Intro and a question

The final frontier. Deciding when, if and how.
exr001
Posts: 18
Joined: Tue Jan 14, 2020 12:17 pm

Intro and a question

Postby exr001 » Wed Feb 05, 2020 11:43 am

Hi guys, new member here been lurking for some time but finally decided to register. Been suffering with ED since shortly after my diagnosis of diabetes back in 2005. Have done the pills with very little effect, working with Tri-Mix which is losing effect. My urologist mentioned switching to Quad-Mix to see how that goes. So I guess I'm getting to the point that many of you have were I'm starting to consider the ultimate option.

I'm married to a beautiful wife who is very supportive, but I can tell is frustrated at times. We've both started doing research and I've even shown her this board and had her read some of your reports on what to expect. She's apprehensive and would never ask me to do this, but as I told her, it's about me not about her asking.

I have a couple questions:

    I live in the Philly region, but don't want to travel to either NY or Baltimore to see one of the two giants in the field. Who have others in the area seen?

    My current Uro has performed the surgery before and says she averages a couple a month. She did a Fellowship under Morey in Texas so she's had experience. Would you consider someone like this?

    Trying to figure out how much time I would need to take off from work for this. I'm guessing about a month, but would welcome hearing what others did.

I'm sure I'll have more questions as I continue reading and getting past that last hurdle of fear with this. Thanks for letting me into this brotherhood, I hope I can contribute something.

BTW, I know I've got a weird username. You can just refer to me as E.
52 y.o., Type 2 diabetic
Tried Viagara, Cialis, and high dosage of Tri-Mix and Quad-Mix
Pumps and bands help but not as much as before.
Considering options

Lost Sheep
Posts: 6147
Joined: Mon Jul 04, 2016 11:16 pm

Re: Intro and a question

Postby Lost Sheep » Wed Feb 05, 2020 12:05 pm

Welcome to FrankTalk, E.

I emailed back and forth with both Dr. Eid and Dr. Kramer. They were both very generous, kind and helpful. Dr. Eid wrote this piece of advice, "Find a surgeon in love with his craft." He went on to explain that such a surgeon will put his patients' outcome above all else.

Having said that, the surgeon I chose also told me, if you go to the East Coast, "you will be overflying a lot of good surgeons". I interviewed a couple good local surgeons and found Dr. Shaw (figuratively and almost, literally, "fell into my lap", but how that happened is another story). I liked him immediately and trusted him as he trusted me. He acknowledged the fact that I had researched extensively and treated me as a member of my medical care team, answered questions and shared his decision-making process.

When I first joined FrankTalk, I took a couple weekends to read through two and a half years of posts/threads with titles that interested me and appeared informative. I recommend this to you. It will give you a better basis for forming questions and understanding the answers. This will also help get your medical team to accept you as a contributing partner in the decision-making.

I also recommend doing extensive research on your chosen urologist/sexual health physician and interview him (or her) pointedly and make yourself an integral part of the medical team. (Of course, many men choose not to do that and I cannot fault them - just do what is comfortable for your personality and approach to your medical care.)

I recommend documenting your size (length and girth) by careful measurement and photographs. Make sure your measurement protocol is repeatable (you will want to measure after surgery also). The most widely used measurement is to press a measuring tool against your pubic bone just above your penis, compressing the pubic fat pad as much as possible and measuring (straight) to the tip of your penis (not following the curve around to the tip, but just straight out like a shoe store measures your foot to the tip of your toe - but you can follow the curve of your penis' shaft.) Girth is measurement of circumference at the midpoint of your penis. Some choose to find the girthiest part, instead. Usually the two points are the same or very close.

Size loss is not particularly common. But V.E.D. Therapy is helpful in maintaining size.

As far as measurements of length for the implant size are concerned, all the pre-op measurements are nonsense at worst and a fair estimate at best. The ONLY measurement that counts is the measurement INSIDE the tunica inside your penis. (My advice about research includes viewing youtube videos of the operations. There are plenty. The measurement of the penis is done with a tool stuck up inside the penis and pushed (rammed, it seems) quite energetically up, stretching the penis, and then turned around and inserted firmly into the pelvic crus. The two measurements are added together and that is the size of the implant.) Every man's depth of crus is unique to that man. Depends on the shape of your pelvic girdle mostly. A good surgeon with an experienced eye can tell pretty closely, but if a surgeon tells you he will use a certain size implant, beware. However, if a surgeon tells you he will keep your current size (and how he/she will do that) be good with that.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Cajun Jeff
Posts: 1205
Joined: Sat Aug 01, 2009 11:44 pm
Contact:

Re: Intro and a question

Postby Cajun Jeff » Wed Feb 05, 2020 12:18 pm

Welcome to FT. I have been on here for a long time. I had Pca and had surgery 11 years back. Instant ED! I tried the pills, injections (they worked for a long time) Implanted 3 weeks ago.

With that in mind I also did not want to travel from Louisiana to New York for surgery. I did lots of research and found a Dr in New Orleans. Went to see him and make the appointment for surgery that day.

I can tell you it was the easiest thing I have ever done. Not one day of pain. I did stay over night in the hospital and they released me that next morning. They give me a pain pill for the ride home. 1.5 hr ride in the car. Really did not need it.

Only thing I have taken is IB Profim for the inflammation.

If you have specific question PM me.
68 years old, Married 48 years. Prostate Cancer surgery 11 years ago. Tried Pills, VED, moved to injections (EdEx) for past 6 years. Implanted with AMS 700 LGX by Dr Hellstrom in New Orleans at Tulane Medical. 1/13/20

WhiteCane
Posts: 350
Joined: Wed Sep 11, 2019 8:10 pm

Re: Intro and a question

Postby WhiteCane » Wed Feb 05, 2020 12:51 pm

Hey, Manayunk here… Penn was choice three if I wasn’t able to go to Brooklyn or Baltimore… i’ve also heard really good things about Einstein in East Norriton area? their urologist seems really confident in his work…
Implanted October 2019 Dr. Kramer lgx 18 cm +2 rear tips. Preop at 6.75 post op 5.25... awaiting revision… Implanted for possibility of having our first child.

exr001
Posts: 18
Joined: Tue Jan 14, 2020 12:17 pm

Re: Intro and a question

Postby exr001 » Wed Feb 05, 2020 12:57 pm

Guys thanks for the quick replies.

I love the suggestions keep them coming. I think my wife and I have watched a million (or so it seems) videos of the surgery. My wife seems to be enjoying looking at all these dicks way too much ;) , however I get the last laugh having a younger female urologist :D.

Lost Sheep, I'm going to start working on the measurements and documenting things now. I've also heard that I may want to start using a VED now as I've seen some videos today indicating it may be good for you pre-surgery also.

Cajun Jeff that point about passing many fine surgeons is why I'm looking local. I live in one of the largest metro areas in the nation and even with the recent retirement of our local high volume surgeon I'm sure there are many fine others here. As I said, my current Uro did a multi year fellowship with Dr. Morey in Texas so she has some experience with this. We are just starting our conversations so I'll develop a list of questions for her, but would be open if there are others in the region more experienced.
52 y.o., Type 2 diabetic
Tried Viagara, Cialis, and high dosage of Tri-Mix and Quad-Mix
Pumps and bands help but not as much as before.
Considering options

exr001
Posts: 18
Joined: Tue Jan 14, 2020 12:17 pm

Re: Intro and a question

Postby exr001 » Wed Feb 05, 2020 1:10 pm

WhiteCane wrote:Hey, Manayunk here… Penn was choice three if I wasn’t able to go to Brooklyn or Baltimore… i’ve also heard really good things about Einstein in East Norriton area? their urologist seems really confident in his work…


Thanks for the reply, I've heard about Einstein, but from what I've learned so far, they do about as many as my current Dr does. But it could be an option.
52 y.o., Type 2 diabetic
Tried Viagara, Cialis, and high dosage of Tri-Mix and Quad-Mix
Pumps and bands help but not as much as before.
Considering options

Lost Sheep
Posts: 6147
Joined: Mon Jul 04, 2016 11:16 pm

Re: Intro and a question

Postby Lost Sheep » Wed Feb 05, 2020 2:03 pm

exr001 wrote:Lost Sheep, I'm going to start working on the measurements and documenting things now. I've also heard that I may want to start using a VED now as I've seen some videos today indicating it may be good for you pre-surgery also.

I am a firm believer in pre-op VED therapy. Some of the benefits are: Retaining or regaining (recently lost) size. Retaining or regaining (recently lost) elasticity. Oxygenating penile tissues (the second protocol I describe is better for this) and (anecdotal) easier insertion of the implant (benefit to the surgeon during the operation and benefit to the patient for a more comfortable recovery). Another (undocumented) benefit is that it makes the patient feel more involved in penile rehabilitation and gets his mind off the pre-op jitters.

There are two protocols I know of. Both are recommended for at least 60 days before implant operation. I did 14 months while I searched for a surgeon.

One is to get erect (as much as possible with the cautions below) for about 30 minutes, staying erect for that time under vacuum (no constriction ring) as much as tolerable. Twice per day. Ease pressure up during the time if tolerable.

The other is to get fully erect (with the cautions as below) under vacuum for 30-60 seconds and release for the penis' erection to collapse and repeat for 30 minutes. Twice per day.

CAUTION ALERT: Be cautious about too high a vacuum, which can cause permanent damage - I used the onset of edema as the limit {which I discovered by accident} and since I did not have a vacuum gauge, used penis length and "feel" as a guide. I got edema when I got enthusiastic about my size inside the tube. Looked like a blister just behind my corona and I was alarmed until some members here told me what it was and I researched it. It resolved after a couple days suspension of the protocol. I was able to get my penis a full inch longer than a natural erection. Half an inch became my de-facto vacuum gauge after that.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Gt1956
Posts: 2891
Joined: Fri Apr 05, 2019 2:47 pm

Re: Intro and a question

Postby Gt1956 » Wed Feb 05, 2020 6:08 pm

May I suggest a key question to ask every surgeon that you interview. I would see if they would be willing to divulge who they studied under. If they don't have name recognition on the forum. Then that is about the only way that I can think of sorting them out.
There is a teaching medical center here in Utah. I've had difficult to treat sleep apnea. The pulmonologist in my town never struck me as very good. Even my primary care doctor wasn't fond of his skills. I was referred to the University clinic for more treatment. The head pulmonologist & his lead student were just as bad. Come to find out, most of the specialists in my area came out of the same program. I pestered my doctor for 7 years about any new talent in the area. Finally one showed up. I jumped at the chance to see a doctor that graduated from a different program. Sure enough. I was on the wrong kind of CPAP that wasn't very effective for me. Not all specialists are equal. Where they received their advanced training is important. Ask them.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

exr001
Posts: 18
Joined: Tue Jan 14, 2020 12:17 pm

Re: Intro and a question

Postby exr001 » Wed Feb 05, 2020 6:34 pm

Gt1956 wrote:May I suggest a key question to ask every surgeon that you interview. I would see if they would be willing to divulge who they studied under. If they don't have name recognition on the forum.


This is why I am able to consider my current DR who studied under Dr. Morey who seems to be very well respected on this forum.
52 y.o., Type 2 diabetic
Tried Viagara, Cialis, and high dosage of Tri-Mix and Quad-Mix
Pumps and bands help but not as much as before.
Considering options

Gt1956
Posts: 2891
Joined: Fri Apr 05, 2019 2:47 pm

Re: Intro and a question

Postby Gt1956 » Wed Feb 05, 2020 6:38 pm

exr001 wrote:
Gt1956 wrote:May I suggest a key question to ask every surgeon that you interview. I would see if they would be willing to divulge who they studied under. If they don't have name recognition on the forum.

This is why I am able to consider my current DR who studied under Dr. Morey who seems to be very well respected on this forum.

A good step in the right direction. I hope that others have as good of luck as you have had so far. i.e. a student of a well named surgeon in your city.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months


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