supports its effectiveness. There might be a placebo factor involved, but I honestly recommend trying it.
Kegels: Pelvic floor exercises significantly helped me, prompting me to try the next treatment.
Tesla Chair: This also made a positive impact. It reinforced my suspicion that my venous leak might be largely mechanical, linked to pelvic floor weakness.
Vertica Device: I didn't seem to benefit much from this either. It was umcomfortable to use, made a painful burning sensation in high settings. And the manufacturing quality had issues.
Alpha-blockers: Initially taken for bladder issues, these had a significant positive impact on my erections when combined with Cialis. However, tolerance developed over time. Cycling on and off seemed to restore some benefits. This is a serious medication, so definitely consult your doctor before using it, especially with Cialis, as it can lower blood pressure significantly.
Epimedium Pastes: Initially skeptical, I found this product genuinely helpful when taken about an hour before intercourse.
Enclomiphene: I'm taking a very low dose (12.5mg once a week) orally. It seems to enhance my libido, improving erections. I had mid-range testosterone levels initially and will soon retest to measure its full effect. Please do thorough research and consult your doctor—this medication can significantly alter your hormonal balance.
Psychotheraphy: Honestly this didn't help a bit, i quit after one session. But i understand for some people it might be the ultimate need.
Lifestyle Changes: An obvious but critical aspect. Regular exercise, healthy eating, and cutting out harmful habits have substantially benefited my erection quality.
Quitting Caffeine: This also seems to help me a lot. I am experimenting with it now.
Embolization: I haven't pursued this option but discussed it extensively with multiple doctors. They consistently mentioned the benefits are typically temporary and that venous leak problems often stem from other issues. I consider this treatment a last resort before considering an implant.
After this three-year journey, I am doing significantly better, experiencing steady improvement. Although not always perfect and some weeks are worse than others, most of the time I can have intercourse with Cialis alone. I wrote this to emphasize that venous leak doesn’t necessarily mean a rapid progression to implants. While I might eventually require one, the combined treatments above have certainly given me many additional years. I will keep exploring new treatments to manage this condition effectively. And with all the advancements in technology i am hopeful something will come out eventually to fix this problem for all the men.
thank you for posting this.
vertica somehow helped me, but its too weak.
pt141 is the only thing that maked a difference for me.
pde5' are very outdated
pentoxyfilline helped a bit as well, maybe its something with the brain.
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Re: My Venous leak Journey, Review of Various Treatments
Wow, that's a lot. I think most guys just go through pills, pump, injections, then implant. I think most of what you went through was virtually worthless, and has been reported so on FT.
Definitely give the injections a try. They may hold you off from getting the implant (last resort, but a wonderful one at that!) for a while.
Definitely give the injections a try. They may hold you off from getting the implant (last resort, but a wonderful one at that!) for a while.
ED worsened over 25 years, likely VL. Went through pills and injections, and results faded over time. Implant AMS 700CX, 21 cm, no RTE, on 6/3/24.
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Re: My Venous leak Journey, Review of Various Treatments
You can't say you didn't try everything to improve your situation!
I had to google Enclomiphene and the Tesla chair. Interesting stuff. I don't think Enclomiphene would help me because I'm already on TRT, but I'm certainly curious about the chair.
I had to google Enclomiphene and the Tesla chair. Interesting stuff. I don't think Enclomiphene would help me because I'm already on TRT, but I'm certainly curious about the chair.
58yo Coloplast Titan implant scheduled for 10/23/2025 with Dr. Hakky. Pre-op erect measurements:
8.5"L and 6.5"C
8.5"L and 6.5"C
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Re: My Venous leak Journey, Review of Various Treatments
timduncan wrote:Ahchuykak wrote:Venous Leak Journey
thank you for posting this.
vertica somehow helped me, but its too weak.
pt141 is the only thing that maked a difference for me.
pde5' are very outdated
pentoxyfilline helped a bit as well, maybe its something with the brain.
Can you expand on your vertica experience if you hadn’t anywhere? Do you think it resulted in structural changes that will result in permanent benefits?
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Re: My Venous leak Journey, Review of Various Treatments
Breakthrough wrote:timduncan wrote:Ahchuykak wrote:Venous Leak Journey
thank you for posting this.
vertica somehow helped me, but its too weak.
pt141 is the only thing that maked a difference for me.
pde5' are very outdated
pentoxyfilline helped a bit as well, maybe its something with the brain.
Can you expand on your vertica experience if you hadn’t anywhere? Do you think it resulted in structural changes that will result in permanent benefits?
Ditto this, please.
I'm in a trial for Vertica that ends tomorrow. So, at this point, I don't know if I've been using a sham device or a real device. In theory, they're supposed to let me know the answer to that question tomorrow and give me a genuine device to take home. I'm curious to find out what other's experiences with Vertica have been. It seems that there are a number of noted urologists who have participated in this trial, so I'm hopeful that this is a legitimate solution, at least for some people.
Born 1954. Diabetes, hypertension and atherosclerosis. Sildenafil is iffy. Tri-Mix (30/3/20 Pap/Phen/PGE1) a godsend pending long-term efficacy. Daily Cialis. Tried LiESWT, Botox, PT-141, Eroxon, QST, DUS, Vertica, cabergoline, psychotherapy+hypnotherapy.
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