Re: What went right, What went wrong
Posted: Thu Mar 14, 2019 2:05 pm
Dammit Doug, I hope the damn EKG behaves next time.
support group helping men deal with Erectile Dysfunction.
https://www.franktalk.org/phpBB3/
DougAnd wrote:For several months I've been analyzing my situation looking for a happy ending. Along the way I've identified some interesting things that might help others avoid a repeat. It would take much too long to list everything at once so I'm breaking it down in pieces.
WHAT WENT RIGHT
1. Excellent healing, minimum pain, swelling and discoloration. The sign of a skilled surgeon is all of the above. The less trauma the better the outcome. My two surgeons were the best of the best. Same is true for my revision. I easily returned to work 13 days after implant and 5 days after revision. Did not need pain meds except to sleep faster a few nights. (Was not used to sleeping all day and all night). Of course I drank a gallon of fluids daily and was propped up on a wedge pillow. You do have to help your body heal.
2. No infection. You might think well I would hope not! And you'd be right. No one expects to be infected. But the sign of a top notch surgical team is a very low infection rate. I had the best of the best team both times. Very VERY pleased with that.
3. Insurance paid 99%+. My out of pocket costs were almost non existent. Of course I pay $300.00 per month for insurance but well worth it for the coverage.
4. Dial a hardness. Never before could I have the type of erection I was in the mood for. Longer or shorter, softer or rock hard. And never for extended periods. You are in total control! You cannot imagine the mental boost. Want to know what my super power is?
5. No more pre ejaculation. Ever! The only thing worse that suddenly going soft is suddenly going soft after what 3 maybe 4 seconds? Really? Not anymore. The implant makes you really work for an orgasm. You can discipline yourself to go sooner but why? Enjoy the ride.
6. No expensive pills or injections and no vacuum rings limiting time and pleasure.You now and forever have an erection on demand any time any where any way. Oh yeah.
I'll post more as time permits for now good night.
Maverick2dog wrote:Right: I like both my surgeon.
I have had three surgeries without infection.
Good insurance, with a low max out of pocket.
It looks and feels like the second revision is going to be successful. See the doctor next
week to get okay to use. 7 weeks out from surgery.
I have a flexible job and can set my own schedule. No boss.
My dick is healing surprisingly well as it relates to scaring from being sliced open in three
different places.
Wrong: I have had 3 implant surgeries in 10 months.
I had to pay $6,000 for something that should have only cost $3000. I can pay the $6000,
but I should not have to.
I have missed almost 6 weeks of work in 10 months.
My dick has either hurt, been out of commission or both for 10 months.
My marriage has taken a hit because of the issues, problem, pain caused by all the
surgeries. The lack of sexual intimacy has impacted the non sexual intimacy.
Second revision I was sliced from the bottom of my scrotum to 3/4 of the way up my dick
and on the right and left side of my dick just below the head.
There are more wrongs, but you get the point.
Outcome: To be determined.
Looks like next week I will get deflated for the first time in seven week. Working on
and will get the marriage back on track. At the end of the day if my dick does not
hurt and works reasonably well I will be satisfied with the implant at this point. I do
have some regrets and will have to get past them. Not going to let a rough year
determine how the next year is going to turn out.
Mav
BionicLeeroy wrote:Hi Mav/ Doug I have had a similar experience to you guys
The Good!!
I had peyronies disease which caused a 100+ deg curve, this meant sex was virtually impossible. I can now have sex and am straight with no curve when inflated
The Bad!!!!!!
First operation to fix the Peyronies (Lue procedure) didn't work. Under the same anaesthetic procedure the surgeon placed a malleable implant to fix the curve. (The length of time already on the operating table was to risky to implant an IPP) This was a total nightmare having rigid rods implanted
The next operation to swap the malleable for an IPP (Titan) was botched (Dec 2017). I ended up with a crossover which took numerous appointments/ examinations and still wasn't diagnosed as a fault until the 2nd revision I had in Aug 2018 to swap the titan for an ams cx (The surgeon had advised the deformed shape and fold, was due to the stiffness of the titan - at no time was there mention of a crossover, even though I now have my MRI results which identified a possible crossover prior to having second surgery) Apparently they only discovered this when trying to replace the cylinders. Because of the complications they also did a vertical incision at the underside of my shaft (refer to my previous posts for the horrific photos). Unfortunately this also deschised causing all stitching to come undone
My last revision fixed the crossover but I have been left with uneven tips due to the right side RTE being 10mm forward in the crus. This has caused uneven tips in the glans and when inflated very crooked head. The tips are now all the way into the glans which is causing me concern with regard to erosion. The tip on the r/h side is also over to the edge of the skin and is very prominent just below the glans.
I have had a couple of follow up appointments and all I am now being offered if a mesh graft over where the crossover occurred. This would strengthen the deformed chamber making the bulge less visible. This would however involve a subcoronaial incision and neurovascular bundle being separated (risky). Possibly also to remove the RTE on the RH side to even up the tips again with elevated infection risk.
I feel I have now exhausted any chance of getting this fixed on the NHS and will now try and fund this to get it fixed privately (back in a worse position than square one)
The last 2 years have been a total nightmare with 3 surgeries already.
I have attached photos of the healed scar from last surgery which came apart. Along with current erect and deflated indicating bulge at point of crossover.