M22, nearly 4 years functionless from PSSD. I’ve been through the entire treatment ladder, pills, injections, the works. On the injection side I’ve tried single agent alprostadil, bimix, and trimix. I can achieve rigidity with trimix, but without fail I end up needing to reverse it with phenylephrine, so it’s not a workable long-term solution. I’ve had several appointments with Dr. Eid and am seriously
considering moving forward with an implant.
The wrinkle is that I have a diagnosed connective tissue disorder (hypermobility spectrum, same family as Ehlers-Danlos), and I can’t find much of anything on how that affects implant surgery. Healing, tissue integrity, long-term outcomes, any of it.
Has anyone here had the procedure with EDS or a similar condition, or discussed it with their surgeon? Even if you don’t have direct experience, I’d appreciate any educated guesses or things worth thinking about. Just trying to get some light shed on this before I go further. Thanks!
Implant with a connective tissue disorder (EDS/hypermobility)? Anyone have experience or thoughts?
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runtsss
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