My Journal Implant scheduled for Sept 3rd 2019

The final frontier. Deciding when, if and how.
Dave52
Posts: 206
Joined: Sat Oct 13, 2018 4:28 am

Re: My Story

Postby Dave52 » Wed Jul 24, 2019 10:05 am

Robert51 wrote:So take us thru steps using va. I have medicare also and va but dont have B coverage because its not useable oversees so hoping i can go straight va i have 70%iu and pt with a 0 rated for ed so in my case va or sign up for part b next year which will work

Sign up for Part B then you can go to the best Eid or Kramer. I used Eid very happy and the cost was "0"
Dave
Born 52
Prostatectomy 6/1/18
Viagra worked before RRP
Trimix painful Bimix both Ineffective
Titan 20CM 1CM RTE
10/26/18 Dr.Eid

Quester
Posts: 283
Joined: Mon Nov 19, 2018 9:10 pm

Re: My Story

Postby Quester » Wed Jul 24, 2019 11:31 am

Robert51 wrote:So take us thru steps using va. I have medicare also and va but dont have B coverage because its not useable oversees so hoping i can go straight va i have 70%iu and pt with a 0 rated for ed so in my case va or sign up for part b next year which will work


It is my understanding that once you cross the 50% Service connected disability rating you can get all your care at the VA no matter if it is service connected or not, with no co-pay the VA has gone to tiered system of copays for medications at least. After 50% it goes away, they do bill any private insurance you have and I think that includes Medicaid, odd that one government agency bills another, anyway you don't receive a bill of any kind from the VA if over the 50% rating.

But as mentioned you can call and talk to a service representative at either your local VA medical center or Regional Office.

I've got a 0% for ED as well but haven't paid a copay for treatments so far after my youngest turned 26 I actually dropped my employer provided insurance and now get all care at the VA
ED 20 years, Peyroine's Disease diagnosed in 2018, at 57 years I was implanted September 3rd 2019 at the Salt Lake City VA Medical Center, AMS700 CX 21cm + 2cm RTE

RandyPE
Posts: 11
Joined: Mon Jul 29, 2019 2:01 pm

Re: My Story

Postby RandyPE » Tue Jul 30, 2019 12:16 pm

Great post, Quester. Sounds like you've done your homework, and the rest of us will / are benefiting from what you've been through and are sharing.
Good luck, and keep us in the loop!

RandyPE

SW0110
Posts: 648
Joined: Sun Sep 02, 2018 6:15 pm
Location: Central Kentucky

Re: My Story

Postby SW0110 » Tue Jul 30, 2019 6:27 pm

Not to hijack your thread but to respond to Lewis news who posted about a study on xiaflex and traction devices. Not one urologist or surgeon I saw recommended it xiaflex at all for my peyronies issue. They did reccomend a traction device though.

I am sure someone on here was helped by those injections but figure the most benefit probably went to the drug company with the high cost of the injections. In fact some thought it aggravated their peyrones.the injections not the xiaflex specifically.
18 cm plus 1 rte titan installed March 2019. Revision March 2020 by Dr. Andrew Todd, Richmond KY. He replaced the titan with an AMS 700 LGX 18 cm cylinder plus 2 rte for 20 cm total length.

LewisNews
Posts: 8
Joined: Thu Oct 18, 2018 2:27 pm

In 2019, Can PRP and Penile Traction Device Replace Collagenase to Treat Peyronie's Disease?

Postby LewisNews » Thu Aug 01, 2019 5:54 am

Peyronie's disease (PD) is an accumulation of collagen in the penis that creates a scar, producing a deformity and pain in the erectile state, that affects between 1%-8% of men. Andromedical laboratory proposes a new strategy to treat PD based on combined therapy of platelet-rich fibrin matrix (PRFM or activated-PRP) with a penile traction device (PTD) designed to treat penile curvatures. Now urologists, their patients and health insurance companies may have a cost-effective alternative to collagenase and surgery for effectively treating Peyronie's disease, without side effects of other therapies.More information

In 2013 the US-FDA approved the use of collagenase (CCH) for its treatment. Collagenase is an enzyme that breaks the peptide bonds of collagen, but medical studies showed that effectiveness was limited to a 33% correction of penile curvature. In 2013, Dr. Martínez-Salamanca (Spain) carried out a hospital study with the penile traction device called Andropeyronie to treat Peyronie's disease in the acute phase, achieving a 60% correction of the curvature. In 2015 the American Urological Association recommends treating Peyronie's disease with combined collagenase therapy and Peyronie's plaque remodeling, done with manual exercises or with a soft progressive force for a few hours a day with a penile traction device (PTD).Medical protocol

In 2018 Dr. Terlecki (USA) published a clinical study on the use of autologous platelet-rich plasma (PRP) in Peyronie's disease whose conclusions were that the activated-PRP or PRFM appears to be a safe and feasible treatment, more than 80% of patients improved in their degree of curvature. Evidence suggests that platelets play an important role in tissue repair, vascular remodeling and inflammatory and immune responses through secretion of growth factors, cytokines and chemokines. Thus, injection of PRFM could combine mechanical disruption of the plaque, via needle fracture, while simultaneously neutralizing destructive inflammatory processes in an effort to promote a better wound-healing response and stabilize the disrupted plaque. It is important to note that collagenase injection does not address appropriate wound healing or regeneration of the damaged tissue. Clinical study

In 2013 Dr. Chung (Australia) demonstrated that penile traction translates mechanical stimuli into a chemical response leading to activation of cell proliferation. In 2019 Dr. Romero (Spain) published a clinical study demonstrating that the use of a penile traction device reduces the need of cycles of collagenase in patients with Peyronie's disease.Clinical studies

The world of urology is advancing rapidly and clinics are beginning to use this promising combined therapy of platelet rich plasma with penile traction therapy in hopes of wound healing and tissue regeneration. New treatment options for Peyronie's disease are opening up, with benefits for patients, urologists and health insurance companies. Therapy of PRP with PTD is an effective treatment without side effects, easily performed in the doctor's office and a cost-effective alternative to other therapies.

Quester
Posts: 283
Joined: Mon Nov 19, 2018 9:10 pm

Re: My Story

Postby Quester » Thu Aug 01, 2019 8:47 am

I don’t think it’s a high jackat all we are all on this site to support each other.

I read the study and my doctor and I decided together that given my ED along with the Peyronie’s I probably would be right back to where I am now after traction and the Xiaflex injections.

I couldn’t agree more that we are living in a day and age where medical knowledge sometimes makes great leaps. As a result in my opinion a person should exhaust all non surgical, non invasive treatments before going to a step as please bare with me as radical as an implant.

The advice I was given by a person on this site is an implant means no more natural erections or at least unlikely. I believe natural is better.
ED 20 years, Peyroine's Disease diagnosed in 2018, at 57 years I was implanted September 3rd 2019 at the Salt Lake City VA Medical Center, AMS700 CX 21cm + 2cm RTE

SW0110
Posts: 648
Joined: Sun Sep 02, 2018 6:15 pm
Location: Central Kentucky

Re: My Story

Postby SW0110 » Fri Aug 02, 2019 1:29 pm

Yep natural is better for sure. I would recommend you do whatever you need to in order to make yourself comfortable with any decision.

I also read the studies and looked into the plasma options as well, along with xiaflex injections after peyronies developed instead of just ed. Not one urologist I saw recommended either as a plan of action for my peyronies. I thought for sure xiaflex according to the studies and literature would be an option. Nope. Three just wanted to implant with no real tests.

At the time I wanted someone to give me other options. The last one did some tests and added venous leaks to the issue.

After that no real options. At least I knew why even with pills or trimix no real erection. I still believe trying to have sex with a semi soft erection caused my peyronies. If first doc had done any tests rather than just saying your getting old take this viagra, I would have gotten implant 3 years ago.

So, I did try to see about other options besides an implant. Plasma injections i only found were done at mens clinics. When i called they did not even staff a doctor. Just nurses. None of the urologists I saw did the procedure.

Good luck on your decision. I certainly wish you the best. Peyronies and ed is a tough go. Definitely not the worst thing that can happen to you but rough all the same.
18 cm plus 1 rte titan installed March 2019. Revision March 2020 by Dr. Andrew Todd, Richmond KY. He replaced the titan with an AMS 700 LGX 18 cm cylinder plus 2 rte for 20 cm total length.

Quester
Posts: 283
Joined: Mon Nov 19, 2018 9:10 pm

Re: My Story

Postby Quester » Fri Aug 02, 2019 11:14 pm

Just a couple of pictures show the slight curve due to peyronies and the slight "hour glassing"
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ED 20 years, Peyroine's Disease diagnosed in 2018, at 57 years I was implanted September 3rd 2019 at the Salt Lake City VA Medical Center, AMS700 CX 21cm + 2cm RTE

Quester
Posts: 283
Joined: Mon Nov 19, 2018 9:10 pm

Re: My Journal Implant scheduled for Sept 3rd 2019

Postby Quester » Fri Aug 09, 2019 4:46 pm

So today (Aug 9th 2019) I received a phone call from the Urology Clinic at the VA asking if I could move up my surgery to August 20th. I would have said yes but my wife is having some foot surgery the Friday before. Not that I would mind being laid up at the same time she is I just know us either she or I would over do it and end up cause us problems. Even though it is only 2weeks later that gives her enough time to get from bed rest and scooter to walking boot.
The other issue although this one was more of additional one, we are short staffed at work, and I've always worried about what my co-workers would think since I work at the same VA Medical Center that I get my care at. I had to think of them as well.

I was able to find out which brand or manufacture the doctor is planning on using as I wasn't on the top of my list to ask when I got the date. It is Boston Scientific most likely the AMS 700.

Even though I've seen him use the Coloplast he does seem to favor the AMS line

Getting closer and now I seem to be think of things like what to take to the hospital, since it's early September and the weather is warm I'm think just wearing gym shorts and tank top and going commando something I rarely do and taking my iPad and phone.

I could use additional thoughts or what you all did I live about a 30 minute commute from the medical center. And know that I'll spend at least the remainder of the 3rd there and baring problems being sent home on the 4th.
ED 20 years, Peyroine's Disease diagnosed in 2018, at 57 years I was implanted September 3rd 2019 at the Salt Lake City VA Medical Center, AMS700 CX 21cm + 2cm RTE

User avatar
Quincy
Posts: 413
Joined: Tue Mar 27, 2012 6:03 pm
Location: Boise, ID

Re: My Journal Implant scheduled for Sept 3rd 2019

Postby Quincy » Fri Aug 09, 2019 7:01 pm

Get a baby sock to wear over your dick to help relieve rubbing against your pants/underwear after the surgery. That will be handy for at least a couple weeks. I wore mine whenever I went out for about 3 weeks or more.

Take or wear your loosest, absolutely loosest!, pants or shorts and go commando. Many are still inflated when the leave the hospital. If you don't want the tent in your pants to stand out too much, a shirt that hangs down long enough to cover a little will help, as well.

Be careful about taking the pain medications they give you. My experience, repeated often by others here, is that those meds cause terrible constipation. I took just one as I was waking up and wish I'd not done it. You may need them, as all surgeries go differently, but I did fine with just Ibuprofen, and the constipation from that first pill (and perhaps surgery aftermath) was worse pain than the surgery itself.

Take something to do while you recover. I had my laptop and actually wrote my journal while lying there. A good book on your phone or some computer activity you enjoy might help.

Most importantly: Take a good attitude. You're going to be bionic and it will be great! You'll have a couple of WTF! moments. Mine were as was laying in the hospital bed just before surgery and then right after surgery. I'm wildly glad that I didn't stop the surgery just before it happened, but I thought about it a little.

Best wishes!

Quincy.
71, Boise area, Married
ED from type 2 diabetes and PCa radiation.
AMS LGX surgery 6/5/18 with Edward Karpman in Silicon Valley, 18cm+3RTE


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