Spinal cord injury incomplete 27m

The final frontier. Deciding when, if and how.
Blah1109
Posts: 121
Joined: Tue Mar 09, 2021 8:23 pm

Spinal cord injury incomplete 27m

Postby Blah1109 » Thu Mar 11, 2021 11:46 am

Hello guys I was just wondering if anyone have had a spinal cord injury and have considered getting a penile implant and if you already have one what is your outcome. Currently I am taking Cialis and Viagra but they don't seem to be working anymore and then my doctor prescribed me trimix I don't like the fact that it has to be store in the cold all the time. What if I want a quicke at a random place. How quick did you agree to the penile implant..Please advise

MeloxDD
Posts: 23
Joined: Fri Oct 23, 2020 12:37 pm

Re: Spinal cord injury incomplete 27m

Postby MeloxDD » Thu Mar 11, 2021 3:51 pm

Hi!I have peyronie disease and also split spine. My perineum doesn't work well and my reflexes are slow...I had severe venous leak and i'm considering an implant...
26 y/o - nonbacterial Prostatitis from 2016 - Peyronie Disease from 2018 - Diagnosis in 2020 - Moderate/Severe ED due to PD - Cialis and Viagra - Looking for an implant...

Blah1109
Posts: 121
Joined: Tue Mar 09, 2021 8:23 pm

Re: Spinal cord injury incomplete 27m

Postby Blah1109 » Thu Mar 11, 2021 3:56 pm

MeloxDD wrote:Hi!I have peyronie disease and also split spine. My perineum doesn't work well and my reflexes are slow...I had severe venous leak and i'm considering an implant...

Same here. I have my appointment in 2 weeks and we'll see what happens and what the doctor tells me

BmorePaul
Posts: 34
Joined: Wed Oct 30, 2019 12:29 am

Re: Spinal cord injury incomplete 27m

Postby BmorePaul » Wed Mar 17, 2021 4:35 pm

I didn't have a spinal cord injury but found the trimix was too restrictive, cumbersome, and inconvenient. I tried it for 3 months and had an implant and haven't looked back. It's been such a morale booster.
47 with ED for years. Viagra/Cialis no change. Trimix worked, but painful erections and inconvenient. AMS 700 implant CX, 21 cm + 1.5 cm RTE, 10/22/2019, Andrew Kramer

https://youtu.be/N-N2mGWWEOg

Blah1109
Posts: 121
Joined: Tue Mar 09, 2021 8:23 pm

Re: Spinal cord injury incomplete 27m

Postby Blah1109 » Wed Mar 17, 2021 4:52 pm

BmorePaul wrote:I didn't have a spinal cord injury but found the trimix was too restrictive, cumbersome, and inconvenient. I tried it for 3 months and had an implant and haven't looked back. It's been such a morale booster.


Yeah I spoke about it with my significant other and we both agreed that we don't want that route because we wanted spontaneous right away

Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Re: Spinal cord injury incomplete 27m

Postby Lost Sheep » Wed Mar 17, 2021 4:55 pm

I used oral medications for a long time. When they lost effectiveness, my primary care physician suggested that authorization for an implant might be possible.

Blah1109 wrote:ow quick did you agree to the penile implant..Please advise


Pretty much immediately.

Then it took 14 months for me to find a surgeon I wanted to trust to do the implant.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Blah1109
Posts: 121
Joined: Tue Mar 09, 2021 8:23 pm

Re: Spinal cord injury incomplete 27m

Postby Blah1109 » Wed Mar 17, 2021 5:09 pm

Lost Sheep wrote:I used oral medications for a long time. When they lost effectiveness, my primary care physician suggested that authorization for an implant might be possible.

Blah1109 wrote:ow quick did you agree to the penile implant..Please advise


Pretty much immediately.

Then it took 14 months for me to find a surgeon I wanted to trust to do the implant.


Why so long? Do you live in fairly area wirh good docs or hard to find around your area? Etc

Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Re: Spinal cord injury incomplete 27m

Postby Lost Sheep » Wed Mar 17, 2021 9:26 pm

Blah1109 wrote:
Lost Sheep wrote:I used oral medications for a long time. When they lost effectiveness, my primary care physician suggested that authorization for an implant might be possible.

Blah1109 wrote:ow quick did you agree to the penile implant..Please advise


Pretty much immediately.

Then it took 14 months for me to find a surgeon I wanted to trust to do the implant.


Why so long? Do you live in fairly area wirh good docs or hard to find around your area? Etc

I interviewed with two surgeons in Anchorage. I wanted more assurance of the highest skill level. I contacted Dr Kramer and Dr Eid (both were available through the Veteran's Administration, which provides most of my health care, as I am a disabled veteran). Dr Kramer at the time sometimes performed surgeries for the Maryland VA and Dr. Eid is is authorized as an outside provider. Neither my VA in Alaska nor Maryland would pay for travel, but I was able to enroll in the Maryland system, so would be able to get the surgery if I jumped through their bureaucratic hoops. Alaska VA did authorize travel to Washington State, so I interviewed a surgeon there.

Then, a nurse working in the travel office (who was not supportive at first) called me and told me that Dr Shaw had recently been assigned to the local Air Force Base Hospital and he was expert enough to have taught the procedure. I jumped at the chance to interview with him and was immediately impressed and scheduled my surgery right away.

All that did take a while. Maybe I was too picky. But I am protective of my penis.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Blah1109
Posts: 121
Joined: Tue Mar 09, 2021 8:23 pm

Re: Spinal cord injury incomplete 27m

Postby Blah1109 » Wed Mar 17, 2021 9:43 pm

Lost Sheep wrote:
Blah1109 wrote:
Lost Sheep wrote:I used oral medications for a long time. When they lost effectiveness, my primary care physician suggested that authorization for an implant might be possible.



Pretty much immediately.

Then it took 14 months for me to find a surgeon I wanted to trust to do the implant.


Why so long? Do you live in fairly area wirh good docs or hard to find around your area? Etc

I interviewed with two surgeons in Anchorage. I wanted more assurance of the highest skill level. I contacted Dr Kramer and Dr Eid (both were available through the Veteran's Administration, which provides most of my health care, as I am a disabled veteran). Dr Kramer at the time sometimes performed surgeries for the Maryland VA and Dr. Eid is is authorized as an outside provider. Neither my VA in Alaska nor Maryland would pay for travel, but I was able to enroll in the Maryland system, so would be able to get the surgery if I jumped through their bureaucratic hoops. Alaska VA did authorize travel to Washington State, so I interviewed a surgeon there.

Then, a nurse working in the travel office (who was not supportive at first) called me and told me that Dr Shaw had recently been assigned to the local Air Force Base Hospital and he was expert enough to have taught the procedure. I jumped at the chance to interview with him and was immediately impressed and scheduled my surgery right away.
All that did take a while. Maybe I was too picky. But I am protective of my penis.




I hear that name a lot I do have work insurance so I don't think I have a limit on who I can see or not I am ready for my penis to work

Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Re: Spinal cord injury incomplete 27m

Postby Lost Sheep » Thu Mar 18, 2021 1:32 am

Blah1109 wrote:I hear that name a lot I do have work insurance so I don't think I have a limit on who I can see or not I am ready for my penis to work

Being well-knows is good. But, as Dr Shaw told me "You will be overflying a lot of good surgeons if you go to the East Coast. Dr. Eid told me simply "Find a surgeon in love with his craft" He went on to explain, such a sureon will put his patient's welfare above all other considerations.

There are plenty of excellent surgeons mentione on FrankTalk

Kramer,
Eid
Ostrowski Washington State
Karpman California
Perito Florida
Walsh, WSashington State (he may be retired)
and I know the Dr Garber (USA Midwest) is highly regarded and is published.
Then there is Chris Love in Australia
and a surgeon in England whos name escapes me at the moment.
and no shortage of other fine and assiduous surgeons.

Just find a surgeon you trust and who trusts you. Local is better for ease of followup.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter


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