12 months since Titan implant surgery - a report on status

The final frontier. Deciding when, if and how.
navy6587
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Location: Providence Forge, VA
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Re: 12 months since Titan implant surgery - a report on status

Postby navy6587 » Mon Jun 10, 2019 1:40 pm

Robert...interesting analysis of 12 months post-op. Glad your mrs appreciates the effort and pain you went through for her.

Can't say I agree with your assessments in total. In my case they have been almost polar opposites of your results, albeit possible that I didn't have Peyronies so don't know how this may have affected my outcome. My girth increase, which I DID NOT need comes at about 1/3 up my shaft and continues to expand toward and until my glans. Obviously, my butcher (er...surgeon) had no clue what a Titan might have done to me and didn't feel it in his purview to investigate).

All I can say is: Yes...it works. Other than that, I'm not at all impressed by my implant!
74; ED at 50. Fired by 1st doc (Szobota - VA Uro) too many q's & contact w/ Coloplast rep. New doc: Ellen (VA Uro) implanted 11/8/18. 22cm Titan + 2cm RTEs; moron docs, product rep, intake/ dischg nurses! NEVER again! L- 6.75"; G- 5.5" oval.

Larry10625

Re: 12 months since Titan implant surgery - a report on status

Postby Larry10625 » Mon Jun 10, 2019 2:59 pm

warrenw wrote:
Larry10625 wrote:This sounds so very clinical.

Larry

Robert's report is very well written, factual, and useful to other forum members. Quite a contrast to your posts.



My comment about his post WAS NOT NEGATIVE AT ALL. The rest of you with your snide, snotty posts can all freakin DROP DEAD

merrix
Posts: 1185
Joined: Tue Oct 27, 2015 1:08 am

Re: 12 months since Titan implant surgery - a report on status

Postby merrix » Tue Jun 11, 2019 9:00 am

Larry10625 wrote:
warrenw wrote:
Larry10625 wrote:This sounds so very clinical.

Larry

Robert's report is very well written, factual, and useful to other forum members. Quite a contrast to your posts.



My comment about his post WAS NOT NEGATIVE AT ALL. The rest of you with your snide, snotty posts can all freakin DROP DEAD


Seriously Larry, take a break from this. I think it’s good advice. You are obviously under too much stress from this.
And you can’t really blame others for it. With hundreds of people posting here, not everyone will like how you run your moderator role.
Sorry, but you must accept that, swallow it and ignore it.
You can’t react like that as a moderator.
I have experience from something similar, where I thought I did a great thing and everyone should be grateful and never criticize. But the world doesn’t work that way.
I think good advice came from someone who said you should focus on being only a moderator. Or only being a member.
And this is my honest advice which I think would really be for your best. Don’t do this if it doesn’t make you feel good. Money isn’t everything. Because I hope you get paid for doing this. You spend a lot of time here and it should add to your life. Not piss you off.
43 yo, ED forever from VL
Fit and active
Implanted December 2015
Titan XL 24 cm, no RTEs
Dr. Eid
Activated day 13
Sex after 3 weeks
Gained length and girth
So far It works perfectly
Only one advice: Find a world class surgeon

Larry10625

Re: 12 months since Titan implant surgery - a report on status

Postby Larry10625 » Tue Jun 11, 2019 9:43 am

merrix wrote:
Larry10625 wrote:
warrenw wrote:Robert's report is very well written, factual, and useful to other forum members. Quite a contrast to your posts.



My comment about his post WAS NOT NEGATIVE AT ALL. The rest of you with your snide, snotty posts can all freakin DROP DEAD


Seriously Larry, take a break from this. I think it’s good advice. You are obviously under too much stress from this.
And you can’t really blame others for it. With hundreds of people posting here, not everyone will like how you run your moderator role.
Sorry, but you must accept that, swallow it and ignore it.
You can’t react like that as a moderator.
I have experience from something similar, where I thought I did a great thing and everyone should be grateful and never criticize. But the world doesn’t work that way.
I think good advice came from someone who said you should focus on being only a moderator. Or only being a member.
And this is my honest advice which I think would really be for your best. Don’t do this if it doesn’t make you feel good. Money isn’t everything. Because I hope you get paid for doing this. You spend a lot of time here and it should add to your life. Not piss you off.



NO, it is NOT A PAID POSITION. I do it because since my back injury in 2011, my day has been occupied by nothing. I had all this extra time on my hands so decided to do this. I fully understand that not everyone will agree with me but when their surgeon (whom they can't stop raving about) says the same thing as I do, I can't understand how they can argue that. I have asked repeatedly for people to STOP the negative crap in public... the entire rest of the world can see every post except "For Members Only". Common respect dictates that's how people are to behave. There are a couple of people here who think their crap doesn't stink and are constantly shooting their yapper off... one shot it off a little once too much and before I got the chance to address it, most of the ACTIVE members pounced on him... you would think that would shut him up... NOPE, he has diarrhea of the mouth. People have to stop talking about my "Moderators" job. It certainly is not. If you google Moderator you will find;
moderator noun
mod·​er·​a·​tor | \ ˈmä-də-ˌrā-tər \

Definition of moderator
1 : one who arbitrates : mediator
2 : one who presides over an assembly, meeting, or discussion: such as
a : the presiding officer of a Presbyterian governing body
b : the chairman of a discussion
group

My job here, that Paul wants me to do, is to snitch on people who are not playing nice in the sandbox. I can delete a post if it is a duplicate (I still haven't figured out how they manage to do that). I have NO AUTHORITY WHAT SO EVER. I can warn, and I can PM someone and tell them about their inappropriate post before I go crying to Paul but that's it.

I don't entirely disagree that maybe I should just throw in the towel but I have done a lot of research and interviewed a lot of people and gained a lot of valuable knowledge (some medical and some based on experience) and I will not give up because a few idiots don't know how to behave in a public forum.

Thanks for your input. :)

Larry

merrix
Posts: 1185
Joined: Tue Oct 27, 2015 1:08 am

Re: 12 months since Titan implant surgery - a report on status

Postby merrix » Tue Jun 11, 2019 10:05 am

Should probably have waited a few days to post this to let you calm down, but patience isn’t really my thing either, so here goes...
You may well be right, but here’s the thing:
Read some of your own posts with an outside-in neutral perspective.
How would you judge them as the moderator?
Probably you’d say the very same thing about your own posts. Not much for “good behavior” there either. You come down pretty hard yourself and use some pretty bad language.
That’s to me a sign this is getting to you, bringing out the worst in you.
And that’s not sustainable in the long run.
So my advice, for your own wellbeing, to try to break the vicious circle. Nobody else is going to do it for you. People here won’t change. And if they do, new people will come in with posts you won’t like.
So it has to come from you. You’ve got to stop the inflow of negative energy this gives you. One little part in that is maybe to stop pouring gasoline on the fire!
Take care.
Good night from the other side of the planet.
43 yo, ED forever from VL
Fit and active
Implanted December 2015
Titan XL 24 cm, no RTEs
Dr. Eid
Activated day 13
Sex after 3 weeks
Gained length and girth
So far It works perfectly
Only one advice: Find a world class surgeon

MARKOS2018
Posts: 465
Joined: Mon Aug 22, 2011 5:20 pm

Re: 12 months since Titan implant surgery - a report on status

Postby MARKOS2018 » Tue Jun 11, 2019 5:19 pm

Hey Robert

I really enjoyed readying your update which was well written. You as i had Peyronies.and you have explained it very well. Others will see what it has done to you and you were proud to write the way you did. I loved it and chuckled at times. Not everyone can write as well as you. Keep on enjoying Mrs Roberts! and yourself with your new implant.

BTW I have been on this forum for quite some time, and the moderator rarely came on to reply to almost every post....... I don't know how you do it Larry?

Mike
Titan implanted by Dr Eid Due to Peyronies, Implant was the only option for me.

Robert1966
Posts: 39
Joined: Mon Sep 11, 2017 8:26 pm

Re: 12 months since Titan implant surgery - a report on status

Postby Robert1966 » Thu Jun 13, 2019 7:16 am

Floridian wrote:Hey Robert

I really enjoyed readying your update which was well written. You as i had Peyronies.and you have explained it very well. Others will see what it has done to you and you were proud to write the way you did. I loved it and chuckled at times. Not everyone can write as well as you. Keep on enjoying Mrs Roberts! and yourself with your new implant.

BTW I have been on this forum for quite some time, and the moderator rarely came on to reply to almost every post....... I don't know how you do it Larry?

Mike

Thanks for the positive feedback and glad you got a laugh!
I put the info on the correction of Peyronies as I understand that 30 deg is the max that they will try to correct with an implant... any more and surgery is required.. I wanted to avoid that. It took ~ 4 months of cycling twice daily for the Titan implant to correct the the bend (which was upwards) from 30 deg to 10 deg (this was with twice daily cycling)... it has moved a bit further to 8deg now (12 months).... this minor bend is of no consequence either visually or physically. Immediately post surgery that bend was up close to 25 deg.. but progressively the fibrous tissue causing the Peyronies was stretched, and sufficient elasticity has been achieved to get the ~ 8deg bend.

re enjoying the implant... I use mind exercises to reinforce the value/pleasure of having the implant. I figure since it is now ME I may as well love that part of me and enjoy it to the max...
Born 1958, ED issues following prostatectomy in 2009 for PCa. Used Cialis and prostaglandin but ultimately unworkable. Implanted 2/6/2018, 20cm Titan no RTE

MARKOS2018
Posts: 465
Joined: Mon Aug 22, 2011 5:20 pm

Re: 12 months since Titan implant surgery - a report on status

Postby MARKOS2018 » Thu Jun 13, 2019 2:04 pm

Robert

Sounds like a miracle of sorts getting that bend to relax and become more pliable. Many don't have that happen but with your determinaton you did it.

I had lot of fibrous tissue and a slight bend on onset. The implant fixed it all and made me a happy man.

Wish you the very best of times.....


Mike
Titan implanted by Dr Eid Due to Peyronies, Implant was the only option for me.

Robert1966
Posts: 39
Joined: Mon Sep 11, 2017 8:26 pm

Re: 12 months since Titan implant surgery - a report on status

Postby Robert1966 » Thu Jun 13, 2019 9:44 pm

Thanks Mike,

I'll add the following for the benefit of others.

My urologist consider that the 30deg upward Peyronies that I had was as a consequence of my Prostatectomy, with the reduction in the length of the urethra and its distorting forces on the penile tissue. No fibrotic tissue could be felt. He considered it was in the centre of the penis between the corpus cavernosum.
There was a direct expectation by my urologist that that the 30 deg Peyronies would be straightened by a Titan implant. He was totally confident about this. I was not.
He left me 40% inflated after surgery... it loss some pressure over time, but he didn't wish to see me for 5 weeks.
I researched the literature, and there was good evidence for commencing cycling as soon as the pain was tolerable and base healing had occurred.
For me I could commence cycling on Day 13, I was cautious to place a load on the tissue that would not result in rupture, and to work with the healing process.
As overall pain diminished I made the cycling more aggressive in the sense of higher pressure and longer inflated duration. I was cycling twice a day.
Slowly over 4 months the penis was able to be increasingly straightened by the inflated Titan cylinders.
Today 12 months out, I can tell that the fibrotic tissue has been stretched as when the Titan is deflated there is much less curvature of the penis c.f. initially after surgery.
I hope to straighten the remainder of the curvature, but it really doesn't matter if this is not achieved. There is no pain other than when the implant has been inflated to the max for at least 30 mins.

I am 60yo... and with respect to age, I'd like to add the following comments. The healing of tissue is less effective as we age, and we are more vulnerable to scar formation as healing occurs. For those of use with implants, the elasticity of the tunica albuginea will diminish with age, and one would wish to avoid tunical fibrosis through forces applied to the penis either by the implant or externally on the penis. My urologist did not document risks of tunical fibrosis post implant, but I am cautious with the forces that I place on my penis as a 60yo.. knowing that any micro-damage will not be able to heal as well as when I was 20yo.. and that scaring/fibrosis is an increasingly greater risk with age.
Born 1958, ED issues following prostatectomy in 2009 for PCa. Used Cialis and prostaglandin but ultimately unworkable. Implanted 2/6/2018, 20cm Titan no RTE


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