Feel Ripped Off

The final frontier. Deciding when, if and how.

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Manonfire
Posts: 2
Joined: Fri Mar 29, 2019 9:49 am
Location: OH, TX

Feel Ripped Off

Postby Manonfire » Wed Aug 28, 2019 10:49 pm

I had prostate cancer in 2017 and surgery to remove it in 12/17. Before, I had a full 7" penis, which my wife (soon to be ex - different reasons) didn't care for as it would hammer her cervix. Prostate surgery injured the nerves so I was impotent afterwards and later opted for an implant. In March of this year, I was implanted with an AMS LGX, 15cm, 3cm RTEs, at the Cincinnati Veterans hospital.. I was told my doc that I wish he would have used the the 18cm with the 3cm RTEs instead as that would have put me at my old length. He said, "The goal is to gve you a functional penis for sexual penetration...not to make you larger."

I'm thankful I have what "little" I have but with the bit of pubic fat I look like I'm about 3-4in in length. Since I'll be back in the dating scene soon I'm a bit concerned with the shorter look. I've been pumping it daily to maximum size and it still looks smaller. Should I persist in complaining or just go with it?
Age 51, had prostate cancer. Surgery to remove prostate 12/17. Implanted 3/18, at VA Medical center in Cincinnati. AMS, LGX 15cm, 3cm RTEs.

Robert51
Posts: 378
Joined: Thu Dec 28, 2017 10:39 pm

Re: Feel Ripped Off

Postby Robert51 » Wed Aug 28, 2019 11:01 pm

Get lipo remove fat
66 years old married 14 years on my 3rd wife /////// had a major operation at 51 hernia below belly bottom ed got really bad after that .. Tried pills not much and side affects.. trying alprostadil without a lot of success but only 3rd time

marlow13
Posts: 51
Joined: Sun May 20, 2018 8:34 pm

Re: Feel Ripped Off

Postby marlow13 » Thu Aug 29, 2019 6:21 am

Manonfire wrote:I had prostate cancer in 2017 and surgery to remove it in 12/17. Before, I had a full 7" penis, which my wife (soon to be ex - different reasons) didn't care for as it would hammer her cervix. Prostate surgery injured the nerves so I was impotent afterwards and later opted for an implant. In March of this year, I was implanted with an AMS LGX, 15cm, 3cm RTEs, at the Cincinnati Veterans hospital.. I was told my doc that I wish he would have used the the 18cm with the 3cm RTEs instead as that would have put me at my old length. He said, "The goal is to gve you a functional penis for sexual penetration...not to make you larger."

I'm thankful I have what "little" I have but with the bit of pubic fat I look like I'm about 3-4in in length. Since I'll be back in the dating scene soon I'm a bit concerned with the shorter look. I've been pumping it daily to maximum size and it still looks smaller. Should I persist in complaining or just go with it?


This is my biggest fear.
53 y/o. PCA 18 on March 2017. Biopsy 8.6 Gleason. Diagnosed with Prostate Cancer June 2017. Robotic Prostectomy Aug 2017. .02 at Follow ups so far. Implanted on 9/6/19 with AMS 700 CX 21+2 RTE's by Dr.Dean Knoll Urology Associates Nashville, TN.

MK1965
Posts: 227
Joined: Thu May 24, 2018 5:32 pm

Re: Feel Ripped Off

Postby MK1965 » Thu Aug 29, 2019 9:02 am

Guys,
I would say, most of us who underwent radical prostatectomy for prostate Ca removal, suffered more or less loss of penile length during prostatectomy and in aftermath when we were not able to recover our erectile function. My loss of length was 2+ inches which I never recovered.
Before RP and most of my adult life, I was 6.5” and never had ED before RP and never tried Cialis or Viagra before surgery. I did not loose length thru gaining excess weight. My weight is very stable since year 2000 and is always in 210 to 215 range. I am 6’2” tall.
Just before implant, at consultation with implant surgeon, my flaccid stretched length was only 4.5”.
I was implanted with Titan 18+1RTE last September. When started cycling, I was only 3.75”. Now, almost year later, I am 5.5” fully pumped, sometimes a bit more depending on glans engorgement when I take 5 mg of Cialis.
I am still 1” shorter then before RP but my loss was not related to implant.
With implant I got 1 inch back.
MK
IPP 9/5/18; Coloplast TITAN OTR 18 cm 1cm RTE, Dr. Khera Baylor Houston,Prostate Ca at 51 y/o; RARP 11/2/16, ED Post RP, Cialis, Viagra, VED no usable erection, April 2017, TRIMIX painful, BIMIX tolerable but ineffective,lost 2+ inches of length after RP

Toronto67
Posts: 35
Joined: Sun Jul 21, 2019 11:20 am

Re: Feel Ripped Off

Postby Toronto67 » Thu Aug 29, 2019 11:27 am

Manonfire wrote:I had prostate cancer in 2017 and surgery to remove it in 12/17. Before, I had a full 7" penis, which my wife (soon to be ex - different reasons) didn't care for as it would hammer her cervix. Prostate surgery injured the nerves so I was impotent afterwards and later opted for an implant. In March of this year, I was implanted with an AMS LGX, 15cm, 3cm RTEs, at the Cincinnati Veterans hospital.. I was told my doc that I wish he would have used the the 18cm with the 3cm RTEs instead as that would have put me at my old length. He said, "The goal is to gve you a functional penis for sexual penetration...not to make you larger."

I'm thankful I have what "little" I have but with the bit of pubic fat I look like I'm about 3-4in in length. Since I'll be back in the dating scene soon I'm a bit concerned with the shorter look. I've been pumping it daily to maximum size and it still looks smaller. Should I persist in complaining or just go with it?


As I am not a fan of having more surgeries than the ones that are really needed, if I was in your shoes I would just sit and wait for at least one year (when I was implanted my Doctor told me the implant changes a lot during the first year), after that depending on how you are feeling I would explore the possibility of having a revision. Keep in mind that having another surgery could open the door for some undesired outcome like infections or losing more length.

On the other hand I have read on this forums that some guys had a revision after a while and their implants are replaced with a larger one.
Born 1967, diagnosed with prostate cancer in 2016, prostatectomy performed in 2018, current PSA 0.10, implanted with LGX 700 on Jul 2019.

ED2013
Posts: 1171
Joined: Tue Mar 05, 2013 8:15 pm

Re: Feel Ripped Off

Postby ED2013 » Thu Aug 29, 2019 7:33 pm

What was your size immediately before implant?
Ams 700 cx. Dr Karpman.

SW0110
Posts: 259
Joined: Sun Sep 02, 2018 6:15 pm
Location: Central Kentucky

Re: Feel Ripped Off

Postby SW0110 » Sun Sep 01, 2019 9:42 pm

Are you 15 cm total or 15 plus 3 cm for a total of 18.

I am 19 cm total. 18 plus 1 rte. After 6 months of cycling with the titan i am hitting 6.5 bone press.

Started out at about 5.75 and kept going up over time.
Central KY. Fell around 2.5 yrs ago on the boys. ED, venous leak, and Peyronies developed since. Implanted March 7, 2018, Dr. Kevin Campbell, Cincinnati, OH. Titan was used due to 30 to 35 degree curve. 18 plus 1. Excellent experience so far. Happy so far

oldbeek
Posts: 1030
Joined: Sun Sep 10, 2017 1:46 pm
Location: Los Angeles area

Re: Feel Ripped Off

Postby oldbeek » Mon Sep 02, 2019 12:28 pm

OP at 4 of 2018. Was 5 3/4 just after op. Noticed yesterday that I am 6 1/2 bone pressed and pumped hard. 15 + 5rte
77, good health, RP 7-2017, all nerves taken , PSA 0.05, 4-18,, .08 11/18,.07 1/19,.05 4/19, Pain with trimix, implant 4-18, Infra-pubic, AMS lgx 15 cm with 5cm rte. Implant at USC Keck. Dr Boyd

mkehayias
Posts: 8
Joined: Thu Feb 15, 2018 11:11 am
Location: Florida

Re: Feel Ripped Off

Postby mkehayias » Thu Sep 12, 2019 8:07 am

Manonfire wrote:I had prostate cancer in 2017 and surgery to remove it in 12/17. Before, I had a full 7" penis, which my wife (soon to be ex - different reasons) didn't care for as it would hammer her cervix. Prostate surgery injured the nerves so I was impotent afterwards and later opted for an implant. In March of this year, I was implanted with an AMS LGX, 15cm, 3cm RTEs, at the Cincinnati Veterans hospital.. I was told my doc that I wish he would have used the the 18cm with the 3cm RTEs instead as that would have put me at my old length. He said, "The goal is to gve you a functional penis for sexual penetration...not to make you larger."

I'm thankful I have what "little" I have but with the bit of pubic fat I look like I'm about 3-4in in length. Since I'll be back in the dating scene soon I'm a bit concerned with the shorter look. I've been pumping it daily to maximum size and it still looks smaller. Should I persist in complaining or just go with it?


I am with Manonfire. I got my prostate cancer diagnosis in 2016, robotic assisted Radical Prostatectomy same year. 2017 had AMS700 placed, The result is functional but disappointing. Before prostatectomy lenght was 22.25cm, girth was 15.9cm. A year of cycling and forcing expansion I am now length 17.8cm girth 12.7cm.

Of course I lost length after the prostate was removed, but once I regained urinary continence I used a VED twice daily and got back up to 20.3cm length and 15.25cm girth. The surgeon who did the implant still "shorted" the implant, despite a one hour pre-surgery visit where I demonstrated size with the VED, measurements were taken, and the importance of being restored to something aligned with my pre-surgery size for me to be happy. Worse-the tube on the left was not properly placed, the tip was half way down the shaft. When I showed the doc before discharge he said I was imagining things. One day while I was cycling there was a pop and it extended fully (yes, that hurt like hell).

The end result is a deformed penis. It now curves sharply to the left, the tip tilts at nearly a 45 degree angle to the shaft, the tip is floppy and cold. Scars at the uretheral opening where anchoring sutures tore out. The right tip pokes up against the skin like a little spear head under the tip. The wife won't touch it, won't even look at it when it's inflated, and most elements of sex we enjoyed before the surgery are not going to happen again. Worse still: a lot of nerves were somehow impacted, I have very little sensation other than pain or discomfort. OH-the placement at the base somehow affected my ability to hold my water. In 2018 I had a urethral sling implanted so I don't have to wear diapers all the time.

Our (Manonfire and myself) common denominator is that I too had the implant performed by the VA, in Orlando. Post surgery issues were played off as "hey-you can get up and keep it up longer than ever" and ultimately "you have a functional penis for sex, the surgery was a success". After I unloaded on the surgeon (who was chief of Urology) I started exploring options to have corrections, the surgeon quit the VA. I was lied to about my cancer diagnosis (another story altogether) and about the surgeon's experience performing the implants.

So, Manonfire-compel the VA to do a revision, to pay for a civilian to do the revision, and if they don't agree hire a lawyer. I have been to see two surgeons outside the VA regarding a revision, both in the top ten in the field in Florida, both said there's not much they can do because of the left side being improperly placed and the length of time-it's all scarred up inside now. Three major surgeries in three years, I am not ready for a 4th that is not likely to have the desired result...

P.S.-This is what happens when the government manages healthcare. Success measured in numbers, not patient satisfaction.

tomas1
Posts: 1194
Joined: Tue Jul 23, 2013 5:12 pm
Location: Tempe, AZ

Re: Feel Ripped Off

Postby tomas1 » Thu Sep 12, 2019 12:31 pm

I don't know, Medicare seems to work.
81 years
Got implant on 1/22/19 by Dr Avila.
Scrotal, horizontal incision just over 1"
18cm AMS 700 CX, 3.5cm RTE 100cc reservoir
Diagnosed with Gleason 6 prostate cancer. Monitoring it for now.


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