Plz help

The final frontier. Deciding when, if and how.



Jato1229
Posts: 67
Joined: Wed Jan 29, 2020 12:24 pm

Plz help

Postby Jato1229 » Thu Dec 10, 2020 10:17 am

So I went into big detail just now about my problem and somehow it got deleted and didn’t post so I’m gonna make a long story short. I have very very bad Peroni‘s disease 90° upward curve. I had several injections which only caused a ton of pain and made the injection site purple. I also had graft surgery about a year and a half ago which made my problem even worse. I lost about 70% of my sensitivity. So I decided to call Dr Kramer only to find out he no longer works in that office and managed to get a new email which he responded and said he will be open in about six weeks that was two weeks ago. My question is should I wait for him or should I look elsewhere. I live in New Jersey. Sorry about the penmanship, talk to text and I was being called as I was texting .
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Gt1956
Posts: 3192
Joined: Fri Apr 05, 2019 2:47 pm

Re: Plz help

Postby Gt1956 » Thu Dec 10, 2020 10:53 am

There is a member on here that had a 90 degree bend up. As I remember it, he was able to get it fixed. But please remember. If you go the implant route, it does take some time for it to straighten out.
69yo, HBP @ 40, high triglycerides @ 45. Phimosis @ 57. Type 2 @ 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months.
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Jato1229
Posts: 67
Joined: Wed Jan 29, 2020 12:24 pm

Re: Plz help

Postby Jato1229 » Thu Dec 10, 2020 11:32 am

Oh, I didn’t know it will take time. Does anybody know they gentlemen I would like to speak to him.
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Waynetho
Posts: 1768
Joined: Wed Nov 27, 2019 11:22 pm
Location: Dallas, TX

Re: Plz help

Postby Waynetho » Thu Dec 10, 2020 11:32 am

Jato1229 wrote:Oh, I didn’t know it will take time. Does anybody know they gentlemen I would like to speak to him.

I think it was Biker60. Maybe he will see this and chime in.
64yo, married 43 yrs. Urolift (x4) 8/12/19. AMS 700CX 15cm (no RTE) penoscrotal 10/28/19, Frisco, TX. PD 1995/ED 2011. Cialis helped but hinged. (1995)L:6/G:5.5+, (2019)Pre-op L:5/G:4.5, (2/2020)L:6.0/G:5.0
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Jato1229
Posts: 67
Joined: Wed Jan 29, 2020 12:24 pm

Re: Plz help

Postby Jato1229 » Thu Dec 10, 2020 12:30 pm

Hope so.
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ViaSwiss
Posts: 632
Joined: Fri May 24, 2019 9:09 am

Re: Plz help

Postby ViaSwiss » Thu Dec 10, 2020 2:00 pm

Karpman, Clavill, Eid, Perito all deal with tough Peyronies. Karpman and Clavill are both around 18-19k out of pocket. Although none of them are in NJ

Are you able to still have sex at all? How and when did the Peyronies begin? Can you post a pic?
Age 37. Venous Leakage & Post Finasteride Syndrome (PFS) since age 18.
Original Implant | June 25, 2021 | 20cm Titan w 1.5cm & 1cm RTEs
Revision | November 16, 2021 | 26cm | Dr. Hakky
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Gt1956
Posts: 3192
Joined: Fri Apr 05, 2019 2:47 pm

Re: Plz help

Postby Gt1956 » Thu Dec 10, 2020 2:33 pm

It is biker60. I checked his posts. I didn't find an exact timeline. But at 5 months he posted that it was straight. Not sure if he meant straight in the flacid state. But at least straight when inflated.
69yo, HBP @ 40, high triglycerides @ 45. Phimosis @ 57. Type 2 @ 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months.
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sweaterfan
Posts: 65
Joined: Sun Sep 06, 2020 7:39 pm
Location: Austin TX

Re: Plz help

Postby sweaterfan » Thu Dec 10, 2020 2:48 pm

On Dr. Eid's site, have a look at patient number 7 who had a 90-degree bend and straightened out over several months:

https://www.urologicalcare.com/contents ... -gallery-2

There are two other patients with Peyronie's on that page.
Born 1956, TRT, Peyronies (no improvement after 1 cycle of Xiaflex so discontinued), using alprostadil but have possible VL. Considering an implant. Aquablation for BPH Nov 2 2020, TURP 6/14/2021.
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MK1965
Posts: 625
Joined: Thu May 24, 2018 5:32 pm

Re: Plz help

Postby MK1965 » Thu Dec 10, 2020 4:38 pm

Visaviss,
Call Dr Clavell if you don’t mind traveling to Houston.
He operates now 2 days a week ( Tuesday and Wednesday).
He uses one hospital and one ambulatory surgery center.
You can check his art work at YouTube when you search “ Clavell uro”
And he also has website menshealthhooston.com
MK
IPP 9/5/18; TITAN OTR 18 +1cm RTE,Prostate Ca at 51 y/o; RARP 11/2/16, ED Post RP, Cialis, Viagra, VED,TRIMIX painful, BIMIX ineffective,lost 2+ inches of length after RP. Revision 12/2/20 by Dr Clavell, AMS 700 CX, L 21 R 21+1.5 RTE.
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MK1965
Posts: 625
Joined: Thu May 24, 2018 5:32 pm

Re: Plz help

Postby MK1965 » Thu Dec 10, 2020 4:41 pm

Jato1229,
I addressed my post to wrong person.
If you want any info and my experience with Dr Clavell, send me a PM.
MK
IPP 9/5/18; TITAN OTR 18 +1cm RTE,Prostate Ca at 51 y/o; RARP 11/2/16, ED Post RP, Cialis, Viagra, VED,TRIMIX painful, BIMIX ineffective,lost 2+ inches of length after RP. Revision 12/2/20 by Dr Clavell, AMS 700 CX, L 21 R 21+1.5 RTE.
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