My Story

The final frontier. Deciding when, if and how.
Time2Change
Posts: 416
Joined: Sun Sep 13, 2020 7:32 am

My Story

Postby Time2Change » Mon Sep 14, 2020 5:10 am

Nineteen years ago, I took a five-week bike trip at age 32. Ever since midway through that trip, I've suffered from ED.

Over the years, I sought help from PCP's, counselors, urologists, a heart specialist, and a neurologist. The neurologist ultimately concluded that I'd damaged my pudendal nerve while on my bike trip.

For years until February of this year, I've lived in a state of resignation. I've relied on Levitra and a cock ring to get erections, so I can have sex. But the effectiveness of the drug has decreased, so now I'm only able to sometimes maintain an erection in a couple of positions while having sex.

My ED has had devastating effects on me, my wife, and our marriage. Things were really bad between us last winter, so I sought out a urologist who specializes in ED, hoping he might have some new suggestion for me. He told me about penile implants.

I couldn't believe what he had to say. I was energized. Finally, I could return to a sex life like I'd had 20 years ago. So, between the pandemic and wrangling with insurance, it took until August to get surgery for the implant approved by my insurance company.

My surgery is scheduled for the end of October, and I have my pre-surgery meeting with my urologist in early October. I have a lot more thoughts to share, and some questions based on what I've read here. But this is the start to my story.
55; ED for 22+ years; Coloplast Titan implant on 10/26/20; Dr. Martin Gross; Happy to share my experiences in private messages

notaes
Posts: 523
Joined: Sat Mar 23, 2019 8:54 am

Re: My Story

Postby notaes » Mon Sep 14, 2020 8:09 am

Time2Change

Your life is about to change! Give it time and you will love your new bionic cock. Had mine in a January 2020. Great results! Feel free to ask any questions you may have.
66 yr old male married 36 yrs use trimix four yrs, cilais and Viagra. trimix work well developed scarring on both sides had implant 1/9/2020 at UT Med Ctr, Knoxville, TN Dr. John Lacy.

tomas1
Posts: 1946
Joined: Tue Jul 23, 2013 5:12 pm
Location: Tempe, AZ

Re: My Story

Postby tomas1 » Mon Sep 14, 2020 3:16 pm

You really should make a list of questions to ask the doc.
There are many, but some are:

Implant model to use.
Type of incision, infra-pubic or peno-scrotal.
(sorry about the spelling)
Use of RTEs

Do a lot of researching here for other questions to ask.
85 years
Inject testosterone weekly.
Implant on 1/22/19 by Dr Avila.
Scrotal, hor. incision just over 1"
18cm AMS 700 CX, 3.5cm RTE 100cc res
Gleason 6 prostate cancer. Monitoring it for now.
Update: On my last biopsies the cancer wasn't found.

Lost Sheep
Posts: 6133
Joined: Mon Jul 04, 2016 11:16 pm

Re: My Story

Postby Lost Sheep » Mon Sep 14, 2020 3:22 pm

Your Urologist diagnosed nerve damage. Another possible cause of E.D. from bicycling is damaging the arteries that supply blood to the cavernosum

Has your urologist ruled out such damage? Such damage is repairable with an arterial graft, much less invasive surgery. I expect a simple non-invasive doppler test would tell the tale.

Implantation is generally understood to be a last resort after all other efforts have failed. The implantation procedure renders you essentially impotent but for the implant continuing to work.

https://en.wikipedia.org/wiki/Penile_artery wrote:
The penile artery (also known as the common penile artery) is the artery that serves blood to the penis.

It is a terminal branch of the internal pudendal artery, along with the scrotal artery.

It subdivides into three arteries, the bulbourethral artery, the dorsal artery of the penis and the cavernosal artery.

The penile artery is susceptible to trauma. Impact to the groin causing damage to the artery may cause erectile dysfunction in young men. In select patients surgery may correct erectile dysfunction.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Time2Change
Posts: 416
Joined: Sun Sep 13, 2020 7:32 am

Re: My Story

Postby Time2Change » Tue Sep 15, 2020 5:03 am

Noteas,

Thank you for the encouragement.

One question I have is about relearning how to be sexual again. I'm not romantic anymore. I don't know how to flirt anymore.

What are people doing to change behavior now that they can follow through easily?
55; ED for 22+ years; Coloplast Titan implant on 10/26/20; Dr. Martin Gross; Happy to share my experiences in private messages

Time2Change
Posts: 416
Joined: Sun Sep 13, 2020 7:32 am

Re: My Story

Postby Time2Change » Tue Sep 15, 2020 5:06 am

Noteas,

Thank you for the encouragement.

One question I have is about learning how to be sexual again.

I'm not romantic anymore. I don't flirt anymore. What are people doing to change their behavior, now that they can follow through in bed?
55; ED for 22+ years; Coloplast Titan implant on 10/26/20; Dr. Martin Gross; Happy to share my experiences in private messages

Time2Change
Posts: 416
Joined: Sun Sep 13, 2020 7:32 am

Re: My Story

Postby Time2Change » Tue Sep 15, 2020 5:11 am

tomas1,

Thank you for the suggestion.

I have spent a fair amount of time reading posts here.

I'm assuming my urologist will use a Coloplast because he gave me a brochure on that brand. I believe he will use the infrapubic technique because he's co-authored a paper on it.

What are RTE's?
55; ED for 22+ years; Coloplast Titan implant on 10/26/20; Dr. Martin Gross; Happy to share my experiences in private messages

Time2Change
Posts: 416
Joined: Sun Sep 13, 2020 7:32 am

Re: My Story

Postby Time2Change » Tue Sep 15, 2020 5:15 am

Lost Sheep,

Thank you for the information.

It was a neurologist, over 10 years ago, that came up with the diagnosis.

This is the third urologist I've brought this problem to. I also saw a cardiovascular doctor. None of them suggested damage to the artery, even though all of them knew my history.

I will ask the doctor in my meeting.
55; ED for 22+ years; Coloplast Titan implant on 10/26/20; Dr. Martin Gross; Happy to share my experiences in private messages

Old Guy
Posts: 2473
Joined: Tue Mar 31, 2020 4:31 pm
Location: Ohio

Re: My Story

Postby Old Guy » Tue Sep 15, 2020 8:37 am

Make sure to ask your surgeon all the questions you want to know about, size, healing, precautions, etc. No question is dumb when you haven't been through this. Wish I would of found FT before my implant and not 5 months after.

As far as getting romantic you'll get back in the groove once you realize nothing will stop you from completing the task. For me and my wife things were going downhill in the sex department too fast when I couldn't hold an erection. She doesn't like a fake penis (dildo) either, so that really killed all sex between us for a while. Once I healed she couldn't wait for our first time. From there I just went back to my old ways, always horny and wanting sex. Romance is just part of the game we men play to get some. "Just be nice" is my motto now. Treats for her, back rubs, foot rubs, what ever it takes.
Nov. 8, 2019
4+ years, Coloplast Titan OTR
Married 36 years to my beautiful young bride
Always here to answer questions if you PM me

Lost Sheep
Posts: 6133
Joined: Mon Jul 04, 2016 11:16 pm

Re: My Story

Postby Lost Sheep » Tue Sep 15, 2020 12:53 pm

Time2Change wrote:What are RTE's?

RTE Rear Tip Extender. Since implants are incremented at 3 cm increments (e.g. 15, 18, 21 cm, etc) it is necessary to get a more precise fit to apply shims or adjusters to accommodate in-between sizes of men's tunicas.

There is a glossary up top in the forum defining a lot of terms we commonly use here. General Discussion / Acronym List

viewtopic.php?f=3&t=9123
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter


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