Thanks Guys

The final frontier. Deciding when, if and how.
Quester
Posts: 283
Joined: Mon Nov 19, 2018 9:10 pm

Thanks Guys

Postby Quester » Mon Aug 26, 2019 7:21 pm

It’s now a week and a wake up before my implant surgery date.
I’m sure it’s normal, and all but I find that I’m am super nervous, with off and on anxiety attacks. They revolve around the idea of am I doing the right thing, or am I going to be basically a living dildo.
My wife is very supportive, and she has jokingly (or maybe not) that I’ll have to show her how to pump me up.
Over the few years we have been together (going on 8 years) we have been open and honest in our fears.
We survived her having breast cancer after only being married a short time. My increasing struggle with ED, and I believe low testosterone (in the low part of the normal range). She knew of my fears when I went to the doctor when the pills stopped or mostly stopped working. She knew I was afraid that our sex life was over.
She also wasn’t there when I went to the doctor and was told I had Peyronie’s Disease (PD). We both knew something was wrong, and I played off as maybe it was just me. Until one night she asked me if I was ok, I said sure then she asked me if I thought my cock was more curved. I told I think so sure it’s nothing to worry about then she asked if it was painful as she thought I acted like it was. She was the one who encouraged me to go. I wish she had been there that day when I got the diagnosis. I had to relate to her what the doctor had said and asked if I had considered an implant. I wonder what her thoughts would have been at the time at that comment. By the time she got home I had joined the Peyronies Forum, and another site Inspire that we could talk about the issues.
Over the past year from diagnosis to no she has been there learning about implants and such all along the line.
After a year on pentoxifylline, traction, and vacuum pumping, had learned a lot about the pluses and minus of an implant from you all here.
I told the doctor all my personal research into treatments for PD including Xiaflex injections and was pretty sure that at the most it was a band aid and would be back looking at implant. When he left the room to go talk to I assume the surgeon, when she came back she had a date for me.
When the wife got home I told her about the date, she asked me if I was just doing this just for her, to be honest I hadn’t thought about it in those terms and she seemed relieved when I said no it was for both of us but more for myself.
I suppose in this matter I wonder where I would have been if I had been less embarrassed about my ED and talked sooner to the doctor about it. I never thought about our partners suffering with ED as well.
Since I get my medical care at the VA and I also work there, so I have often suppressed or avoid treatments because I was always worried about what would my co-workers think if they knew about my PTSD, ED, and PD. I have learned on this forum that there are a lot of guys out there that can benefit from Peer to Peer support either in person or on line, and maybe even some we know at work.
So here is a big thank you to the guys here on FrankTalk being willing to help guys with their experiences, there journeys.
ED 20 years, Peyroine's Disease diagnosed in 2018, at 57 years I was implanted September 3rd 2019 at the Salt Lake City VA Medical Center, AMS700 CX 21cm + 2cm RTE

disapointed2
Posts: 106
Joined: Wed Aug 08, 2018 10:55 am

Re: Thanks Guys

Postby disapointed2 » Mon Aug 26, 2019 7:57 pm

I wish you the very best of luck. You know my story and I have just wanted to be my old self. Your wife sounds like a diamond to keep. Be proud of her she is joining you in your new journey. She is a keeper. Don,t worry. It will go well....
You have given me encouragement and so have a lot of people on this forum. For that I thank you and only hope I can return the same.
Mark
67yrs old. ed for 8yrs. Implanted 5-29-2019

peyroniesjr
Posts: 162
Joined: Thu Jul 18, 2019 8:30 am

Re: Thanks Guys

Postby peyroniesjr » Mon Aug 26, 2019 8:40 pm

Hi Quester,

I wish you well on your surgery!

This year hasn't been great, my wife is legally blind & was suppose to get stem cells, that fell through, her left eye worsen & doesn't meet the criteria.

The following month I found out that I had prostate cancer & decided to have RALP. No I have stress incontinence (not bad), but worsen ED (Viagra) doesn't work & the peyronies got worse do to RALP.

I'm now doing for Xiaflex to fix my curve & I'm in my 2nd cycle this week. The shot so far have been bearable.

My problem now, I would like to talk to Dr Eid or Dr Kramer, my wife feels I should wait & see if Xiaflex helps. I'm also taking testosterone weekly to help with PD & maybe ED.

I feel like I'm wasting time, I emailed Dr. Eid & he said the gold standard for ED & PD is an implant.

The PA that gave me my shot today, said it up to the patient & that Xiaflex is a 1st step before surgery. He also stated that the doctor does 2-3 implants a month & only does AMS Ambicor 2 piece implant. For sure I'm not having this doctor do an implant on me.

I want to go to a high volume doctor and if I run into any problems afterwards, hopefully I can see the local doctor.

Wish you the best, I'll be following You!

JR
Implant Titan 2/21/2020 / 67 yrs / Married 44 yrs /ED / Peyronies 70 degrees - Xiaflex/ Low T / & RALP 4/1/2019 (Nerve Sparing)

SW0110
Posts: 648
Joined: Sun Sep 02, 2018 6:15 pm
Location: Central Kentucky

Re: Thanks Guys

Postby SW0110 » Tue Aug 27, 2019 8:28 pm

This forum is very helpful with a lot of different journeys. I never tried xiaflex injections. Each of the 4 surgeons I saw gave me a brochure. Said the company providing the drug would love for me to get them. Then told me to get a titan.

Since I already had peyronies they actually were not real positive about me sticking needles into my dick either. Trauma is trauma. Some on here are positive both xiaflex and trimix injections caused additional plaque.

The only thing that helped me was traction and ved to help straighten and get some length back.

My story. Fell, ed started, doc said I was old, gave me viagra, sex with a semi erect dick, injured myself, peyronie's showed up. Found forum. My regular urologist never even mentioned an implant.

Read a lot of old posts for about a month. My wife started to get tired of me reading them all the time. I got some great info. Good info on docs. The started looking for surgeons. Contacted the top 2 but due to personal issues went with a local doc who does 1 to 2 a week.

I would have gotten an implant after I fell. No peyronies then. A good 7 inches. Down to 5.5 when peyronies did its thing to me. Traction and ved got me to 6.25 day before surgery. 5.5 months since implant and am almost at 6.5 bone pressed. Girth is back.

No down side to the implant for me except i should have gotten it 3 years ago. No wtf moment. No regrets. Nothing but happy. It is different but so what. My wife is happy. I am happy. Orgasms are great.

If it was not for this and the peyronies forum I might still be dealing with a semi when trying to have sex.
18 cm plus 1 rte titan installed March 2019. Revision March 2020 by Dr. Andrew Todd, Richmond KY. He replaced the titan with an AMS 700 LGX 18 cm cylinder plus 2 rte for 20 cm total length.

Lost Sheep
Posts: 6133
Joined: Mon Jul 04, 2016 11:16 pm

Re: Thanks Guys

Postby Lost Sheep » Tue Aug 27, 2019 8:33 pm

SW0110 wrote:No down side to the implant for me except i should have gotten it 3 years ago. No wtf moment. No regrets. Nothing but happy. It is different but so what. My wife is happy. I am happy. Orgasms are great. .

I, too, never had a moment of doubt after the surgery. Cleared all those up beforehand. Girlfriend is VERY happy, as am I. Not sorry I waited to do my research before the surgery but do think I would have been happier if I had made the decision to seek the implant 3 to 10 years before. Maybe 30 years. Viagra would have helped immensely then, but I was unaware of what was happening and too shy about bringing it up to my doctor (active duty US Military at the time).
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

ViaSwiss
Posts: 602
Joined: Fri May 24, 2019 9:09 am

Re: Thanks Guys

Postby ViaSwiss » Tue Aug 27, 2019 8:45 pm

I was excited for implant, then I scheduled it and became super nervous just like you.

Then, my insurance decided they weren't paying for it and I got sad, I realized my fears were just fears and I new what I wanted and needed. I am working to get the implant done still. But you should know its a common feeling. Good luck!
Age 35. Venous Leakage & Post Finasteride Syndrome (PFS) since age 18.
Original Implant | June 25, 2021 | 20cm Titan w 1.5cm & 1cm RTEs
Revision | November 16, 2021 | 26cm | Dr. Hakky

David_R
Posts: 2145
Joined: Mon Nov 02, 2015 1:03 pm

Re: Thanks Guys

Postby David_R » Tue Aug 27, 2019 9:09 pm

It was so great to read SW0110's and Lost Sheep's experiences! (I'm happy too, along with my wife.) :D

alibaba
Posts: 3027
Joined: Sun Oct 12, 2014 8:04 pm

Re: Thanks Guys

Postby alibaba » Wed Aug 28, 2019 12:19 am

He also stated that the doctor does 2-3 implants a month & only does AMS Ambicor 2 piece implant. For sure I'm not having this doctor do an implant on me.

Sounds like Bullock in St. Louis. He said that was the only type implant he will install. Medieval medicine.
LGX 21cm .Milam 01/13/16. Horror; both service and surgical outcome. hated infrapubic installation. Kramer revision 03/01/17. 22cm Titan +1.5cm extender. Those who think their opinion is the only one that matters are a danger to themselves and others.

Weazer
Posts: 57
Joined: Tue Jan 08, 2019 3:25 pm

Re: Thanks Guys

Postby Weazer » Wed Aug 28, 2019 7:02 pm

I found this forum in 2014 when I first developed Peyronie's. I didn't visit often as I spent most of my time on the Peyronie's forum. Over the next few years I tried it all, traction, VED and about anything else that would straighten my dick. Finally gave up and had plication surgery . Thank God that failed. Within a couple weeks my 90 degree bend was back. Then I found a doctor to do graft surgery. Much better outcome but over the next year pills became less and less effective. During that year I started spending more time on Franktalk researching injections and implants. Reading about other people's experiences here gave me the courage to get an implant. Right after Christmas last I gave myself the present of an Implant. I could not be happier. Before the implant I had started to develop a pretty bad case of PE. Now I can control my ejaculation much better. Because I know I'm going to stay hard no matter what I just go until I think she is done then let myself cum. Also, round two or three is never a problem even if I'm tired, I just say hop on that pony and ride for as long as you w as not to
:D
57, not married, Peyronies Disease in 2014, plication surgery 2016, failed, grafted in 2016, implant Dec. 27 2018. Titan 20cm +1RTE


Return to “Implants”

Who is online

Users browsing this forum: No registered users and 49 guests