my story of ED post priapism. Please young guys share your experiences

The final frontier. Deciding when, if and how.
Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Re: my story of ED post priapism. Please young guys comments only.

Postby Lost Sheep » Thu Aug 27, 2020 2:28 pm

Welcome to the forum, 23yopriapism. I sympathize with your painful breakup and hope for a cure less invasive than an implant.

Please do not discount the knowledge that older men might be able to contribute. All elders were young once.

Some additional facts might help with a diagnosis. After your breakup, did your erections (morning and during your waking hours) change?

You described your erections before the troubled relationship very well.
Please describe your erections after the breakup but before taking the Donaren?
Please describe your erections after the Donaren? (I note that Donaran is related to Trazodone, which is better-known in the U.S.A. where most of the members of FrankTalk reside.)
Obviously your erections have changed. Did your libido also change?

The urologists' opinions that your E.D. is psychological is understandable and they might actualy be right given the timing of the breakup and the onset of your E.D. But knowing the exact timing of your E.D. symptoms would be revealing.

As I read your post, it appears that you had priapism one time immediately after taking Donaren. Is that right? Trazodone has that listed as a side effect. Priapism of more than 4 hours can cause permanent damage and the usual advice is to go to an emergency room to relieve the erection after 4-6 hours. Did you make it clear to those urologists that you had 10 hours of priapism?

I do not know what sort of damage can be caused by extended painful priapism or if an ultrasound of a flaccid penis would discover it. More research is needed.

At your age, I truly hope that an implant is not needed. A less invasive way to restore your prior potency would be FAR superior.

By the way, your English is very good. And your logical flow of thinking is excellent and grammar is clear.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

ViaSwiss
Posts: 602
Joined: Fri May 24, 2019 9:09 am

Re: my story of ED post priapism. Please young guys comments only.

Postby ViaSwiss » Thu Aug 27, 2020 2:53 pm

Have you tried viagra?
Age 35. Venous Leakage & Post Finasteride Syndrome (PFS) since age 18.
Original Implant | June 25, 2021 | 20cm Titan w 1.5cm & 1cm RTEs
Revision | November 16, 2021 | 26cm | Dr. Hakky

Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Re: my story of ED post priapism. Please young guys comments only.

Postby Lost Sheep » Thu Aug 27, 2020 3:20 pm

23yopriapism wrote:As I read your post, it appears that you had priapism one time immediately after taking Donaren. Is that right?
i have had 2 times. I always forget that i had one day, for like 4 hours. And then the other day for like 10 hours i guess. Both of them were in the morning, after waking up.

Are you still taking Donaren/Trazodone?

People develop a tolerance to this (and other related drugs) and it can be very difficult to discontinue taking it. (It can be dangerous to stop without supervision by the prescribing doctor.) It appears you have one side effect (priapism) of this drug. Your dislike of this type of drug is, in my opinion, a good thing.

I would DEFINITELY not take any erectile function drugs while taking Donaren. Because you had bouts of priapsm, I think it could be dangerous. (I am not a medical professional of any kind, just a layman, so take may advice for just that and do your own research and seek advice from your own medical care team.) I do know that taking antihistamines for priapism is recommended (sudafed and such). If you do, and then still need to go to an emergency room, TELL THE DOCTORS how much you took and when.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Re: my story of ED post priapism. Please young guys comments only.

Postby Lost Sheep » Thu Aug 27, 2020 3:51 pm

23yopriapism wrote:im not on donaren anymore. priapism happened a year ago now. im waiting for the results of the mri. I think im gonna suicide

Suicide: A permanent solution to a temporary problem.

Bad idea. Not really a solution.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

WhiteCane
Posts: 350
Joined: Wed Sep 11, 2019 8:10 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby WhiteCane » Thu Aug 27, 2020 5:28 pm

Don’t commit suicide! i’m 33 years old… my erectile dysfunction began in my mid-20s… within three weeks, I lost my vision, my job, my girlfriend, and went into congestive heart failure/kidney failure… for the following 3 1/2 years or so, I had absolutely no sex drive, no morning erections, and I was dealing with dialysis and loneliness… at my sisters wedding, I met a young, beautiful Vietnamese woman… she loved that I made her laugh and we danced that night… Things got serious between us very quickly… we began dating shortly after… I had to explain to her that because of my dialysis treatments and congestive heart failure, I was unable to have erections… We made it work for years! in October 2019, I got my implant… Until that point, she and I were only having oral sex and using sex toys to keep that part of our relationship strong… What I’m saying is that I went through an awful lot and Still managed to find love and get out of all of the bad situations. It seems really dark now but, let’s work through this! Let them do the psychological examinations and the physical ones so you can prove that this is not psychological… it may take a little bit of time but, trust me, this is so worth it… you do not need a penis for good sex… In fact, not being able to use my penis taught me so much about her body “more than anyone else has ever known“ and my own… we are in our early 30s now and have unimaginable sex… if you don’t feel like you are able to be in a relationship right now, focus on yourself for a while… find out some hobbies, stuff like that… all of us have had these challenges… You are going to make it through this! Please, be good to yourself, my friend… Love is alive… oh, fala Portuguese?
Implanted October 2019 Dr. Kramer lgx 18 cm +2 rear tips. Preop at 6.75 post op 5.25... awaiting revision… Implanted for possibility of having our first child.

Membrillo
Posts: 138
Joined: Sat Dec 20, 2014 6:40 am

Re: my story of ED post priapism. Please young guys share your experiences

Postby Membrillo » Thu Aug 27, 2020 8:06 pm

The priaprism probably damaged your penis due to lack of oxigen into the blood. try to use cialis / viagra and if finally you have to use a prosthesis that's not the end of the world.

Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby Lost Sheep » Fri Aug 28, 2020 3:45 pm

23yopriapism wrote:i have a question for you guys... things seem to be getting worst... my ability to maintain an erection is worsening.
Im very sad with this whole thing and really anxious to see the results from the MRI.
I can get an erection but it doesnt last too much. My glans fill up and i have a good size on the erection. but i lose it very quickly.
My question is: If i get a prosthesis will i have a similar size? please dudes show me some photos in PM. im desperate

I believe you can expect to be the same size after implant as before.

Please investigate less radical ways to treat your E.D. The results of your MRI should help clarify your choices.

I suggest using a vacuum device to keep flushing blood through your penile tissues (pump up gently to an erection inside the vacuum tube for 30 seconds, release the vacuum, lose the erection, repeat and repeat for 30 minutes, twice a day. That seems to be an effective protocol.) This also maintains tissue elasticity and size.

I did this for 14 months after my last real erection while awaiting approval for surgery and finding a surgeon to trust. I lost NO SIZE at all. My prosthetic-provided erection is fully the same length as my pre-E.D. erections.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby Lost Sheep » Fri Aug 28, 2020 4:20 pm

23yopriapism wrote:if i can pass through this situation my friends, i will be eternally grateful.

23yopriapism wrote:this vaccum device has very controversial cientific results i guess. I dont know, its logical seems reasonable but i have seen many urologists saying it has no effects at all.


This is the first article I found on VED use as a preventative for penile size loss

http://file.scirp.org/pdf/ASM_2013012514045982.pdf

Then there was one found by another FrankTalk member recommending the protocol I mentioned to you earlier. Vacuum, release, repeat for 30 minutes twice per day.

VED use for therapy (not for coitus) was not thought of as effective by many top surgeons only a couple of years ago. Now, it is widely recognized as beneficial before implant and is even being considered useful after implant. But some medical doctors are slow to update their opinions.

If I find a link to the other article I will post it and PM you.

I searched and found a chain of references leading to this protocol used to straighten Peyronie's disease sufferers' curvature. It recommends 10 minutes twice a day with maintaining erection for 3 minutes, release and repeat.
https://bjui-journals.onlinelibrary.wil ... 10.09365.x
Last edited by Lost Sheep on Fri Aug 28, 2020 4:32 pm, edited 1 time in total.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby Lost Sheep » Fri Aug 28, 2020 4:54 pm

23yopriapism wrote:well i guess i would not die if i do it. haha

This article has one telling paragraph
https://menmd.com/vacuum-erectile-dysfunction-ed/
VED therapy can be used to maintain penile length for men with erectile dysfunction, and is often recommended for patients who have had prostate surgery or other radical pelvic surgery. Any patient with erectile dysfunction in which the loss of nocturnal erections occurs is a candidate for VED therapy. Nocturnal erections work to flood the penis with oxygen rich blood to engorge, stretch, and revitalize the penile tissue. As men age it is common for the frequency of nocturnal erections to diminish. In this case, the VED is used 3-5 times per week for approximately 20-30 minutes each time without use of the constrictive ring. VED therapy will cause engorgement in, and stretching of, the penis, that may prevent penile shortening that would have otherwise occurred from decreased blood flow and lack of stretching.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

wolfpacker
Posts: 941
Joined: Thu Dec 12, 2013 10:16 pm

Re: my story of ED post priapism. Please young guys share your experiences

Postby wolfpacker » Tue Sep 01, 2020 2:36 pm

You don't need a gun but maybe an implant
Early 30s with ED for years from penis enlargement stretching and jelqing. Implant by Dr Eid on 24 June 2021 with a Titan 24cm with +1cm RTE on one side and -1cm cut off on the other side

My journal: viewtopic.php?t=17202


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