Starting to get cold feet a bit what do you guys think?

The final frontier. Deciding when, if and how.
aussiePeyronies
Posts: 666
Joined: Thu May 05, 2022 9:44 am

Re: Starting to get cold feet a bit what do you guys think?

Postby aussiePeyronies » Tue Mar 14, 2023 3:56 am

Hilly,

We are similar in age, so I think I can relate. Strongly agree with what GT1956 said.

I was strongly against an implant during the first few years of peyronies, and the first 2 years of peyronies, with viagra, I could still have a decent sex life. My condition got to a point where I could not engage in sex at all, and the disease was just progressing further. In saying that, I saw good progress using the VED with the 3 cylinder VED protocol on the peyronies forum, it was only when I further injured myself that my condition worsened and an implant was the only option.

Try to weigh up your situation, can you still have sex? IS your current condition affecting your mental health that badly? Are you able to accept having an IPP or accept the fact that your penis is never going to be the same? Can you accept having sex with cialis for a few years?

I have an implant now, and it seems to have been a good decision. However, if I could go back 5 years ago to when my peyroneis started, I would have done VED and Restorex, taken pentox and 5mg daily cialis, abstained from sex and I am very confident I MAY have been able to heal my condition.

If you feel it's better on your mental health to just go ahead with the IPP and you can accept that you will never have a natural erection again. See what Hakky says at the ultrasound and go for it. From what I have heard, he is a great surgeon with great aftercare.

I have DM'd you as well.

J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm + 1cm RTE

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Tue Mar 14, 2023 12:37 pm

Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:

"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:

1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.

2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).

3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "

I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

aussiePeyronies
Posts: 666
Joined: Thu May 05, 2022 9:44 am

Re: Starting to get cold feet a bit what do you guys think?

Postby aussiePeyronies » Tue Mar 14, 2023 10:45 pm

Hillywilly wrote:Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:

"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:

1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.

2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).

3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "

I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.


Hilly, just to add, and this is anecdotal, in the PD forum, many members found the 3 cylinder VED to help a lot with hourglass. You could try it out for 3 months as an alternative if you aren't ready for surgery.

We are similar ages, I am implanted now, and although I am in recovery, I am liking it. However, I could not have sex or masturbation at all pre-implant.

Hope this helps.
J
34 Years Old...Peyronies for 4 years. 20 Degree left and upwards curvature, major dents and narrowing, ED.

Implant + Tunica Expansion Procedure, 7th Feb 2023, Titan 22cm + 1cm RTE

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Tue Mar 14, 2023 11:21 pm

aussiePeyronies wrote:
Hillywilly wrote:Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:

"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:

1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.

2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).

3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "

I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.


Hilly, just to add, and this is anecdotal, in the PD forum, many members found the 3 cylinder VED to help a lot with hourglass. You could try it out for 3 months as an alternative if you aren't ready for surgery.

We are similar ages, I am implanted now, and although I am in recovery, I am liking it. However, I could not have sex or masturbation at all pre-implant.

Hope this helps.
J


Yeah it is helpful. I think all my erectile tissue Is good except below the top just below the glans and left side. Calcified plaque there and narrowing. Extraordinarily depressed and anxious about the whole situation which I think could be contributing? But wouldn’t I still get good erections by myself? Got a “sec therapist” but they seem more interested in treating me for sex addiction which makes me feel worse wish I could be getting hard enough erections to have a sex addiction.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

misterecz
Posts: 106
Joined: Thu Dec 15, 2022 1:42 am
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Re: Starting to get cold feet a bit what do you guys think?

Postby misterecz » Wed Mar 15, 2023 12:59 am

VED for 10 minutes is nothing. What pressure are you reaching?
I personally pump for 30min every day and reach 10hg. It took me a few months to get up to that but it has helped a lot with my girth.
Why are you scared of injections? They're amazing. I use injections and even as a single guy using injections is awesome. Just keep them in the freezer most of the time and put them in the fridge when i think i'm gonna get lucky.
If i go out or go to a girl's place i put them in an ice pouch for the car ride and have a syringe container and put one in my pocket. Works great.

It's a small prick and also over time it will help increase girth. Also for traction studies find that the most effective is when done for several hours a day. I def would suggest a vacuum cup device because they are more comfortable and don't constrict blood.
Peyronie's From Rough Sex in 2020.
Developed Erectile Dysfunction, Dorsal, & Lateral Curvature.
Treated With Traction, VED, DMSO, & PGE1.
YouTube Channel: https://www.youtube.com/@mrecz

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Wed Mar 15, 2023 11:15 am

misterecz wrote:VED for 10 minutes is nothing. What pressure are you reaching?
I personally pump for 30min every day and reach 10hg. It took me a few months to get up to that but it has helped a lot with my girth.
Why are you scared of injections? They're amazing. I use injections and even as a single guy using injections is awesome. Just keep them in the freezer most of the time and put them in the fridge when i think i'm gonna get lucky.
If i go out or go to a girl's place i put them in an ice pouch for the car ride and have a syringe container and put one in my pocket. Works great.

It's a small prick and also over time it will help increase girth. Also for traction studies find that the most effective is when done for several hours a day. I def would suggest a vacuum cup device because they are more comfortable and don't constrict blood.



I spent $300 for a nice device and was really disappointed because it doesn't have a pressure gauge. 10 mins daily is just what Hakky told me to do go up to full hard hold 2 mins release 5 cycles so probably more like 20 mins of cycling.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

ThailandBound
Posts: 951
Joined: Fri Dec 16, 2022 5:32 pm

Re: Starting to get cold feet a bit what do you guys think?

Postby ThailandBound » Wed Mar 15, 2023 11:40 am

Hillywilly wrote:
misterecz wrote:VED for 10 minutes is nothing. What pressure are you reaching?
I personally pump for 30min every day and reach 10hg. It took me a few months to get up to that but it has helped a lot with my girth.
Why are you scared of injections? They're amazing. I use injections and even as a single guy using injections is awesome. Just keep them in the freezer most of the time and put them in the fridge when i think i'm gonna get lucky.
If i go out or go to a girl's place i put them in an ice pouch for the car ride and have a syringe container and put one in my pocket. Works great.

It's a small prick and also over time it will help increase girth. Also for traction studies find that the most effective is when done for several hours a day. I def would suggest a vacuum cup device because they are more comfortable and don't constrict blood.


HB, do you pump after inflated or while flaccid? I am concerned about pumping flaccid because i wonder if the vacuum pressure on my uninflated cylinders might not be good for them, since they’re designed to stretch from within, hydraulically. I don’t know.
I spent $300 for a nice device and was really disappointed because it doesn't have a pressure gauge. 10 mins daily is just what Hakky told me to do go up to full hard hold 2 mins release 5 cycles so probably more like 20 mins of cycling.
Active, athletic 63 years old. Sexually, still 33 in my mind and spirit. Pills and injections all worked, until they didn’t. Diagnosed with veinous leakage in 2022. Coloplast Titan. 22 CM. No RTE. Peno-scrotal. Implanted 1/4/23. Dr. Clavell.

FinallyBionic
Posts: 300
Joined: Fri Jul 22, 2022 8:12 am

Re: Starting to get cold feet a bit what do you guys think?

Postby FinallyBionic » Wed Mar 15, 2023 12:03 pm

Hillywilly wrote:Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:

"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:

1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.

2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).

3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "

I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.

I agree with GT1956. Work it out with your surgeon. Tell him about your doubt on the surgery and about your hopes that you can recover without the implant.
Cancelling 3 or 4 days before your surgery date will result in $300 loss from your side but the surgeon will lose around $20k, as they can not fill your place in less than a week. You will not leave a good impression.
The other option suggested by GT is also excellent. You can request it from your surgeon and let him work on a plan with you during the period before your revised date.
Finally Bionic
1969. RP Oct. 2017. Pills and Trimix didn't work. Inguinal hernia repair on both sides. AMS CX 21 cm+1 RTE, by Dr. Kai Li at Kaiser, VA, Jan. 2021. FT member since July 2020 as AST2123. See my previous 457 posts.

Hillywilly
Posts: 610
Joined: Thu May 12, 2022 11:03 am

Re: Starting to get cold feet a bit what do you guys think?

Postby Hillywilly » Wed Mar 15, 2023 5:26 pm

FinallyBionic wrote:
Hillywilly wrote:Thank you Everyone. After some thought I think I will keep my surgery date on the books for now and maybe cancel last minute if I think it is a bad call. I think it is worth losing the $300 deposit. My plan is to get a 2nd opinion doppler on the 28th, based on that I may cancel or keep my surgery on the 4th but regardless I think I'll go see hakky for another doppler and perhaps an experimental stem cell treatment he offers. I think the problem is as leading urologist doctor Trost puts it is this:

"only a few therapies have been studied as it relates to hourglass. In my experience, here are ones which make some difference:

1 - Penile prosthesis. This definitely fixes the underlying issue. The only problem is that it will replace the person's underlying ability to achieve a spontaneous erection. Because of that, it's a great therapy for someone in their 70's, but a poor choice (in my opinion) for someone in their 40-50's who otherwise have good erectile function.

2 - Traction. In our first randomized trial where we looked at the efficacy of Restorex (https://pubmed.ncbi.nlm.nih.gov/30916626/) we found (Table 4) that 54% of men who had indentation or hourglass deformities reported that they felt that traction had improved the condition. That number broke down into 27% who felt that it was a minimal improvement, 20% moderate improvement, and 7% significant improvement. These men had done treatment for 3 months, and in the study we only recommended counterbending against the primary curve. But since then, I have been recommending that patients use the device straight + every direction except for the direction of their curves. In other words, if someone had an up curve, they would do 10 min straight, 10 down, 10 right, 10 left. My thinking is that we want to try to stretch it out in all directions if possible. To date, and to my knowledge, there aren't any studies evaluating hourglass among the 1st generation traction devices (otherwise, I would include it here too).

3 - Extratunical grafting. This is a newer procedure which has shown benefits. We just finished a video which goes into this and shows how it is done with a digital animation (https://malefertilityandpeyroniesclinic ... ia/videos/) or https://www.youtube.com/watch?v=dmdi2s_L9Uw. I only recommend this in cases where the hourglass is moderate to severe though and never recommend it for mild cases since it's very difficult to get the aesthetics exactly right. "

I only have mild hour glass so the only therapies open to me (that are not experimental ) are 1 &2. Hopefully I will soon find some answers.

I agree with GT1956. Work it out with your surgeon. Tell him about your doubt on the surgery and about your hopes that you can recover without the implant.
Cancelling 3 or 4 days before your surgery date will result in $300 loss from your side but the surgeon will lose around $20k, as they can not fill your place in less than a week. You will not leave a good impression.
The other option suggested by GT is also excellent. You can request it from your surgeon and let him work on a plan with you during the period before your revised date.


Well deadline for my deposit was yesterday. I guess i'll think it over a little more and maybe email his office tomorrow and see if I can keep my diagnostic (ultrasound) appointment and tell them I just need to know if they think improvement is unlikely or not and I think I have to physically be in Atlanta for them to make that call. Just hate the idea of having to wait another month for surgery.
33 HG deformity now Titan OTR 24cm XL + 1 cm RTE's Length 7.25in/ Girth 6in (midshaft) Dr. Hakky 4/4/23

misterecz
Posts: 106
Joined: Thu Dec 15, 2022 1:42 am
Contact:

Re: Starting to get cold feet a bit what do you guys think?

Postby misterecz » Wed Mar 15, 2023 7:19 pm

I highly suggest you first try out injections. They were a game changer for me. I really thought I was going to get an implant. Went to Dr. Eid and he prescribed me injections.
It has also rehabilitated my penis and made it bigger. And now I can have sex even with just Cialis. Not saying this WILL happen to you, but wouldn't hurt to try at least.
In the meantime you can use a VED and traction to make the penis longer to get the longest possible cylinders.
Peyronie's From Rough Sex in 2020.
Developed Erectile Dysfunction, Dorsal, & Lateral Curvature.
Treated With Traction, VED, DMSO, & PGE1.
YouTube Channel: https://www.youtube.com/@mrecz


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