Mallealbe rods aren't malleable

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Mark1974
Posts: 486
Joined: Wed Feb 15, 2023 5:16 pm
Location: Central Illinois

Mallealbe rods aren't malleable

Postby Mark1974 » Fri May 23, 2025 11:42 am

I'm having a difficult recovery.

To his credit, Dr Levine did recommend the AMS for my penis and my desires and expectations. But I was stubborn. I wanted something that would give me the least complications. Now I have more complications.

It's early since I am only Day 4 post-surgery, but this thing won't bend into place and is uncomfortable pointing it up towards my belly. It twists toward the right at 3:30 position. It also feels hard as a rock, not rubbery like I expected it would. I knew the core was metal, but I expected the outer layer to be softer and the metal coil to be more pliable.

I also had to be catheterized after surgery and then returned to central Illinois. My local ER wouldn't take the catheter out and looked at me like I was from outer space when I explained I had a penile prothesis. I had to have my elderly mother drive me to her brother's house and then take a medical service to Dr Levine's office in downtown Chicago just to get the catheter removed.

I've told everyone this for a varicocele, but I think everyone knows more is going on,

I see Dr .Levine in a month. If he can't bend into place I will have to take a medical leave from work and get a revision to an IPP as soon as possible.

I chose the MPP to make my life less complicated, but it has become more complicated.
Born 6/15/74. I have substantial venous leak with fairly severe hour-glassing, but no hard plaques. My urologist is Dr. Laurence Levine who performed a Doppler Ultrasound and diagnosed me with VL in 2020. Surgery scheduled for Coloplast Genesis 5/19/25

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Kodixx
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Re: Mallealbe rods aren't malleable

Postby Kodixx » Fri May 23, 2025 11:53 am

Mark, I'm sorry to hear of your challenges. I don't have experience with MPP's, but have read that they have a "break-in period" just like IPP's. Best wishes for a quick resolution.

- Chuck
Mark1974 wrote:I'm having a difficult recovery. It's early since I am only Day 4 post-surgery, but this thing won't bend into place and is uncomfortable pointing it up towards my belly. It twists toward the right at 3:30 position. It also feels hard as a rock, not rubbery like I expected it would. I knew the core was metal, but I expected the outer layer to be softer and the metal coil to be more pliable.
Feb 2025 - 58 yo, 38 with greatest wife ever
AMS CX, Tenacio, Dr Broghammer (excellent) - pre-op L:7", post-op @ 3 mos L: 6.75" G: 5.5"
2 wks pain, cycling-sex-lifting @ 7 wks, only minor discomfort @ 10 wks, felt like 'new normal' @ ? mos

Mark1974
Posts: 486
Joined: Wed Feb 15, 2023 5:16 pm
Location: Central Illinois

Re: Mallealbe rods aren't malleable

Postby Mark1974 » Fri May 23, 2025 11:59 am

Thanks Koddix

Can anyone explain how we insert images here? I Press the Img, but I just see the letters Img and nothing to link me to my download
Born 6/15/74. I have substantial venous leak with fairly severe hour-glassing, but no hard plaques. My urologist is Dr. Laurence Levine who performed a Doppler Ultrasound and diagnosed me with VL in 2020. Surgery scheduled for Coloplast Genesis 5/19/25

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tooyoung
Posts: 76
Joined: Sat Feb 01, 2025 12:46 pm

Re: Mallealbe rods aren't malleable

Postby tooyoung » Fri May 23, 2025 12:42 pm

Mark1974 wrote:I'm having a difficult recovery.

To his credit, Dr Levine did recommend the AMS for my penis and my desires and expectations. But I was stubborn. I wanted something that would give me the least complications. Now I have more complications.

It's early since I am only Day 4 post-surgery, but this thing won't bend into place and is uncomfortable pointing it up towards my belly. It twists toward the right at 3:30 position. It also feels hard as a rock, not rubbery like I expected it would. I knew the core was metal, but I expected the outer layer to be softer and the metal coil to be more pliable.

I also had to be catheterized after surgery and then returned to central Illinois. My local ER wouldn't take the catheter out and looked at me like I was from outer space when I explained I had a penile prothesis. I had to have my elderly mother drive me to her brother's house and then take a medical service to Dr Levine's office in downtown Chicago just to get the catheter removed.

I've told everyone this for a varicocele, but I think everyone knows more is going on,

I see Dr .Levine in a month. If he can't bend into place I will have to take a medical leave from work and get a revision to an IPP as soon as possible.

I chose the MPP to make my life less complicated, but it has become more complicated.


Man you are 4 days post op..why did you assume what you are having are complications and not the usual recovery period? Did you follow up with dr.levine ? What did he tell you to expect in recovery ? I believe it's too early to bend it...what doctors usually say it's bendable 2 weeks post op and not before...and what I've seen from anecdotes it's no less than a month in most cases (genesis only...others way longer if they will bend at all)...even ipps have their own hustle in recovery period that extend to couple of months or more.

ragingbull
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Re: Mallealbe rods aren't malleable

Postby ragingbull » Fri May 23, 2025 12:59 pm

Were you ever given the opportunity by your doctor to touch, bend and feel the malleable rods during your pre-op visits? Please avoid any bending attempts for at least 8 weeks. This was an invasive surgery and your tissues need time to heal properly before you flex and bend them. What diameter rods did you receive?

Mark1974
Posts: 486
Joined: Wed Feb 15, 2023 5:16 pm
Location: Central Illinois

Re: Mallealbe rods aren't malleable

Postby Mark1974 » Fri May 23, 2025 1:01 pm

ragingbull wrote:Were you ever given the opportunity by your doctor to touch, bend and feel the malleable rods during your pre-op visits? Please avoid any bending attempts for at least 8 weeks. This was an invasive surgery and your tissues need time to heal properly before you flex and bend them. What diameter rods did you receive?

11mm diameter and 21 cm length.

I have 5 inches sticking out. I want post photos, but I don't know how
Born 6/15/74. I have substantial venous leak with fairly severe hour-glassing, but no hard plaques. My urologist is Dr. Laurence Levine who performed a Doppler Ultrasound and diagnosed me with VL in 2020. Surgery scheduled for Coloplast Genesis 5/19/25

Mark1974
Posts: 486
Joined: Wed Feb 15, 2023 5:16 pm
Location: Central Illinois

Re: Mallealbe rods aren't malleable

Postby Mark1974 » Fri May 23, 2025 3:24 pm

[quote="tooyoung"]
He told me to start putting ointment on four days after surgery and showering five days. He said on day five to start moving it side to side and up and down very gingerly. But it doesn't go down or to the left
Born 6/15/74. I have substantial venous leak with fairly severe hour-glassing, but no hard plaques. My urologist is Dr. Laurence Levine who performed a Doppler Ultrasound and diagnosed me with VL in 2020. Surgery scheduled for Coloplast Genesis 5/19/25

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tooyoung
Posts: 76
Joined: Sat Feb 01, 2025 12:46 pm

Re: Mallealbe rods aren't malleable

Postby tooyoung » Fri May 23, 2025 3:58 pm

Mark1974 wrote:
tooyoung wrote:He told me to start putting ointment on four days after surgery and showering five days. He said on day five to start moving it side to side and up and down very gingerly. But it doesn't go down or to the left


Totally right...but don't expect it to move equally on each axis...it heavily relies on personal anatomy...it will loosen by time as pain subsides and with this exercise (precisely "gingerly")..don't worry you will later be able to bend it perfectly, especially the 11mm genesis.

When is your next follow up with Dr.levine ?

pumpless_mtfckr
Posts: 55
Joined: Fri Oct 18, 2024 8:17 pm

Re: Mallealbe rods aren't malleable

Postby pumpless_mtfckr » Fri May 23, 2025 5:20 pm

well shoot, sayin them genesis rods aint malleable is like claimin a coloplast titan tube dont never bust n leak, or them ams 700 cx cylinders aint ever gonna fray... now listen here, i aint talkin out my hat like some possum playin preacher in a baptist church, all dressed up in sunday best after scarfn down a plate of marthas famous southern cookies. just you wait give it a lil time, n that thingll go softer than a marshmallow meltin in a texas noon sun. howdy, that oughta do it rougher n a cob but smooth as a creek stone where it counts, take care, recover well...happy friday y'all

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duke_cicero
Posts: 318
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Re: Mallealbe rods aren't malleable

Postby duke_cicero » Fri May 23, 2025 6:00 pm

Far too early to bend. It's going to "soften" with time. For the first week and a half after surgery, mine stuck out more or less straight out. At around the 3-week mark, it started to hang more normally. I can understand your frustration, but you just went through a surgery and need time to heal.
Born 1990. ED since age 20 after a bicycle accident. Coloplast Genesis malleable implanted December 2024. Read my implant journal here.


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