Cylinder fell out into my scrotum

[cautiouslyoptimistic]

Hi guys I need some advice, Had a revision to an AMS CX and in the left cylinder fell completely out of my implant in my scrotum. I’ve only found a couple other case or this happening on franktalk. Fantastic luck I have. The Dr who performed the revision said the stitches holding the corporotomy likely tore and will need to be fixed. He apologized and felt for me, but I’m now questioning whether I should go back to him to have this revised. He only uses AMS devices which some have said is a major red flag. I now know that because he discussed the possibility of replacing it completely and I asked if that was the case could I replace it with a Titan. He was hesitant and said he only used AMS and hasn’t implanted a Titan in quite some time, but would ask if he could get a Titan for me. He said that the hospital he’s affiliated with only uses AMS so it might be a lengthy delay to get it. He then called me back a few hours later and said he did some thinking and the best solution would just be to reposition the cylinder and stitch closed the corporotomy instead of replacing everything. The device also has massive dog ears, and he said he’s not sure why that is exactly, but prior to the cylinder falling out the dog ear kept getting bigger and bigger, sticking out sideways literally 2 inches during the inflation process.

I just want your feedback on if it’s a good idea to go ahead with another surgery with the doctor. He’s a nice guy, listens well and explains things, but I’m questioning his surgical skill a little bit if something like this could happen. A million things are running through my head. I went in for the revision to have the tubing and aneurysm addressed and post-op he said something along the lines of “I couldn’t fix that bulge, I didn’t want to risk damaging healthy tissue”.

[Tmansdorfer]

I am one of the ones that had this same thing happened. I had the implant fail and I had a revision. One and a half months after the revision I had the left implant come out into my scrotum. The dr went back in and just put the implant back in and didn’t replace anything. Several months after that I had a serious infection on the implant. I switched drs because I didn’t trust the original dr and the new dr told me they should have replaced at least the side that came out.

[cautiouslyoptimistic]

So sorry that happened to you man. That’s exactly what I’m thinking. This implant is clearly loose in multiple places, I can feel it. The ENTIRE left cylinder is sitting in my scrotum, and the pump always felt high, kinked up, and poking through the skin since day 1. It was not done properly last time if the corporotomy ripped so easily. I waited 3 1/2 weeks to cycle it which should have been more than enough time. He’s was first leaning towards replacing it, but after I mentioned using a Coloplast as a replacement instead of another AMS CX he changed his mind and is saying the best route would probably be to leave in the device that’s currently in there. repositioning it and stitching closed the corporotomy.

I’m not a doctor so it’s hard to question it, but I so desperately want this to be done and not need another revision or get an infection. Please help

[aussiePeyronies]

Man, I really feel for your situation.

Please be cautious, do not go back to him!

Save up if you have to, but go to one of the recommended doctors, preferably Dr Eid. He is known to fix botched implants.

Hang in there man, wishing you the best.

J

[Daytripper]

I would suggest seeking out a second opinion from a high volume surgeon, the quickest and easiest way is using telemedicine appointment this way you can consult with the doctor by appointment from the comfort of your home. Maybe even two other opinions. GL.

[cautiouslyoptimistic]

Thanks to everyone who responded. I totally agree about getting a second and third opinion. I have multiple appointments lined up next week. My only worry is how long can the left cylinder be out of place before that scar tissue begins to form in the space made for the cylinder. The doctor who did my revision said i can’t leave it too long but did not give an exact time frame.

[Tmansdorfer]

When I had the infection they removed the whole implant for 6 months and were able to reinsert the implant once I was free of the infection. I did utilize the VeD everyday while I was waiting for the revision.

[wolfpacker]

When I had the infection they removed the whole implant for 6 months and were able to reinsert the implant once I was free of the infection. I did utilize the VeD everyday while I was waiting for the revision.

Did your penis/size change in those 6 months?

[Tmansdorfer]

Yes I lost 2cm from the implant and about an inch of measurable size from before the infection to now. My dr told me that the use of the VED was what made it possible to place it back in. He also told me that with another revision he should be able to install the prior size now that it has been two years. I have not done the revision yet due to fears of infection again but I have an appointment with my dr on Monday to discuss so we will see. I also have been waiting until the new ams pump comes out

[cautiouslyoptimistic]

Very scared of another revision and the potential for infection also. Petrified is more like it. The thought of never being able to use my penis again is also a thought I’m trying my best to shake.