19 Year Old Guy with some Questions about Implants and Scar Tissue
Posted: Mon Feb 18, 2019 5:03 am
Hello all! So just a little background, I'm a 19 year old guy who has suffered with ED for the past 5 years. Having ED at such a young age has been a very upsetting and depressing experience. I have missed out on a lot of the joys of youth, and my confidence has been destroyed on account of my ED. Trying to find out what was causing my ED and what to do about it has also been a very lengthy and difficult process. I've had doctors tell me my ED was all in my head, that it was due to low testosterone or a pelvic floor dysfunction (I do actually have a Pelvic Floor Dysfunction) Eventually I was referred to Dr. Golstein down in San Diego who performed a cavernosography on me and revealed that the reason for my ED was due to moderate scar tissue throughout both regions of my corpus cavernosum. I'm still a bit unsure as to what exactly caused this scar tissue (Though I have a few guesses) but the important thing now is what to DO about it. I can't keep living with ED.
Pills make my flaccid hand lower but barely help sustain erections, and injections are disappointingly ineffective and leave nasty bruises. I have tried some pretty crazy treatment options. Doc Golstein sent me to Greece for a month to try out shockwave therapy done by the head Urologist at the Aristotle University of Thessolainki. While I had a wonderful time in the city for a month, the treatment was sadly uneffective. I've also tried an injection of PRP with Doctor Golstein as a second option. Unfortunately I saw no improvements after this treatment either. Goldstein has recommended trying the treatment twice more with a few months in between each treatment, but given how expensive the treatment is and that I saw no improvement the first time I don't think I'm going to do this. (I'm happy to go into further detail about either of these treatments if anyone is wondering/considering)
At this point, it looks like the only real option towards getting good hard erections again is a penile implant... however, I am hesitant to do so given that the root cause of my ED is Penile Fibrosis in my corpus cavernosum. I've seen some stuff on FrankTalk and read some articles online that seem to indicate that having scar tissue in the corpus cavernosum makes the implant surgery more difficult, and that men with scar tissue are the most likely to loose significant amounts of length, moreso than guys with say, a venous leak, or peyronies. This really scares me. Here are some links to some studies talking about this. I'm not sure if my scar tissue is as severe as what's being discussed in these articles, but I'm still worried.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4443017/
https://www.ncbi.nlm.nih.gov/pubmed/21492405
https://www.ncbi.nlm.nih.gov/pubmed/16839331
Right now, if I've popped some sildenafil and I'm right before ejaculation, my erect penis measures at just over six inches. However my stretched flaccid length only comes to 5 and half inches. (Although I'm not sure how hard I'm supposed to pull...) My understanding is that the stretched flaccid length is the best indicator of what the erect implant length will be, so I really don't want to loose any more than a half inch. I guess what I'm asking for, is can anybody who has ED due to penile fibrosis inside the corpus cavernosum weigh in on how their implants worked for them? Additionally, I've read a lot of posts that claim that post op as your penis heals and cycling continues you will regain length. Does this happen in guys with corporal scar tissue? I've also read some posts on Frank Talk that recommended using a vacuum erection device for months before an implant surgery to try and "stretch out" the penis as much as possible and avoid length losses, but I'm really not sure what to think of that, can anyone weigh in on whether that's a good idea? I just really don't wanna get an implant and be crushed if loose a ton of length and don't get it back.
I'm also frankly, really unsure about how to choose a surgeon. I wanna go with someone really experienced, especially if my scar tissue adds a layer of complication to this, and right now I think I'm leaning towards Dr. Kramer. He isn't close or convenient, but I wanna go with someone high profile. But I have no idea how much experience he has with scar tissue and whether or not he'll be my best option for maintaining length and avoiding revisions or infections.
And, I suppose the last of my many questions would be, what is the revision rate for these devices? My understanding is that they're said to last a good 15-20 years on average, but I have seen a ton of guys on here who have needed revisions after only 5 or 6 years. This is also pretty concerning, as that's gonna be a lot of money every so often for the rest of my life! Is the AMS or Titan known to be more reliable?
I apologize for the length of this post, but I'm so glad this community exists for guys like me with ED and questions. Thank you all!
Pills make my flaccid hand lower but barely help sustain erections, and injections are disappointingly ineffective and leave nasty bruises. I have tried some pretty crazy treatment options. Doc Golstein sent me to Greece for a month to try out shockwave therapy done by the head Urologist at the Aristotle University of Thessolainki. While I had a wonderful time in the city for a month, the treatment was sadly uneffective. I've also tried an injection of PRP with Doctor Golstein as a second option. Unfortunately I saw no improvements after this treatment either. Goldstein has recommended trying the treatment twice more with a few months in between each treatment, but given how expensive the treatment is and that I saw no improvement the first time I don't think I'm going to do this. (I'm happy to go into further detail about either of these treatments if anyone is wondering/considering)
At this point, it looks like the only real option towards getting good hard erections again is a penile implant... however, I am hesitant to do so given that the root cause of my ED is Penile Fibrosis in my corpus cavernosum. I've seen some stuff on FrankTalk and read some articles online that seem to indicate that having scar tissue in the corpus cavernosum makes the implant surgery more difficult, and that men with scar tissue are the most likely to loose significant amounts of length, moreso than guys with say, a venous leak, or peyronies. This really scares me. Here are some links to some studies talking about this. I'm not sure if my scar tissue is as severe as what's being discussed in these articles, but I'm still worried.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4443017/
https://www.ncbi.nlm.nih.gov/pubmed/21492405
https://www.ncbi.nlm.nih.gov/pubmed/16839331
Right now, if I've popped some sildenafil and I'm right before ejaculation, my erect penis measures at just over six inches. However my stretched flaccid length only comes to 5 and half inches. (Although I'm not sure how hard I'm supposed to pull...) My understanding is that the stretched flaccid length is the best indicator of what the erect implant length will be, so I really don't want to loose any more than a half inch. I guess what I'm asking for, is can anybody who has ED due to penile fibrosis inside the corpus cavernosum weigh in on how their implants worked for them? Additionally, I've read a lot of posts that claim that post op as your penis heals and cycling continues you will regain length. Does this happen in guys with corporal scar tissue? I've also read some posts on Frank Talk that recommended using a vacuum erection device for months before an implant surgery to try and "stretch out" the penis as much as possible and avoid length losses, but I'm really not sure what to think of that, can anyone weigh in on whether that's a good idea? I just really don't wanna get an implant and be crushed if loose a ton of length and don't get it back.
I'm also frankly, really unsure about how to choose a surgeon. I wanna go with someone really experienced, especially if my scar tissue adds a layer of complication to this, and right now I think I'm leaning towards Dr. Kramer. He isn't close or convenient, but I wanna go with someone high profile. But I have no idea how much experience he has with scar tissue and whether or not he'll be my best option for maintaining length and avoiding revisions or infections.
And, I suppose the last of my many questions would be, what is the revision rate for these devices? My understanding is that they're said to last a good 15-20 years on average, but I have seen a ton of guys on here who have needed revisions after only 5 or 6 years. This is also pretty concerning, as that's gonna be a lot of money every so often for the rest of my life! Is the AMS or Titan known to be more reliable?
I apologize for the length of this post, but I'm so glad this community exists for guys like me with ED and questions. Thank you all!