Now on waiting list (UK NHS) - but two things they said really hit me

[Seeking]

Quick history on me:
- I've had hard flaccid (probably linked to hypertonic pelvic floor) for 15 years, caused by weight lifting (but I also have PTSD which causes constant internal muscle tension). The main symptom is complete lack of sensitivity, like my pelvic floor / penis are always being suffocated by internal muscles around them.
- Tried sclerotherapy from Herwig's clinic in 2016, pills have started to taper off, injections were agony at the injection site, and now I'm rocking at around 60% functional when masturbating, 20% functional human-to-human.

After getting the go-ahead for implant surgey, I went to see a lady named Claire at UCLH who took me through the two kinds of implants. She spotlighted two things though in particular which left me a bit shook and which I'd love some feedback on:

1) She framed post-implant drooping glans as a semi-likely side-effect - not something rare

- Far from giving this a passing mention, she dedicated at least 5 minutes to going over this (which suggested to me they'd received considerable patient feedback around it) and she emphasised that the likelihood of a floppy glans after the implant was perhaps, less likely than 'considerable' but more likely than 'rare'. She said if my penis head doesn't get hard currently (surely most pre-implantees don't?) I should fully expect to have a penis post-implant that'll only be hard at the shaft.
- I was left a bit confused by this. Judging by the outcomes documented on this forum, I get the impression a floppy glans post-implant would be seen as a considerable shortcoming by the surgeon, not something considered out of their control.

2) "You shouldn't get an implant if you can get any kind of erection - full stop"

- She said if I can get an erection whilst masturbating on my own, I should absolutely not be getting this procedure done i.e. unless there is 100% loss of function and my penis is basically an inert twinkie, I should be making use of pump 'n' ring until it's useless.
- I get what she means, but also kinda 'not' as well. If the surgery went wrong, I'm not really sure I'd say to myself "damn, I wish I'd not had the procedure so I could have kept on jerking off". I'm done with jerking off. I'm getting an implant so that, for the first time in 15 years, I might return to the realm of normal human-to-human sex.

Anyway, that's where I'm at - any insight at all on the above would be most helpful.

It would also be *really* good to know - if anyone here has had the drooping glans side-effect after surgery, was it just an inconvenience, or was it quite traumatic?

[Bigdog4all]

I can't comment on #1 above. My surgery and outcome was Top Notch

But as far as to #2.....In a nutshell, getting an implant, is like jumping off a cliff. Just enjoy the view. Why you say? There is no turning back. The implant is the very last option you have, as of today. Generally, most start off with occasional ED. Then they go to the Pill.....then the Pump...then the Needle...and finally, The Implant. Once you go to the Implant, there is no turning back and there are no other options, as of today. If the only reason you are getting the implant is for sex, you may need some additional counseling.

[splitpeach]

Quick history on me:
- I've had hard flaccid (probably linked to hypertonic pelvic floor) for 15 years, caused by weight lifting (but I also have PTSD which causes constant internal muscle tension). The main symptom is complete lack of sensitivity, like my pelvic floor / penis are always being suffocated by internal muscles around them.
- Tried sclerotherapy from Herwig's clinic in 2016, pills have started to taper off, injections were agony at the injection site, and now I'm rocking at around 60% functional when masturbating, 20% functional human-to-human.

After getting the go-ahead for implant surgey, I went to see a lady named Claire at UCLH who took me through the two kinds of implants. She spotlighted two things though in particular which left me a bit shook and which I'd love some feedback on:

1) She framed post-implant drooping glans as a semi-likely side-effect - not something rare

- Far from giving this a passing mention, she dedicated at least 5 minutes to going over this (which suggested to me they'd received considerable patient feedback around it) and she emphasised that the likelihood of a floppy glans after the implant was perhaps, less likely than 'considerable' but more likely than 'rare'. She said if my penis head doesn't get hard currently (surely most pre-implantees don't?) I should fully expect to have a penis post-implant that'll only be hard at the shaft.
- I was left a bit confused by this. Judging by the outcomes documented on this forum, I get the impression a floppy glans post-implant would be seen as a considerable shortcoming by the surgeon, not something considered out of their control.

2) "You shouldn't get an implant if you can get any kind of erection - full stop"

- She said if I can get an erection whilst masturbating on my own, I should absolutely not be getting this procedure done i.e. unless there is 100% loss of function and my penis is basically an inert twinkie, I should be making use of pump 'n' ring until it's useless.
- I get what she means, but also kinda 'not' as well. If the surgery went wrong, I'm not really sure I'd say to myself "damn, I wish I'd not had the procedure so I could have kept on jerking off". I'm done with jerking off. I'm getting an implant so that, for the first time in 15 years, I might return to the realm of normal human-to-human sex.

Anyway, that's where I'm at - any insight at all on the above would be most helpful.

It would also be *really* good to know - if anyone here has had the drooping glans side-effect after surgery, was it just an inconvenience, or was it quite traumatic?

Claire who? I don't see a claire listed as a UCLH andrology consultant...

[UpNorth]

Seeking
#1 Your analogy could not be worded any better.

#2 I think only you can determine your satisfaction level.

I’m pretty new at this, I’m still exhausted when I go to work and do very little around the house. With what my wife and I are seeing and feeling I wish I would have done mine when I was 38 years old. I have not had one day that I regretted having this done.

Wishing you an awesome outcome.

[tooyoung]

Quick history on me:
- I've had hard flaccid (probably linked to hypertonic pelvic floor) for 15 years, caused by weight lifting (but I also have PTSD which causes constant internal muscle tension). The main symptom is complete lack of sensitivity, like my pelvic floor / penis are always being suffocated by internal muscles around them.
- Tried sclerotherapy from Herwig's clinic in 2016, pills have started to taper off, injections were agony at the injection site, and now I'm rocking at around 60% functional when masturbating, 20% functional human-to-human.

After getting the go-ahead for implant surgey, I went to see a lady named Claire at UCLH who took me through the two kinds of implants. She spotlighted two things though in particular which left me a bit shook and which I'd love some feedback on:

1) She framed post-implant drooping glans as a semi-likely side-effect - not something rare

- Far from giving this a passing mention, she dedicated at least 5 minutes to going over this (which suggested to me they'd received considerable patient feedback around it) and she emphasised that the likelihood of a floppy glans after the implant was perhaps, less likely than 'considerable' but more likely than 'rare'. She said if my penis head doesn't get hard currently (surely most pre-implantees don't?) I should fully expect to have a penis post-implant that'll only be hard at the shaft.
- I was left a bit confused by this. Judging by the outcomes documented on this forum, I get the impression a floppy glans post-implant would be seen as a considerable shortcoming by the surgeon, not something considered out of their control.

2) "You shouldn't get an implant if you can get any kind of erection - full stop"

- She said if I can get an erection whilst masturbating on my own, I should absolutely not be getting this procedure done i.e. unless there is 100% loss of function and my penis is basically an inert twinkie, I should be making use of pump 'n' ring until it's useless.
- I get what she means, but also kinda 'not' as well. If the surgery went wrong, I'm not really sure I'd say to myself "damn, I wish I'd not had the procedure so I could have kept on jerking off". I'm done with jerking off. I'm getting an implant so that, for the first time in 15 years, I might return to the realm of normal human-to-human sex.

Anyway, that's where I'm at - any insight at all on the above would be most helpful.

It would also be *really* good to know - if anyone here has had the drooping glans side-effect after surgery, was it just an inconvenience, or was it quite traumatic?

Soft glans syndrome is different than floppy glans....she's right implants don't replace glans insufficiency...that's why alot of implantees continue using pde5i post implant and it won't be necessarily effective for the same reasons it wasn't before the implant...but it still helps engorgement once inside for those with too bad glans (corpus spongiosum) response. Floppy glans on the other hand could be attributed to either surgeon's incompetency or an inherent risk within the patient...either way it's fixable.

I don't agree with her on (2) because the only reason we get our dicks cut is to restore our ability to penetrate effectively...to keep our wives...to feel alive and whole again. So gladly discard his take on (2).

[niall4473]

[You shouldn't get an implant if you can get any kind of erection - full stop"]

That may be just a tad too much, but is valid.
The implant is a last ditch measure, and should not be done lightly, because as with all surgical and medical procedures, things can, and do, go wrong, for instance, you could die on the table, same as any general anaesthetic, is it worth the risk?
I thought so, and still do, I have had one implant, and am waiting for another.
Will it solve all your problems?.
No but it might give you sexual function which is a very big deal.
Will there be side effects?
Yes, there could be, mine is uncomfortable, very uncomfortable sometimes, and it has affected my frequency of urination negatively.
Could the procedure go wrong?
Yes, read the experiences on this forum, my operation went great, but......
Might I go through all that and then it not work?
Possibly, I had mine put in two and a half years ago, and it never worked, not once, I am now waiting to have my original implant removed and a replacement put in, and I am still ready to go throughall the pain, inconvenience, embarrassment etc again, this is my only option of ever having sexual function again, but some people have had worse experiences than I have.
Think carefully, there is no going back from this, I was told that even having it just removed could be risky.
Good luck!

[GoodWood]

Regarding glans engorgement: Expect your glans engorgement to be similar post implant to what it was preimplant. The blood flow for your glans is separate from the corpus cavernosa. It should be uneffected by the implant surgery.

The most common reason to have no glans engorgement is prostatectomy with nerve damage. It’s not the norm.

A lot of us find daily cialis helpful for glans engorgement (or similar ED pills). Some guys report success with TriMix urethra gel.


Regarding the second point of not getting an implant if you have ANY erectile function: bullocks. A lot of us could get erections, but erections that were not rigid enough for penetrating sex. That was my case. I got “erect”. It looked impressive. It got thick. It looked big. But it wasn’t firm enough to penetrate. Hand job, blow job, masturbation OK. Fucking no.

If you don’t get erections that function well enough for what you want to do, and pills/shots aren’t helping enough, then it’s time for an implant.

Your description of your erectile function (20%) sure sounds like it’s time for implant. However much your glans gets engorged now is likely what you will have after implant. If you aren’t taking daily Tadalafil yet, consider it.

[totaltom]

If you're in London I recommend getting a consultation with Prof. Amr Raheem at International Andrology.
https://london-andrology.co.uk/medical- ... mr-raheem/
He really helped me make up my mind about finally going for it.
I'm one week post surgery with him now.