Guys w/ Peyronie's / Implant

The final frontier. Deciding when, if and how.
rdhill
Posts: 31
Joined: Sun Dec 26, 2010 8:50 pm
Location: USA

Guys w/ Peyronie's / Implant

Postby rdhill » Mon Dec 27, 2010 8:35 am

Does anyone with PD [Peyronie's Disease] have the AMS 700 LGX? I've heard that only the AMS 700 CX is implanted when someone has PD. Curious what you guys w/ PD have, how happy you a.re with it, how has it worked for you, how it's affected your size, how much did you loose if any, how big were you to begin with, what did you do to prep, and how big are you now? I've already lost too much length [w/ not much to spare], and much girth. I don't want to lose any more but I do want it to work also. :?: :?: :?: attached is my Peyronie's penis when it first began. The Peyronie's became worse as my penis retreated.
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me3.jpg
Penis w/ Peyronies
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Last edited by rdhill on Mon Dec 27, 2010 10:18 am, edited 1 time in total.

tmwstw
Posts: 25
Joined: Sun Dec 26, 2010 12:42 am

Re: Guys w/ Peyronie's / Implant

Postby tmwstw » Mon Dec 27, 2010 9:54 am

JackP on this forum can tell you alot about this .. just wait he'll reply ... if you have more questions ask him personally, he's willing to help.

franglais
Posts: 173
Joined: Sun Feb 21, 2010 10:47 pm

Re: Guys w/ Peyronie's / Implant

Postby franglais » Mon Dec 27, 2010 10:23 am

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Last edited by franglais on Sun May 22, 2011 11:32 am, edited 1 time in total.

lifewithPD
Posts: 1
Joined: Wed Nov 24, 2010 8:48 pm
Location: Colorado Springs, CO
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Re: Guys w/ Peyronie's / Implant

Postby lifewithPD » Mon Dec 27, 2010 11:50 am

Hi Robin,

While I have PD, I do not have an implant, so unfortunately I cannot address specifics. I do have, however, many contacts in the implant industry and know that there are different models, styles and companies. After having many conversations with physicians who perform this procedure, the one common thread that has been told to me has been that for a PD (Peyronie's Disease) patient when he decides to have an implant will only get what he has in respect to length and girth at the time of the procedure. Because the PD takes it's effect in both cases over time, the surgeon is very limited in providing an implant that give back what was lost. The surgeons do try and maniputulate the penis before and after the implant is inserted but sadly it is very minimul in making a difference.

Can I ask you if you have had the procedure done? Also, how long have you had PD? What have you tried, besides the obvious medications prescribed? What were those medications? I know the fear of NOT being able to utilize your tool in any way is forboding, but do not allow that fear cause you to jump to any conclusions.

I have a freind who came down with PD, who went to an uneducated Physician, who told him the ONLY treatment was to have an implant. WRONG!!!! Of course not knowing better and relying upon the (so called expert) physician, he did what he was told. Fact is, his PD was very minor and there were other things he could have pursued BEFORE he had the procedure done. Not only did he not have to have the implant, but the one the physician used was the wrong one and he installed it incorrectly, leading to years of suffering on his part. Until he found a physician who could correct the wrongs. Today he is a very happy man because at least he can use his penis once again, and most important!! He has a satisfied wife.

Robin, if you have had the procedure done, then you must make the best of it, but, if you have not, please investigate, investigate, investigate! Ask questions and not just from the same physician. I am not saying having an implant is a bad thing, only it should be the absolute last resort. Once you do it, there is no turning back to a natural erection. Although having an erection at a moments notice does have it's advantages...... :)


Lifewith PD
8 years since PD presentation

Http://www.peyroniesassociation.org
53 years old, married 30 years, Type II Diabetic; 21 years, PD patient; 8 years and counting, Founder; Association of Peyronie's Disease Advocates (APDA)

jackpTenn
Posts: 147
Joined: Sat Jan 23, 2010 11:12 pm
Location: Collierville TN

Re: Guys w/ Peyronie's / Implant

Postby jackpTenn » Mon Dec 27, 2010 9:54 pm

Lifewith PD

I will start with your post first. I have had peyronies for 15 years, mine started in 1995 and I have probably done more research on PD and penile implants (IPP) than 99% of PD patients.

1. Your first statement is you have no experience with an IPP but you offer advice. Yes there are two companies that make IPP's and there are 4 common implants. 3 by AMS and 1 by Coloplast.

2. The doctors you talk to may not be Male Sexual Function Specialist or not trained in the IPP for men with peyronies. There are only about 5 doctors in the US that are good at IPP's for men with peyronies.

3. A properly sized AMS 700 LGX (www.amslgx.com) will expand up to 20% in length and girth. This is the only IPP that expands in length and girth all others only expand in girth.

4. As to size after an LGX. You are wrong that what you have at the time of the procedure that is all you will have. In my case at my pre op consultation at Vanderbilt I was measured at 4" at the stretch test. This is down from the 5.5" I had in 1995. When my implant was activated I was measured at 4.25". At my 3 month check up I was measure at 4.75". At my one year check up I measured just under 5". Now 26 months later I measure 5.1". How did I get this result? First you need to go through the implant thread and find my story I call "One Mans Journey." After a failed implant by a the most famous local urologist,where he punctured my urethra, I started on my quest to find the best implant doctor in the US. After several doctor visits to doctors that could not answer my questions I was referred to Dr. Douglas Milam at Vanderbilt. He and the staff at Vanderbilt answered all my questions but one before I could ask. After that consultation I knew I was at the right place.

You see a properly sized LGX with a great doctor is what you need for a satisfactory outcome.

Continued Page 1
Peyronies 1995
Penile Implant 10/08
Dr. Douglas Milam @ Vanderbilt
Normal Again

jackpTenn
Posts: 147
Joined: Sat Jan 23, 2010 11:12 pm
Location: Collierville TN

Re: Guys w/ Peyronie's / Implant

Postby jackpTenn » Mon Dec 27, 2010 10:07 pm

Page 2 (computer messing up)

5. Your fiend, like so many men, did not do his research on the IPP and the doctor he used. That is why he had a bad outcome. I am happy to read he finally found a great doctor that could fix it for him.

6. An IPP is not the last resort. For men with PD that develop any of the following: Venous Leakage, Corporal Fibrosis, Loss of Night Time Erections, Severe ED, etc, it is time to look into an IPP.

7. The url you post and the other peyronies forum have both good and bad advice. They are full of men looking for a "silver bullet" to fix there proplem on these forums. It does not exist.

I could go on and on but you get my meaning. If you have not walked in my shoes do not try and offer me advice.

There is a lot of research ongoing on with men that have PD and have an IPP. To get a glimpse of that go to the Vanderbilt web site. Find the Urology Department and then the doctors. Scroll down to Todd Doran MS PA-C. and read his cv's. My case is part of that research. Doctors that were once skeptics are now using the length expanding implant (LGX) with modeling for there peyronies and having great results.

Any one with questions I will be happy to help. Semd me a PM or email to jwp104@att.net.

Jack
Peyronies 1995
Penile Implant 10/08
Dr. Douglas Milam @ Vanderbilt
Normal Again

Frank Talk Admin
Site Admin
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Location: NYC

Re: Guys w/ Peyronie's / Implant

Postby Frank Talk Admin » Mon Dec 27, 2010 10:20 pm

Gentlemen,
Please keep the tone of all posts polite, respectful and courteous. As my mother used to say - if you can't say anything nice, don't say anything at all!
I will fight to keep this a safe, nurturing place at any cost.
thanks
Paul

franglais
Posts: 173
Joined: Sun Feb 21, 2010 10:47 pm

Re: Guys w/ Peyronie's / Implant

Postby franglais » Mon Dec 27, 2010 11:17 pm

x


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