18+1 What can I expect?

The final frontier. Deciding when, if and how.

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Bandit
Posts: 362
Joined: Sat May 13, 2017 7:27 am
Location: Rhode Island

Re: 18+1 What can I expect?

Postby Bandit » Mon Oct 29, 2018 7:40 pm

Larry10625 wrote
Looks so natural that looking at it you would never know that you are implanted. Are you pleased with your outcome? Is your wife pleased with it? I ask because just because it looks great doesn't mean it works great or your wife is comfortable with it.. :)


Actually Larry, we are both very happy with the outcome. We enjoy my implant regularly. Only complaint is sometimes i pump it up too hard. No porn star but somewhat thick and it can be uncomfortable for her with a prolonged pounding. Also if i am too hard it can be difficult to orgasm. On demand erection. Given what a lot of us have been through, what coild be better !
Bandit
Born 1958, married. Prostate Cancer. RRP November/2014. PSA undetectable since. Implant May/2017 AMS700LGX 18 cm + 1.5 cm RTEs.

Larry10625

Re: 18+1 What can I expect?

Postby Larry10625 » Tue Oct 30, 2018 7:12 am

Bandit wrote:
Larry10625 wrote
Looks so natural that looking at it you would never know that you are implanted. Are you pleased with your outcome? Is your wife pleased with it? I ask because just because it looks great doesn't mean it works great or your wife is comfortable with it.. :)


Actually Larry, we are both very happy with the outcome. We enjoy my implant regularly. Only complaint is sometimes i pump it up too hard. No porn star but somewhat thick and it can be uncomfortable for her with a prolonged pounding. Also if i am too hard it can be difficult to orgasm. On demand erection. Given what a lot of us have been through, what coild be better !
Bandit



I know what you mean about pumping too hard... My wife doesn't seem to care but if it's too hard for me I can orgasm as well.

Larry

DougAnd
Posts: 1152
Joined: Sun Jul 08, 2018 5:10 pm
Location: Melbourne, Florida

Re: 18+1 What can I expect?

Postby DougAnd » Tue Oct 30, 2018 8:08 am

Mk,
So glad things are looking up if only a little. Only takes that one sliver of success to make a big difference. Hurting tips mean more length hiding. A very good sign. I posted a study which shows most surgeons are using training for earlier implants that no longer exist. That what they learned does not apply to the ones we have. Distal erosion was my guys mantra. Does not apply to my implant. You may want to ask your Doc if he is using info specific for your implant or old data that he learned in training. A very big difference.
DougAnd
LGX 18cm+3cmRTE 8 / 8/18 by Docs Saracino , Prody of FL Disfigured by Implant. Married 31 years, Functionally impotent 2+ years. 4" day of surgery now 7" inflated. Pump moved 12/4/18 by Dr Kata Hopefully fixed by Dr Kramer 6/19/19

MK1965
Posts: 237
Joined: Thu May 24, 2018 5:32 pm

Re: 18+1 What can I expect?

Postby MK1965 » Tue Oct 30, 2018 8:45 am

DougAnd wrote:Mk,
So glad things are looking up if only a little. Only takes that one sliver of success to make a big difference. Hurting tips mean more length hiding. A very good sign. I posted a study which shows most surgeons are using training for earlier implants that no longer exist. That what they learned does not apply to the ones we have. Distal erosion was my guys mantra. Does not apply to my implant. You may want to ask your Doc if he is using info specific for your implant or old data that he learned in training. A very big difference.
DougAnd


DougAnd,
When I last saw him on October 22nd, he inflated me to the max, waited few minutes and added few pumps until pump became completely hard. I told him about loosing 3/4 - 1” after implant and he played like he is very surprised by my loss. He said he sized me to best possible fit which was 18 cm + 1 RTE and he pointed to the tips of cylinders which were located in my glans. He also said that is perfect position for the tips to be in the glans when inflated. When I asked about measurements 12 cm proximal and 7 cm distal, how it is affecting my length? His answer was that that measurements does not affect the length. He also said he made higher corporotomies on both sides because of severe scaring around the base of the penis.
Whatever it was, I am stacked at 3.5”, seldom goes to 3 3/4” and that is my max with implant so far. I am cycling since 9/17 every day 2x daily, even some days I cycle 3x but with no progress.
I am still of the opinion that tubing around base of my penis is restricting my penis expansion.
Waiting to see what is going to happen by the end of 6 months.
Still having some hope.
MK
IPP 9/5/18; Coloplast TITAN OTR 18 cm 1cm RTE, Dr. Khera Baylor Houston,Prostate Ca at 51 y/o; RARP 11/2/16, ED Post RP, Cialis, Viagra, VED no usable erection, April 2017, TRIMIX painful, BIMIX tolerable but ineffective,lost 2+ inches of length after RP

MK1965
Posts: 237
Joined: Thu May 24, 2018 5:32 pm

Re: 18+1 What can I expect?

Postby MK1965 » Tue Nov 06, 2018 11:40 am

Here is an update at 2 months post implant:
I see small improvement in lenght. Couple of times I was just shy 1/16 of 4 inches which is about 1/4” longer. Circumference is 4 7/8” which is also 1/4” thicker.
My erection angle is at 2 o’clock when fully inflated. That improved from 3 o’clock.
Angle of my flaccid penis is still bothering. It moved down 15-20 degrees which translates to 3:30 o’clock and still stickes out and always looks erect while even twisted like wet towel and completely empty.
I still hope, it will improve but if it continues at current speed, I will need additional 12-14 months to have normal flaccid.
Tubing around base of my penis is still bothersome and very uncomfortable while inflating and especially during sex (2 times since implant).
My surgeon mentioned he needed to make higher corporotomies because of severe scaring around base of my penis. This severe scaring is sequel from robotic prostatectomy.
MK
IPP 9/5/18; Coloplast TITAN OTR 18 cm 1cm RTE, Dr. Khera Baylor Houston,Prostate Ca at 51 y/o; RARP 11/2/16, ED Post RP, Cialis, Viagra, VED no usable erection, April 2017, TRIMIX painful, BIMIX tolerable but ineffective,lost 2+ inches of length after RP

Larry10625

Re: 18+1 What can I expect?

Postby Larry10625 » Tue Nov 06, 2018 1:05 pm

MK1965 wrote:Here is an update at 2 months post implant:
I see small improvement in lenght. Couple of times I was just shy 1/16 of 4 inches which is about 1/4” longer. Circumference is 4 7/8” which is also 1/4” thicker.
My erection angle is at 2 o’clock when fully inflated. That improved from 3 o’clock.
Angle of my flaccid penis is still bothering. It moved down 15-20 degrees which translates to 3:30 o’clock and still stickes out and always looks erect while even twisted like wet towel and completely empty.
I still hope, it will improve but if it continues at current speed, I will need additional 12-14 months to have normal flaccid.
Tubing around base of my penis is still bothersome and very uncomfortable while inflating and especially during sex (2 times since implant).
My surgeon mentioned he needed to make higher corporotomies because of severe scaring around base of my penis. This severe scaring is sequel from robotic prostatectomy.
MK



I am told that the AMS LGX and CX are still working on improvements for you up to 2 years post implant. Are you scheduled for a revision to fix your plumbing?? :)

Larry

DougAnd
Posts: 1152
Joined: Sun Jul 08, 2018 5:10 pm
Location: Melbourne, Florida

Re: 18+1 What can I expect?

Postby DougAnd » Thu Nov 08, 2018 8:45 am

Hey Mk,
Glad to hear some light has come into your very dark tunnel. I don't know if you tried it but I flaccid stretch constantly day and night when I wake up. I can't imagine your doc would oppose that. It doesn't do much but does speed up the process of stretching out scars. About like a tortoise and a slug racing.
My neighbor just had an RP and another neighbor may have already had his shaved at the bladder. Is there anything you can tell me that would help them? I don't know if either one has developed ED but I'd like to warn them what to look for in advance. Thanks And keep on growing!!!
DougAnd
LGX 18cm+3cmRTE 8 / 8/18 by Docs Saracino , Prody of FL Disfigured by Implant. Married 31 years, Functionally impotent 2+ years. 4" day of surgery now 7" inflated. Pump moved 12/4/18 by Dr Kata Hopefully fixed by Dr Kramer 6/19/19

Larry10625

Re: 18+1 What can I expect?

Postby Larry10625 » Thu Nov 08, 2018 8:53 am

DougAnd wrote:Hey Mk,
Glad to hear some light has come into your very dark tunnel. I don't know if you tried it but I flaccid stretch constantly day and night when I wake up. I can't imagine your doc would oppose that. It doesn't do much but does speed up the process of stretching out scars. About like a tortoise and a slug racing.
My neighbor just had an RP and another neighbor may have already had his shaved at the bladder. Is there anything you can tell me that would help them? I don't know if either one has developed ED but I'd like to warn them what to look for in advance. Thanks And keep on growing!!!
DougAnd



They might want to consider VED therapy now so they don't lose length when they go on pills, needles or implant. All of you poor buggers, that developed ED because you had the nerve to beat cancer or other medical ailments, know what I am saying... ED is almost a guarantee so be proactive and start now. Of course they should follow their doctors advice but, my only problem with that is, many doctors are not keeping up with advancements and studies that contradict previous thinking. They MUST keep up, medical advancements are happening frequently and the only way patients benefit is if their doctors stay current. Studies don (not just by my doctor) are proving the benefits of VED therapy Don't take my word for it, check this out :)

https://prostate.net/articles/what-is-v ... apy-for-ed

Larry

MK1965
Posts: 237
Joined: Thu May 24, 2018 5:32 pm

Re: 18+1 What can I expect?

Postby MK1965 » Thu Nov 08, 2018 2:52 pm

Larry10625 wrote:
DougAnd wrote:Hey Mk,
Glad to hear some light has come into your very dark tunnel. I don't know if you tried it but I flaccid stretch constantly day and night when I wake up. I can't imagine your doc would oppose that. It doesn't do much but does speed up the process of stretching out scars. About like a tortoise and a slug racing.
My neighbor just had an RP and another neighbor may have already had his shaved at the bladder. Is there anything you can tell me that would help them? I don't know if either one has developed ED but I'd like to warn them what to look for in advance. Thanks And keep on growing!!!
DougAnd



They might want to consider VED therapy now so they don't lose length when they go on pills, needles or implant. All of you poor buggers, that developed ED because you had the nerve to beat cancer or other medical ailments, know what I am saying... ED is almost a guarantee so be proactive and start now. Of course they should follow their doctors advice but, my only problem with that is, many doctors are not keeping up with advancements and studies that contradict previous thinking. They MUST keep up, medical advancements are happening frequently and the only way patients benefit is if their doctors stay current. Studies don (not just by my doctor) are proving the benefits of VED therapy Don't take my word for it, check this out :)

https://prostate.net/articles/what-is-v ... apy-for-ed

Larry


I totally agree with Larry.
Guy, who had RP, needs to start on penile rehabilitation program, which means low dose Cialis or Viagra right after prostate removal, at 4 weeks he should start using VED just for pumping some blood into penis to prevent atrophy. If no success with PDE5i (Cialis or Viagra) to produce erection, at 4 months he could start injecting into penis. I would start with BIMIX and if BIMIX doesn’t work next step should be TRIMIX.
If he does not experience sign of life from his penis by the end of 12 months and if he still desires sex ,depending on his age, it would be wise to start looking for IPP surgeons.
More time wasted, the harder recovery of sexual function.
If I coul go back, I would have my implant sooner likely at 13-14 months post RP. If it doesn’t work at 12 months, it won’t work later most likely or it will be like old car, FIX OR REPAIR IT DAILY.
MK
IPP 9/5/18; Coloplast TITAN OTR 18 cm 1cm RTE, Dr. Khera Baylor Houston,Prostate Ca at 51 y/o; RARP 11/2/16, ED Post RP, Cialis, Viagra, VED no usable erection, April 2017, TRIMIX painful, BIMIX tolerable but ineffective,lost 2+ inches of length after RP

Larry10625

Re: 18+1 What can I expect?

Postby Larry10625 » Thu Nov 08, 2018 4:32 pm

MK1965 wrote:
Larry10625 wrote:
DougAnd wrote:Hey Mk,
Glad to hear some light has come into your very dark tunnel. I don't know if you tried it but I flaccid stretch constantly day and night when I wake up. I can't imagine your doc would oppose that. It doesn't do much but does speed up the process of stretching out scars. About like a tortoise and a slug racing.
My neighbor just had an RP and another neighbor may have already had his shaved at the bladder. Is there anything you can tell me that would help them? I don't know if either one has developed ED but I'd like to warn them what to look for in advance. Thanks And keep on growing!!!
DougAnd



They might want to consider VED therapy now so they don't lose length when they go on pills, needles or implant. All of you poor buggers, that developed ED because you had the nerve to beat cancer or other medical ailments, know what I am saying... ED is almost a guarantee so be proactive and start now. Of course they should follow their doctors advice but, my only problem with that is, many doctors are not keeping up with advancements and studies that contradict previous thinking. They MUST keep up, medical advancements are happening frequently and the only way patients benefit is if their doctors stay current. Studies don (not just by my doctor) are proving the benefits of VED therapy Don't take my word for it, check this out :)

https://prostate.net/articles/what-is-v ... apy-for-ed

Larry


I totally agree with Larry.
Guy, who had RP, needs to start on penile rehabilitation program, which means low dose Cialis or Viagra right after prostate removal, at 4 weeks he should start using VED just for pumping some blood into penis to prevent atrophy. If no success with PDE5i (Cialis or Viagra) to produce erection, at 4 months he could start injecting into penis. I would start with BIMIX and if BIMIX doesn’t work next step should be TRIMIX.
If he does not experience sign of life from his penis by the end of 12 months and if he still desires sex ,depending on his age, it would be wise to start looking for IPP surgeons.
More time wasted, the harder recovery of sexual function.
If I coul go back, I would have my implant sooner likely at 13-14 months post RP. If it doesn’t work at 12 months, it won’t work later most likely or it will be like old car, FIX OR REPAIR IT DAILY.
MK



Agreed. :)

Larry


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