How did you get your pump to move so you can reach?

The final frontier. Deciding when, if and how.

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marlow13
Posts: 51
Joined: Sun May 20, 2018 8:34 pm

How did you get your pump to move so you can reach?

Postby marlow13 » Wed Oct 09, 2019 12:09 pm

I’m about 4 1/2 weeks post op and been cycling since I was activated 26 days post op by Surgeon. My MS pump sits behind my testicles and the only way I’ve been able to get a good grip on it is after I soak in the tub for about 10 minutes. I’ve tried to pump without the bath but it feels like it’s sitting behind a thick band of skin and afraid I’ll mess it up if I try to pull down on it to hard or attempt to reposition in my sac and I don’t have a big sac when it’s cold. Anyone have any advise?
53 y/o. PCA 18 on March 2017. Biopsy 8.6 Gleason. Diagnosed with Prostate Cancer June 2017. Robotic Prostectomy Aug 2017. .02 at Follow ups so far. Implanted on 9/6/19 with AMS 700 CX 21+2 RTE's by Dr.Dean Knoll Urology Associates Nashville, TN.

Bailey
Posts: 127
Joined: Mon Apr 08, 2019 1:45 pm

Re: How did you get your pump to move so you can reach?

Postby Bailey » Wed Oct 09, 2019 3:27 pm

I also have a small sac, & have encountered the same issues as you in inflation. I’ve found that pulling down on the pump isn’t a problem nor does it affect the pump. Each time I urinate I pull down on the pump so it doesn’t heal high in my sac.I use the left hand to hold the tubes to the pump to keep it my pump from moving. I then use my right thumb & fore finger to squeeze the pump. I was given this method by a guy that the AMS liaison Jamie told me to contact. It works well for me as I’ve tried every way possible. On the deflate I have to squeeze the deflate button pretty high in my sac. The sac is smaller and the skin thicker in the morning or when cold, but have still been able to do both. In the evening the sac seems more pliable and a lot easier to do. It takes practice & I was told to activate pump twice a day for 6 months leaving it inflated for at least 30 minutes at a time. Hope this information helps you. Implant done on 6/18/19 Good luck, Bailey
Last edited by Bailey on Fri Oct 11, 2019 1:13 pm, edited 1 time in total.
77 yo with ED for over 20 years.Tried everything, & found injections were the only thing that worked.I am so grateful for FT. Was implanted 6/18/19 with a 18cm AMS LGX w 3.0cm RTE,100ml reservoir, infrapubic procedure by Dr. Richard Roach, “Bailey”

merrix
Posts: 847
Joined: Tue Oct 27, 2015 1:08 am

Re: How did you get your pump to move so you can reach?

Postby merrix » Fri Oct 11, 2019 6:33 am

I seriously doubt we can influence pump position. Best way is to pick a doc skilled to put the pump perfectly from the beginning. That’s what I did. Mine was totally inaccessible early on, but later ended up perfectly positioned.
I think that people who think they improve the pump placement by pulling it actually don’t do shit themselves. It’s just the healing process progressing and when swelling disappears and all heals, pump moves down and becomes easier to access. It takes longer time to reach finished product than most think.
43 yo, ED forever from VL
Fit and active
Implanted 151215
Titan XL 24 cm, no RTEs
Dr. Eid
Activated day 13
Sex after 3 weeks
Gained length and girth
So far It works perfectly
Only one advice: Find a world class surgeon

Smetro
Posts: 1035
Joined: Mon Dec 26, 2016 8:05 pm
Location: Australia

Re: How did you get your pump to move so you can reach?

Postby Smetro » Fri Oct 11, 2019 6:37 pm

I agree.......I reckon I was still a ‘work in progress’ at 18 months post op.
Patience is the key for the recently implanted.
65, Titan Touch 22cm+1.5cm rte's op done in Melbourne, Australia Feb 2017 Venous leakage over a previous 2 year period, did pills and Caverject. Length 2 years+ post-op is 7.5” erect, 6.5” flaccid and almost 6” girth

Snoozdoc
Posts: 25
Joined: Thu Sep 12, 2019 8:14 pm

Re: How did you get your pump to move so you can reach?

Postby Snoozdoc » Sat Oct 12, 2019 4:30 am

Interesting topic and vital to us new guys.

From the moment I woke up, everyone kept saying “keep pulling that pump down”. “Umm, okay.”

Well, the first week I wasn’t pulling on nothing except tylenol bottle caps.

POD #7 I visited my local urologist who was taking over my follow-up and explained that the pump was horribly positioned in my perineal space and i could barely sit down. He tried to pull it down in his office, but, uh, NOOOOO!!! So I convinced him to have anesthesia administer a short acting anesthetic and he could be more aggressive. And that did indeed improve things.

Following that, I continued to tug on that POS block-n-tackle despite feeling like I was tugging on a ball and chain that had no more chain to give. However, I felt like it was important to ensure that pump didnt become adhered to inner surface of scrotum, which can happen quite quickly. So I was always sort of peeling it away from adhesions, despite that it still wouldn’t drop a bit more. So the block was kinda “stuck” slightly high and surrounded by rather unfriendly permanent residents. And I just dont think tubing is long enough to allow pump to descend. And “frankly”, Im tired of tugging on that bastard.

But my question is this:

Should I just let the pump get adhered and encapsulated at this point (1 month post-op) and let things be what they are, or do i keep that pump fairly mobile. When its mobile its easy to get to, but when I lie flat on my back it slips posteriorly back into a bit of the perineum which can be uncomfortable, at best.

Im just wondering how other peoples pumps ended up. Very mobile and all over the place, or adhered and encapsulated and not mobile.

Unlike a lot of folks, I havent had too many pain free days. Hurts to fully pump, points at me and laughs to say “im hard as a rock but dont u dare even think to bend me south or I will make u regret the day u had me installed”. Then after deflating, sore for next 12 hours. Just remember, it’s very hard for the newer guys to even slightly imagine that it isnt going to be annoying forever.

Thanks for all the great advice.
Developed Type 1 at age 43. ED started about 4 years later (~2013). Pills quit working. Peyronie’s joined the circus. Finally coloplast 18+0 9/12/2019.

Greg1956
Posts: 1411
Joined: Sun Aug 06, 2017 8:35 am
Location: Atlanta, GA USA

Re: How did you get your pump to move so you can reach?

Postby Greg1956 » Sat Oct 12, 2019 8:31 am

You said you don’t have a big sac. The tighter your sac is the less room there is for a pump to fit in with your balls. For guys with low hangers the surgeon has more flexibility. I can speak from personal experience in this topic. When I had my implant surgery my sac was average so my balls hung down a bit and there was plenty of excess space to conceal the pump.

Last year I had a reoccurrence of Prostate Cancer and as part of my treatment I was given Lupron injections to greatly reduce testosterone. One side effect was my testicles shrank down to almost nothing and my sac got very tight. During that time there was no way to move the pump at all and I was fully healed from implant surgery so there was no reason other than my tight sac for that to be the case.

Fortunately, my testicles have gotten somewhat larger and my sac is looser so now I can pull on the pump again. I just wanted to share my story because I am sure some guys can’t pull down on their pumps the way other guys can. There may be cases where the surgeon placed the pump in a less than ideal place but it may also be a man’s own anatomy that doesn’t offer space to place the pump farther from the balks and with enough tubing to be able to move it around.
I am 63 and had 30 years of ED. Implanted by Dr. Ronald Anglade in Atlanta on 9/18/17. I have an AMS LGX 18cm w/3cm RTE via a Penoscrotal incision. Currently 5 1/2”deflated and 6 1/2” inflated, with 5.5” girth.

FMLFML85
Posts: 183
Joined: Thu May 10, 2018 12:18 am

Re: How did you get your pump to move so you can reach?

Postby FMLFML85 » Sat Oct 12, 2019 6:06 pm

I have grip issues as well as strength issues pumping my implant. I always use two hands and taking a hot bath helps a lot. Personally I need to soak my nut sack for a good 10 minutes before even starting pumping. It can get hard to squeeze that 3rd ball after 10 pumps but the difference between ten pumps and 40+ pumps is almost 3/4 a inch girth and allot more reminiscent (sensation wise and look wise) of a erection before ED. So Ive been using a different grip recently and it is a lot easier to pump to max and I also never loose the 3rd nut pinching it and then stabbing my sharp fingers and clawing my nut sack. I take my left hand and make a pinching motion with my index and thumb and squeeze the pump. Then I clasp my pinching left hands fingers with my right hand with palm facing up. Then I squeeze my left fingers with my right clasping hand.
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autistic 34 yo. Implant 26cm titan no rte. Dr Eid 8/16/19. Suffered ED 2.5 years. Made decision when injections started to fail.


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