Loss of Sensitivity

The final frontier. Deciding when, if and how.
barrylandon
Posts: 267
Joined: Sun Nov 03, 2019 1:09 am
Location: Los Angeles, CA

Loss of Sensitivity

Postby barrylandon » Mon Nov 02, 2020 6:17 pm

At 6 months post-op, I still have not regained sufficient sensitivity for orgasm or ejaculation. My surgeon's PA has suggested inserting a Bi-Mix gel into my urethra or using an Oxytocin nasal spray. I would appreciate feedback from any of you who have tried and/or use either one of these. I would also love to know about any other successful options to increase sensitivity. Thanks!
Implanted 5/6/20 by Dr. Jesse Mills at UCLA; AMS 700 LGX 18 cm w/2 cm RTEs. I'm 76 & fit but had ED for 20 years. Pills/injections ultimately failed, including 3 ER trips for Priapism; Shockwave & embryonic stem cell therapies didn't help either.

hope794
Posts: 278
Joined: Wed May 30, 2018 7:59 am

Re: Loss of Sensitivity

Postby hope794 » Mon Nov 02, 2020 7:35 pm

Was your sensitivity totally fine before the surgery? Do you undergo RP?

Furthermore, i would like to know if your glans still engorges, and which approach your surgeon did choose. Infrapubic or penoscrotal? Lastly, can you please share if he had to put some graft?
26 yo from Italy.Peyronie's disease probably since 2015.Since then,penis bends of about 20-25°. PD keeps progressing. Moderate ED since 4 years and things getting worse.From pornstar-like to depressed, but still fighting for a solution.

Waynetho
Posts: 1768
Joined: Wed Nov 27, 2019 11:22 pm
Location: Dallas, TX

Re: Loss of Sensitivity

Postby Waynetho » Mon Nov 02, 2020 7:56 pm

barrylandon wrote:At 6 months post-op, I still have not regained sufficient sensitivity for orgasm or ejaculation. My surgeon's PA has suggested inserting a Bi-Mix gel into my urethra or using an Oxytocin nasal spray. I would appreciate feedback from any of you who have tried and/or use either one of these. I would also love to know about any other successful options to increase sensitivity. Thanks!

I'm at just over 1 year and have only had one penetrative orgasm since surgery. I think the trauma from the surgery and PD modeling and probably the dilation for the implant causes the nerves to lose sensitivity.

I'm looking into purchasing the Viberect x3 (ejaculatory version) which is used for men with spinal injuries and is recommended for nerve retraining in men with DE (delayed ejaculation). It's a vibratory medical device that uses a high amplitude (3mm) vibration and specific frequency (can't recall). It's not cheap but I'm willing to pay the $330 for it if there's a chance it will help me.

They say for spinal patients, 2 minutes on top and bottom if the glans will induce erection. Wait a minute then apply for 2 minutes again and it will trigger ejaculation.
62yo, married 41 yrs. Urolift (x4) 8/12/19. AMS 700CX 15cm (no RTE) penoscrotal 10/28/19, Frisco, TX. PD 1995/ED 2011. Cialis helped but hinged. (1995)L:6/G:5.5+, (2019)Pre-op L:5/G:4.5, (2/2020)L:6.0/G:5.0

barrylandon
Posts: 267
Joined: Sun Nov 03, 2019 1:09 am
Location: Los Angeles, CA

Re: Loss of Sensitivity

Postby barrylandon » Tue Nov 03, 2020 1:33 am

hope794:
To answer your questions...
1) Immediately prior to implantation surgery, I was able to achieve orgasm/ejaculation about 75% of the time during sexual interactions with my wife and 100% of the time within 5 minutes through masturbation with pornographic videos. Since returning to sexual activity post-op, I'm unable to orgasm/ejaculate at all with my wife and even sometimes through masturbation
2) I have not had RP surgery
3) I get some engorgement of the glans but not firm
4) Peno-scrotal
5) No graft

waynetho...buddy:
Please check with your surgeon before using a Viberect x3 (ejaculatory version) to be sure it won't damage your IPP. I believe this is a home version (lower frequency) of the unsuccessful Shockwave therapy from my Urologist that I had prior to my own surgery.
Implanted 5/6/20 by Dr. Jesse Mills at UCLA; AMS 700 LGX 18 cm w/2 cm RTEs. I'm 76 & fit but had ED for 20 years. Pills/injections ultimately failed, including 3 ER trips for Priapism; Shockwave & embryonic stem cell therapies didn't help either.

oldbeek
Posts: 2468
Joined: Sun Sep 10, 2017 1:46 pm
Location: Los Angeles area

Re: Loss of Sensitivity

Postby oldbeek » Tue Nov 03, 2020 1:55 am

All nerves removed during RP. Occasionally glans will fill. Orgasim from masterbation is just a quick passing. not much feeling. Orgasim in vagina is more powerful but takes a long time to get there. I was much worse at 6 months after implant. Wish I could get gland to fill.
82, good health, RP 7-2017, all nerves taken , PSA 0.05, 4-18,, .07 1/19,.05 4/19, .03 11-21, .04 11-23, implanted 4-1-18, Infra-pubic, AMS lgx 15 cm with 5cm rte. Implant at USC Keck. Dr Boyd and Dr Loh Doyle 6.5 x 5, 800 AUS 7-21-20

frwmw1
Posts: 422
Joined: Thu Oct 01, 2020 7:38 am

Re: Loss of Sensitivity

Postby frwmw1 » Tue Nov 03, 2020 2:56 am

barrylandon wrote:At 6 months post-op, I still have not regained sufficient sensitivity for orgasm or ejaculation. My surgeon's PA has suggested inserting a Bi-Mix gel into my urethra or using an Oxytocin nasal spray. I would appreciate feedback from any of you who have tried and/or use either one of these. I would also love to know about any other successful options to increase sensitivity. Thanks!


I would try Nicotinamide Riboside, it's could be snake oil, but it could help healing.
45yo, venous leak. Pills increased tinnitus (very rare). Using bimix+atropine, 0.2 of:
Atropine Sulfate: 52MCG/ML, Phentolamine MES: 0.9MG/ML, Papaverine HCL: 26MG/ML

ED2013
Posts: 1233
Joined: Tue Mar 05, 2013 8:15 pm

Re: Loss of Sensitivity

Postby ED2013 » Tue Nov 03, 2020 6:19 am

Your sensitivity should get better in time. In the meantime, try pills. The extra blood flow can help. It helped me.

hope794
Posts: 278
Joined: Wed May 30, 2018 7:59 am

Re: Loss of Sensitivity

Postby hope794 » Tue Nov 03, 2020 6:26 am

barrylandon wrote:hope794:
To answer your questions...
1) Immediately prior to implantation surgery, I was able to achieve orgasm/ejaculation about 75% of the time during sexual interactions with my wife and 100% of the time within 5 minutes through masturbation with pornographic videos. Since returning to sexual activity post-op, I'm unable to orgasm/ejaculate at all with my wife and even sometimes through masturbation
2) I have not had RP surgery
3) I get some engorgement of the glans but not firm
4) Peno-scrotal
5) No graft

waynetho...buddy:
Please check with your surgeon before using a Viberect x3 (ejaculatory version) to be sure it won't damage your IPP. I believe this is a home version (lower frequency) of the unsuccessful Shockwave therapy from my Urologist that I had prior to my own surgery.


Thanks barry!! sorry for your experience :((
26 yo from Italy.Peyronie's disease probably since 2015.Since then,penis bends of about 20-25°. PD keeps progressing. Moderate ED since 4 years and things getting worse.From pornstar-like to depressed, but still fighting for a solution.

Waynetho
Posts: 1768
Joined: Wed Nov 27, 2019 11:22 pm
Location: Dallas, TX

Re: Loss of Sensitivity

Postby Waynetho » Tue Nov 03, 2020 8:03 am

barrylandon wrote:waynetho...buddy:
Please check with your surgeon before using a Viberect x3 (ejaculatory version) to be sure it won't damage your IPP. I believe this is a home version (lower frequency) of the unsuccessful Shockwave therapy from my Urologist that I had prior to my own surgery.

No, it's s medical grade vibrator, not shockwave. It uses a 3mm amplitude and a 70-110 Hz frequency. It's also most often used on the glans, top and bottom to stimulate the pudendal nerves in both sides of the penis.

[EDIT: Spelling correction - "pudendal"]
62yo, married 41 yrs. Urolift (x4) 8/12/19. AMS 700CX 15cm (no RTE) penoscrotal 10/28/19, Frisco, TX. PD 1995/ED 2011. Cialis helped but hinged. (1995)L:6/G:5.5+, (2019)Pre-op L:5/G:4.5, (2/2020)L:6.0/G:5.0

barrylandon
Posts: 267
Joined: Sun Nov 03, 2019 1:09 am
Location: Los Angeles, CA

Re: Loss of Sensitivity

Postby barrylandon » Tue Nov 03, 2020 2:19 pm

Just concerned that you might possibly damage your IPP using a Viberect x3 (ejaculatory version) waynetho! If you decide to try it, please share your experience.
Implanted 5/6/20 by Dr. Jesse Mills at UCLA; AMS 700 LGX 18 cm w/2 cm RTEs. I'm 76 & fit but had ED for 20 years. Pills/injections ultimately failed, including 3 ER trips for Priapism; Shockwave & embryonic stem cell therapies didn't help either.


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