How do I know what fully deflated is?

The final frontier. Deciding when, if and how.
Flip_5
Posts: 28
Joined: Sat Apr 30, 2022 10:36 pm

How do I know what fully deflated is?

Postby Flip_5 » Thu May 12, 2022 11:11 pm

I just had an appointment to deflate my implant. I can get it down to the point where I feel some krinkles and the tubes make a very subtle squeeking sound as I press on them and they flex around. The penis itself is also a little more flexible than it was. But it points up at 2 o clock and still looks quite full. Did you find that when it was new you experienced something similar but it then changed over time to became way more flexible? or was it very flexible right from the get go and immediately pointed down to 6 o clock on your first few deflates?


(right now my valve is 'covered' which makes it really hard to operate still).
Implanted April 2022 w/Coloplast Titan due to gradually worsening venous leak over four years.

Lost Sheep
Posts: 5069
Joined: Mon Jul 04, 2016 11:16 pm

Re: How do I know what fully deflated is?

Postby Lost Sheep » Thu May 12, 2022 11:54 pm

Flip_5 wrote:I just had an appointment to deflate my implant. I can get it down to the point where I feel some krinkles and the tubes make a very subtle squeeking sound as I press on them and they flex around. The penis itself is also a little more flexible than it was. But it points up at 2 o clock and still looks quite full. Did you find that when it was new you experienced something similar but it then changed over time to became way more flexible? or was it very flexible right from the get go and immediately pointed down to 6 o clock on your first few deflates?


(right now my valve is 'covered' which makes it really hard to operate still).

If you read through old posts (which I recommend because some of the answers you will find there within a couple hours of reading may not come from current members for a couple of days and some wisdom from members no longer active may get missed entirely), you will see many comments about the inherent stiffness of the Coloplast tubes.

Coloplast tubes are made of a material they call "bioflex"which is fairly stiff all by itself, uninflated. Many members report that it gradually softens over time. Months. As I understand it, the more you use it, the quicker it softens, but you should hear that from someone who has a Coloplast. I have an AMS LGX which is made of a different mateiral which is a lot more flexible and "drapes" (until I inflate it) more naturally than the Coloplast. Easier to deploy for urination, too.

When you can feel the krinkles and folds you are pretty well deflated. If you bend your penis in the middle, you will feel some folds that people here call "dog ears". They are the same thing you get when you bend a water hose or drinking straw.

I cannot tell you how to determine if you are 100% deflated for absolute certain, but when I want to deflate completely I wrap one hand around the shaft of my penis and sqeeze, one finger at a time, to "milk" the saline toward my body (the opposite of how you milk a cow) and then repeat. Since my penis sticks out a bit from my hand, I also try to poke the glans down into my hand (like you would squeeze an accordion). I don't know how easy that will be with a Coloplast.

At that point, I will speculate that you will see your cross-section as rather flat and be able to palpate the tubes inside your penis and roll the folds and krinkles around quite a bit.

I hope this helps.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017 Dr Shaw
READ OLD THREADS to ask better questions and better understand answers
Become part of your medical team
Document pre-op penile size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Lost Sheep
Posts: 5069
Joined: Mon Jul 04, 2016 11:16 pm

Re: How do I know what fully deflated is?

Postby Lost Sheep » Fri May 13, 2022 12:03 am

Short answer:

Yeah, you are going to stick out for a while. Take advantage of that and wear underwear that keeps you pointed up. Scar tissue is still forming and you will appreciate an upward-pointing erection. The base of the implant will be held in the orientation in which it healed. Once a couple of months has passed and you are fully healed and the Coloplast tubes have softened a bit they will be able to bend down so you penis will hang (or drape) more naturally. But you will probably never hang at 6 o'clock again (my opinion). But your erection will be outstanding.

Implants are not a perfect treatment for ED (and certainly not a cure). But they are as close to a true cure (for a man for whom the other treatments are ineffective) as we have.

Count your blessings.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017 Dr Shaw
READ OLD THREADS to ask better questions and better understand answers
Become part of your medical team
Document pre-op penile size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

AverageBloke
Posts: 50
Joined: Sat Jun 19, 2021 6:16 am

Re: How do I know what fully deflated is?

Postby AverageBloke » Fri May 13, 2022 12:50 am

Hey Flip,

I'm almost 6 weeks out of surgery and my deflated still points out to about 4-4:30pm. It will take time through cycling to soften the cylinders and you will get better at deflating. The way I deflate is I hold the deflate button and squeeze my penis at the same time for about 10 seconds. My penis looks pretty deflated but still sticks out so I can't point it down at the moment. I've purchased a comfortable large jockstrap from amazon and I plan to start wearing my flaccid penis up just for the first three months.

Also I read your journal, in regards to the pump still being stuck... Ask your surgeon if you can start soaking in a hot bath. Hot baths really soften up all the tissues and let you feel all aspects of the pump better. Give it some time the pump should dislodge and be in a good position. If it is still a problem after three months then you can determine with the surgeon if you need a revision. And I would also be asking why it ended up like that, was it poor pump placement? Did he ever ask you to do gentle tugs on the pump daily in the first 2 weeks to keep it in place? Some surgeons do and some don't.

I would follow your surgeons instructions as they know what is best. Give it time and be patient. I couldn't find my deflate button at first because it was covered in tissue but now my pump is hanging lower and the tissue is going away.
22 Years Old
Peyronie's Disease
Titan Touch 22cm - Dr Clavell 06/04/22

Lost Sheep
Posts: 5069
Joined: Mon Jul 04, 2016 11:16 pm

Re: How do I know what fully deflated is?

Postby Lost Sheep » Fri May 13, 2022 1:47 am

In addition to asking your surgeon (and here), the Coloplast Patient Liaison is there (provided by Coloplast at no charge to you) to help you with these sorts of questions. The PL often knows tricks and fixes that even the surgeons don't know about. Also has more time to spend with you on the phone and can walk you through how to do stuff.

The PL is a valuable resource and knowledge base. Use him/her.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017 Dr Shaw
READ OLD THREADS to ask better questions and better understand answers
Become part of your medical team
Document pre-op penile size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Old Guy
Posts: 894
Joined: Tue Mar 31, 2020 4:31 pm
Location: Ohio

Re: How do I know what fully deflated is?

Postby Old Guy » Fri May 13, 2022 8:45 am

My Coloplast Titan is still fairly stiff after 2 1/2 years, but nowhere like it was for maybe the first year. It hangs down my left leg, but there is a bulge in my pants that I never had before. I can tuck my penis between my legs to sleep on my stomach, laying on it isn't comfortable.
ED started in my mid-50s. Pills then injections failed, like going through ED again & again.
November 2019 had my Coloplast Titan implant done at 68. Tough healing for me but now it's great. Married 34 years to my lovely 17-year younger wife.

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Masonjames
Posts: 475
Joined: Sat Mar 16, 2019 3:54 pm
Location: Georgia

Re: How do I know what fully deflated is?

Postby Masonjames » Fri May 13, 2022 1:45 pm

I've had my Coloplast for one year and nine months now. It hangs naturally now but it's a shower and not a grower. I don't even think about it unless I am using it and then everything is great. Love my Coloplast and my abilities now.
70 year old, Married 53 years with two adult children.
Tried pills, herbs, and Trimix. Implanted by Dr. Hakky , in Atlanta, on the 1st, of September. Titan XL 24cm's with two 1.5cm"s RTE"s

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stmfttr
Posts: 261
Joined: Mon Dec 14, 2020 11:35 pm

Re: How do I know what fully deflated is?

Postby stmfttr » Fri May 13, 2022 4:10 pm

Masonjames wrote:I've had my Coloplast for one year and nine months now. It hangs naturally now but it's a shower and not a grower. I don't even think about it unless I am using it and then everything is great. Love my Coloplast and my abilities now.


Agree 100%!
stmfttr
75 yo. Married 52years - Coloplast Titan, 22cm and no RTE's - Installed June 2019 Nebraska Medicine Dr. Deibert (urologist/surgeon)
ED started in 1994 Tried VED, Viagra and Cialis, and injections.

Confusedjourney
Posts: 193
Joined: Sun Oct 10, 2021 10:09 am

Re: How do I know what fully deflated is?

Postby Confusedjourney » Sun May 15, 2022 1:20 pm

I have the coloplast and I Harv many issues with deflating from the beginning. It’s very sensitive and u have to get the exact spot. I use to fish around a lot and it would take me 15 mins to deflate because I would get the right spot then lose it and then get it again. 6 months in now I finally got it right. What helped was getting a good angle by switching hands. Now it’s real easy. You’ll figure it out. Best of luck!

Flip_5
Posts: 28
Joined: Sat Apr 30, 2022 10:36 pm

Re: How do I know what fully deflated is?

Postby Flip_5 » Mon May 16, 2022 12:17 am

Thanks so much for the encouraging & helpful replies guys. It's great to be able to reach out and share what's going on with other people going through the same.

I'm still struggling at deflation but I think I'm already getting better. It used to take me an hour plus of fiddling to inflate and deflate and now I've cut that down a little bit.

I'm in touch with the coloplast support person too so I usually ask them the same questions I ask here.
Implanted April 2022 w/Coloplast Titan due to gradually worsening venous leak over four years.


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