Things seem very wrong, I need a sanity check.

The final frontier. Deciding when, if and how.
JH2007
Posts: 119
Joined: Wed Jul 11, 2018 8:59 pm

Re: Things seem very wrong, I need a sanity check.

Postby JH2007 » Sat Sep 28, 2019 8:01 pm

random255 wrote:Well I went from moderately annoyed to reasonably terrified. I don't know what I can do on a Saturday, I'm leaving some appointment requests. I really don't know how to pick a good doctor, I thought I'd selected an implant expert for this whole thing and clearly something isn't right.

I would try Kramer or eid if you are on east coast that isn’t normal
Implanted titan 8/29/2018 hated it,
January 9th 2020 Kramer Tactra 26cm

David_R
Posts: 2145
Joined: Mon Nov 02, 2015 1:03 pm

Re: Things seem very wrong, I need a sanity check.

Postby David_R » Sat Sep 28, 2019 8:34 pm

Oh brother, your story brought tears to my eyes. I am so, so sorry that you had to go through all of this shit (which has not stopped yet). Please know that you are in our thoughts and prayers that things get (1) better soon and (2) easier and less painful. :( Please keep us updated.

Snoozdoc
Posts: 25
Joined: Thu Sep 12, 2019 8:14 pm

Re: Things seem very wrong, I need a sanity check.

Postby Snoozdoc » Mon Sep 30, 2019 9:25 pm

Hoping that you made it over to University Hospital today and are somehow on a better path.
Developed Type 1 at age 43. ED started about 4 years later (~2013). Pills quit working. Peyronie’s joined the circus. Finally coloplast 18+0 9/12/2019.

random255
Posts: 12
Joined: Fri Sep 27, 2019 11:59 pm

Re: Things seem very wrong, I need a sanity check.

Postby random255 » Thu Oct 10, 2019 3:25 pm

Tomorrow is a follow-up appointment with the Dr's office that been doing all of the work so far. Nothing surgical planned and it's scheduled at 3:45 PM, I believe their office closes at 4 PM so I don't know exactly what they want to do other than ask how it's going.

Speaking of how it's going, here's the latest update:

I've been in the OR one more time with the Dr, for the purpose of removing the Foley Catheter (the one that goes down your penis) and replacing it with a Superpubic Catheter. That part went well and has been a huge relief, as all four ER trips revolved around intense pain which I felt was something like pressure in the scrotum which I could not relieve with the catheter. New catheter is way better. Although, you know, I'm 38 and I'm currently in my office wearing baggy pants hoping no one notices the odd shape of a bag of urine attached to my leg.

The Dr was going to patch up my urethra while I was under, but that didn't happen. I'm unclear exactly why. Whatever the reason, somethings really bad.

The urine has been red from time to time as it's mixed with a bit of blood, I was told to expect that.

Here's the bad: My scrotum is in a constant state of leaking urine directly out of the stitches. The Dr specifically said he was going to reinforce the stitches because I had this problem when he did the first surgery. When I'm actively using the bathroom the urine comes out much faster.

I finally decided to gently masturbate last night. First time in a month or months, don't know how I made it that long. When I orgasmed, my cum came DIRECTLY out thru my balls. Like, a spoonfull or two. So, I have pee, blood, and urine, all going directly thru my stitches on my testicles. The stitches which he was supposed to have just gone back over. Which brings me to my next problem...

So, I mentioned that after the first surgery I the tubing for the devices came outside of my body, and then eventually I could see a little inside my testicles. Well, that is happening again. Only now it's more at the base of the penis, on the far side near my scrotum. It's a vertical split, and so it's like my penis is now detached from the base of my body. I'll upload a pic of it right after this post, it's easier if you just see it. I'm so sorry in advance to anyone who sees the pic unaware. Anyway, I can see inside my body, and again, I can see the tubes from the pump just like I could after the first surgery.

So, follow-up tomorrow so the Dr can learn everything new going on. But I'm also going to the followup to sign release forms for my medical records. I've got four different second opinions and/or replacement doctor meetings scheduled. I'm going to go to all of them, but the soonest one isn't until Oct 31st. The rest are Nov into December.

random255
Posts: 12
Joined: Fri Sep 27, 2019 11:59 pm

Re: Things seem very wrong, I need a sanity check.

Postby random255 » Thu Oct 10, 2019 3:32 pm

Image

Image

Image

regor1965
Posts: 34
Joined: Fri Aug 09, 2019 8:26 am
Location: Pensacola, FL

Re: Things seem very wrong, I need a sanity check.

Postby regor1965 » Thu Oct 10, 2019 4:03 pm

Yes this is very wrong. You are going to get an infection if you don't get this taken care of quickly. You got to get this closed up. When you masturbated it came through your urethra from your prostrate and went through the same cut into your scrotum.
Male, 54 years old, ED issues since early 30's pills helped for many years, now give me headaches or do not work. Implant surgery 10/4/2019 by Dr. Frank Greskovich Pensacola, Florida.

random255
Posts: 12
Joined: Fri Sep 27, 2019 11:59 pm

Re: Things seem very wrong, I need a sanity check.

Postby random255 » Thu Oct 10, 2019 4:23 pm

regor1965 wrote:You got to get this closed up.


Complete agree. The same problem with it opening up happened after the first surgery in May (although it took months before it opened, and it was nothing like this).

Then, the second surgery happened four weeks ago, and almost immediately it looked like this. Then last week I was in the OR to get this closed up. Literally, last week. But when I woke up from anesthesia, it wasn't "closed up" and I was leaking urine immediately.

What can cause this to be so hard to get closed and stay closed?

Lost Sheep
Posts: 6144
Joined: Mon Jul 04, 2016 11:16 pm

Three things

Postby Lost Sheep » Thu Oct 10, 2019 5:25 pm

DOCUMENT EVERYTHING! (You are doing a pretty good job already, but be extremely thorough and take names of everyone you talk to with time and date).

YOUR SURGEON NEEDS A SANITY CHECK (leaving a patient with an open wound, especially in such a delicate part of one's anatomy is unconscionable. Note, I am not a medical professional.)


IN ADDITION TO YOUR SECOND AND SUBSEQUENT MEDICAL OPINIONS you should get a legal opinion as well.

My prayers are with you.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

tomas1
Posts: 1953
Joined: Tue Jul 23, 2013 5:12 pm
Location: Tempe, AZ

Re: Things seem very wrong, I need a sanity check.

Postby tomas1 » Thu Oct 10, 2019 5:50 pm

Holy shit, it sounds like you're in Bangladesh.
None of this is normal and your doc should be fired or worse.

How the hell will closing the stitches help anything?
Won't that just mean everything will end up in your scrotum?

Somehow, you have to get to a real doctor asap.
I think I'm gonna be sick
85 years
Inject testosterone weekly.
Implant on 1/22/19 by Dr Avila.
Scrotal, hor. incision just over 1"
18cm AMS 700 CX, 3.5cm RTE 100cc res
Gleason 6 prostate cancer. Monitoring it for now.
Update: On my last biopsies the cancer wasn't found.

Snoozdoc
Posts: 25
Joined: Thu Sep 12, 2019 8:14 pm

Re: Things seem very wrong, I need a sanity check.

Postby Snoozdoc » Thu Oct 10, 2019 6:22 pm

I’m guessing that they were afraid to close this at the risk of trapping infection inside and causing a Fournier’s gangrene. What I simply cannot understand is how you arent in a hospital getting IV abxs round the clock, and taking out all foreign materials.
Developed Type 1 at age 43. ED started about 4 years later (~2013). Pills quit working. Peyronie’s joined the circus. Finally coloplast 18+0 9/12/2019.


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