Life till now

The final frontier. Deciding when, if and how.
Entourage
Posts: 57
Joined: Mon Apr 20, 2020 1:29 am

Life till now

Postby Entourage » Thu May 25, 2023 6:19 am

I am probably one of the youngest person who have received an implant I have received my implant at the age of 26. my journey towards an implant was led by using finasteride for seven days. I was in a relationship for a long time after my finasteride crash. I stopped my communication with everyone and went into severe depression and anxiety. I was diagnosed with hard flaccid syndrome, and which later on turn to long flaccid syndrome, I had visited almost all top doctors.sometimes I feel so saddened I have given up on having anything. Till I received with my implant I was on 100mg viagra hit or a miss.

I never thought an implant with come with so much anxiety. I paid the whole thing out of my pocket and now gotta work and save up and pay up my debt. Sometimes I Ask Allah why such a difficult journey. An implant might look very easy and for some people it is very easy. But my journey till now had been one of the hardest. I have had other surgeries but it’s on such a sensitive part of my body and Carrie’s so much risk. I honestly can’t stay off FT. You have have been a blessing for my journey. I have cried the first week locked in the room not knowing what I got myself into what has happned. So much pain. Some people who got in the surgery with me same day almost had no pain and back to normal life. But I still haven’t been able to. 2 tyneol 2 antibiotics 2 ketorolac and 1 nerve pain medication everyday. I looked into my tynelol bottle and was like Iv been eating them like candies. I can’t imagine the toxin in my body with so much chemicals.

Im no way trying to say anything negetive. But you really gotta be warrior strong to go through this. I can’t thank my family enough to stand along side me and Allah SWT for doing what’s best for me. I pray for everyone in this journey to heal. I honestly sometimes think will anyone ever be interested in me. After all this journey and scars I carry. I do always believe after hardship comes ease. Sorry for the long words just wanted to clear my mind.
26 years old
PFS- HF/LF for 3 years
Implanted titan May 2nd
DR.Clavell

implantguy1
Posts: 77
Joined: Wed Nov 23, 2022 8:53 am

Re: Life till now

Postby implantguy1 » Thu May 25, 2023 6:53 am

Hey,You will be fine in coming days.
Where are you from? Which implant you have? And who was your doctor?

Gt1956
Posts: 2859
Joined: Fri Apr 05, 2019 2:47 pm

Re: Life till now

Postby Gt1956 » Thu May 25, 2023 7:03 am

In life, few journeys worth taking are easy. I think one way to ease your burden is to see if you can get your anxiety treated. As you suffer from the thoughts that it gives you, then the journey looks insurmountable. The pain & doubts grow.
While you are young, you are not the youngest. I've read of a member that was implanted at I think 18. Please remember that the thoughts that maybe you've made a mistake are normal.
Each stage of your recovery will be marked by small victories like just finding the features of your pump. I told my nurse that just finding this silly little button can't be this difficult. She is patient & I continually had to ask where it was while staring at the sample pump. It took two visits to just be able to find the release button. Keep trying, healing is slow but it will be done. You can overcome these small things. You've are on the right path, don't leave that path due to despair.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

Buzzer
Posts: 103
Joined: Sun Feb 05, 2023 7:55 pm
Contact:

Re: Life till now

Postby Buzzer » Thu May 25, 2023 7:57 am

Implanted 4-18-2023.

Yes the first 12 days will be very painful. I had the same experience. I am not a doctor but with the help of the Emergency room it was revealed that my pain plan was nowhere near adequate. I only got help when I complained that I had a pain level of 10 since the second day after surgery. It is my opinion that Tylenol will do very little for pain. Oxycodone did help me a lot I was on one Oxycodone per 12 hrs. That was not enough. Then went to one Oxycodone every 4 hrs. Then the pain went down, but I did not complain until day 6. I should have raised all holy hell on day 3. You have to contact your urologist that you are in such pain you are going to the emergency room because the pain is not going down. Don't ask if you should go or not, just go. You are informing them not asking permission

The doctor office hears from a lot of people about pain, when they hear you say a level 10 pain since surgery you may get their attention.

While you are in Emergency they will verify if the surgery is OK or not and if you have or do not have an infection. This alone will set your mind at ease. On day 12 things became more tolerable. Today I am off all pain meds. Also prepare yourself for your first deflation, it had me screaming because of the pain and only Oxycodone relieved the pain.

Doctors are very reluctant to prescribe Oxycodone because the industry abused prescribing meds with their Pill Mills that caused huge levels of addiction. Then the FDA got involved and required doctors to have to jump through huge hoops to prescribe it.

I will be activated on June 2, 2023. I hope that is not painful, but if it is I have one Oxycodone pill to deal with it.

The main issue you may be experiencing is the inflammation. Tylenol does nothing for inflammation. NSAID does help but you must check for any other med conflicts first. See if you can take Motrin that does help with inflammation. After the firtst week my junk looked like a bad tree stump. It hurt a lot.

Yea I know there are many that do not experience huge pain, but there are many that do have huge pain too.

All our bodies are different and this surgery is on the most sensitive part of a mans body. There is no guarantee of your level of pain you will or will not have.

Stay the course and have faith. And did I not tell you to raise all holy hell? Be polite and respectful of course but be intolerant also.

Bill

PM me if you need any information, also pleae update your signature so everyone has a little history on your doctor, what implant you got and what size etc that will help you with responses from others here on FT.
ED for 15 years, married 49 years, age 72, wife age 70. Tried VED and Trimix both failed. AMS CX 21 cm implant installed on 4-18-2023. There are no RTE's inserted. Dr. Yooni Blair University of Michigan, Ann Arbor, MI

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Life till now

Postby Hillywilly » Thu May 25, 2023 11:07 am

Entourage wrote:I am probably one of the youngest person who have received an implant I have received my implant at the age of 26. my journey towards an implant was led by using finasteride for seven days. I was in a relationship for a long time after my finasteride crash. I stopped my communication with everyone and went into severe depression and anxiety. I was diagnosed with hard flaccid syndrome, and which later on turn to long flaccid syndrome, I had visited almost all top doctors.sometimes I feel so saddened I have given up on having anything. Till I received with my implant I was on 100mg viagra hit or a miss.

I never thought an implant with come with so much anxiety. I paid the whole thing out of my pocket and now gotta work and save up and pay up my debt. Sometimes I Ask Allah why such a difficult journey. An implant might look very easy and for some people it is very easy. But my journey till now had been one of the hardest. I have had other surgeries but it’s on such a sensitive part of my body and Carrie’s so much risk. I honestly can’t stay off FT. You have have been a blessing for my journey. I have cried the first week locked in the room not knowing what I got myself into what has happned. So much pain. Some people who got in the surgery with me same day almost had no pain and back to normal life. But I still haven’t been able to. 2 tyneol 2 antibiotics 2 ketorolac and 1 nerve pain medication everyday. I looked into my tynelol bottle and was like Iv been eating them like candies. I can’t imagine the toxin in my body with so much chemicals.

Im no way trying to say anything negetive. But you really gotta be warrior strong to go through this. I can’t thank my family enough to stand along side me and Allah SWT for doing what’s best for me. I pray for everyone in this journey to heal. I honestly sometimes think will anyone ever be interested in me. After all this journey and scars I carry. I do always believe after hardship comes ease. Sorry for the long words just wanted to clear my mind.


Get some medication for the anxiety you need to get your mind right. I recommend talking with your doctor about a very small dose of prozac (10mg) it helped me tremendously with anxiety.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

Dent4ever
Posts: 48
Joined: Wed Dec 21, 2022 7:21 pm

Re: Life till now

Postby Dent4ever » Thu May 25, 2023 1:53 pm

I agree on the above and recommend to get some anxiety meds.. mine & your journey with finasteride are almost identical. Took in in Nov 2009 and had the hard/long flaccid whole fibrotic mess happen. In theory, your testosterone takes care of all physical male needs (NTE,s sex drive etc), but this isn't so for the few of us who very much depend on DHT. I know two guys who are still on fina/duta after 2 decades and are fine.. point Im trying to make is Ive put myself through the same self punishment that you did and you also seem like more of an anxious guy like me. We didn't know.. you're already ahead of me with the implant. If you can take the right meds - I just started Wellbutrin and perhaps your doc can give other anti panic meds that you can take -as needed. You will be able to move on with your life. Ive had PFS for very long and agonized a year before deciding on an implant. Need any mental support and how Ive sorta managed mine, feel free to PM me. You seem like a good guy, just need to take the intense emotions out from time to time, that's what these meds are for
42 M. Mild peyronies like symptoms for well over a decade. Mostly related to PFS syndrome I believe. Seriously considering an Implant. Trying to mentally accept the situation, Pills barely work and trimix gel doesn't work, tried injections -hated it.

Gt1956
Posts: 2859
Joined: Fri Apr 05, 2019 2:47 pm

Re: Life till now

Postby Gt1956 » Thu May 25, 2023 2:38 pm

Dent4ever: I've known a few people that had anxiety problems. I believe its under treated & admitting you have it adds a level of self shaming to the treatment.
Are you able to self analyze yourself well enough to get to the point where you can see that an implant should get you past most of your penis issues?
I do know that just the short time with my implant. My lifes outlook has taken a nice turn for the better. Still lots of healing & cycling to do but the horizon is looking better.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

Dent4ever
Posts: 48
Joined: Wed Dec 21, 2022 7:21 pm

Re: Life till now

Postby Dent4ever » Thu May 25, 2023 2:54 pm

Yes Gt, you’re right on all those accounts. Having many opportunities but not being able to act on them, feeling great for a few days then slight panic sets in about the usual things or mishaps about the surgery. I’ve definitely have coke to the conclusion that no action breeds more of this kinds of feelings, I hope to move past it once I’m implanted. Several people have told me this, take care of it, move forward. Unfortunately I’ve battled insurance for months now so mine will be an out of pocket expense but oh well!
42 M. Mild peyronies like symptoms for well over a decade. Mostly related to PFS syndrome I believe. Seriously considering an Implant. Trying to mentally accept the situation, Pills barely work and trimix gel doesn't work, tried injections -hated it.

Gt1956
Posts: 2859
Joined: Fri Apr 05, 2019 2:47 pm

Re: Life till now

Postby Gt1956 » Thu May 25, 2023 3:25 pm

Dent4ever wrote:Yes Gt, you’re right on all those accounts. Having many opportunities but not being able to act on them, feeling great for a few days then slight panic sets in about the usual things or mishaps about the surgery. I’ve definitely have coke to the conclusion that no action breeds more of this kinds of feelings, I hope to move past it once I’m implanted. Several people have told me this, take care of it, move forward. Unfortunately I’ve battled insurance for months now so mine will be an out of pocket expense but oh well!

I can understand the insurance problem. I suggested to a member just the other day to try getting approval for treating his peyronies disease. If they're just hung up on the ED issue. Try using a different reason. If you have some peyronies symptoms? Implants are consudered the "gold standard" treatment.
Does your employer offer more than one insurance option? Are they large enough that you could transfer to a different division that has a more friendly insurance carrier?
Lastly, a friend of our family wanted a lapband many years ago. Was denied by insurance. Finally they offered to cover it at a higher copay.
You might be able to find a weak spot in their always say no policy. Just a few ideas. Good luck.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

Dent4ever
Posts: 48
Joined: Wed Dec 21, 2022 7:21 pm

Re: Life till now

Postby Dent4ever » Fri May 26, 2023 1:09 am

Thanks for all the pointers, may give a different reason a go. I’ve really supplied documented info of over a decade of Ed and everything tried from a-z. Problem is that I’ve always had insurance through work for decades and this is the first time I have state covered insurance due to disability. So tertiary care and certain referrals are super difficult despite me changing insurance groups and it literally has to be a final necessity for a particular doctor. Obviously, I’m not willing to roll the dice on the surgeon AT all with this matter:)
42 M. Mild peyronies like symptoms for well over a decade. Mostly related to PFS syndrome I believe. Seriously considering an Implant. Trying to mentally accept the situation, Pills barely work and trimix gel doesn't work, tried injections -hated it.


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