Now on waiting list (UK NHS) - but two things they said really hit me

The final frontier. Deciding when, if and how.



Seeking
Posts: 79
Joined: Sun Mar 15, 2015 12:03 pm

Now on waiting list (UK NHS) - but two things they said really hit me

Postby Seeking » Mon Jun 30, 2025 4:07 pm

Quick history on me:
- I've had hard flaccid (probably linked to hypertonic pelvic floor) for 15 years, caused by weight lifting (but I also have PTSD which causes constant internal muscle tension). The main symptom is complete lack of sensitivity, like my pelvic floor / penis are always being suffocated by internal muscles around them.
- Tried sclerotherapy from Herwig's clinic in 2016, pills have started to taper off, injections were agony at the injection site, and now I'm rocking at around 60% functional when masturbating, 20% functional human-to-human.

After getting the go-ahead for implant surgey, I went to see a lady named Claire at UCLH who took me through the two kinds of implants. She spotlighted two things though in particular which left me a bit shook and which I'd love some feedback on:

1) She framed post-implant drooping glans as a semi-likely side-effect - not something rare

- Far from giving this a passing mention, she dedicated at least 5 minutes to going over this (which suggested to me they'd received considerable patient feedback around it) and she emphasised that the likelihood of a floppy glans after the implant was perhaps, less likely than 'considerable' but more likely than 'rare'. She said if my penis head doesn't get hard currently (surely most pre-implantees don't?) I should fully expect to have a penis post-implant that'll only be hard at the shaft.
- I was left a bit confused by this. Judging by the outcomes documented on this forum, I get the impression a floppy glans post-implant would be seen as a considerable shortcoming by the surgeon, not something considered out of their control.

2) "You shouldn't get an implant if you can get any kind of erection - full stop"

- She said if I can get an erection whilst masturbating on my own, I should absolutely not be getting this procedure done i.e. unless there is 100% loss of function and my penis is basically an inert twinkie, I should be making use of pump 'n' ring until it's useless.
- I get what she means, but also kinda 'not' as well. If the surgery went wrong, I'm not really sure I'd say to myself "damn, I wish I'd not had the procedure so I could have kept on jerking off". I'm done with jerking off. I'm getting an implant so that, for the first time in 15 years, I might return to the realm of normal human-to-human sex.

Anyway, that's where I'm at - any insight at all on the above would be most helpful.

It would also be *really* good to know - if anyone here has had the drooping glans side-effect after surgery, was it just an inconvenience, or was it quite traumatic?
38 Years Old. HF symptoms since age 23 (tight pelvic floor).
Tried pills, sclerotherapy.
At about 40% function currently but reluctant to wait much longer for an implant.

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Bigdog4all
Posts: 216
Joined: Mon Jul 16, 2018 4:02 pm

Re: Now on waiting list (UK NHS) - but two things they said really hit me

Postby Bigdog4all » Mon Jun 30, 2025 4:35 pm

I can't comment on #1 above. My surgery and outcome was Top Notch

But as far as to #2.....In a nutshell, getting an implant, is like jumping off a cliff. Just enjoy the view. Why you say? There is no turning back. The implant is the very last option you have, as of today. Generally, most start off with occasional ED. Then they go to the Pill.....then the Pump...then the Needle...and finally, The Implant. Once you go to the Implant, there is no turning back and there are no other options, as of today. If the only reason you are getting the implant is for sex, you may need some additional counseling.
72, AMS 700 LGX. Married to an Angel. Discovered ED at 67. Path = Diabetic, Supplements, Pills, Needle, Pump, and finally AMS 700 (2-8-24). There's only One BigDog4All, the rest just pups.

splitpeach
Posts: 186
Joined: Fri Nov 22, 2024 7:43 pm

Re: Now on waiting list (UK NHS) - but two things they said really hit me

Postby splitpeach » Mon Jun 30, 2025 4:38 pm

Seeking wrote:Quick history on me:
- I've had hard flaccid (probably linked to hypertonic pelvic floor) for 15 years, caused by weight lifting (but I also have PTSD which causes constant internal muscle tension). The main symptom is complete lack of sensitivity, like my pelvic floor / penis are always being suffocated by internal muscles around them.
- Tried sclerotherapy from Herwig's clinic in 2016, pills have started to taper off, injections were agony at the injection site, and now I'm rocking at around 60% functional when masturbating, 20% functional human-to-human.

After getting the go-ahead for implant surgey, I went to see a lady named Claire at UCLH who took me through the two kinds of implants. She spotlighted two things though in particular which left me a bit shook and which I'd love some feedback on:

1) She framed post-implant drooping glans as a semi-likely side-effect - not something rare

- Far from giving this a passing mention, she dedicated at least 5 minutes to going over this (which suggested to me they'd received considerable patient feedback around it) and she emphasised that the likelihood of a floppy glans after the implant was perhaps, less likely than 'considerable' but more likely than 'rare'. She said if my penis head doesn't get hard currently (surely most pre-implantees don't?) I should fully expect to have a penis post-implant that'll only be hard at the shaft.
- I was left a bit confused by this. Judging by the outcomes documented on this forum, I get the impression a floppy glans post-implant would be seen as a considerable shortcoming by the surgeon, not something considered out of their control.

2) "You shouldn't get an implant if you can get any kind of erection - full stop"

- She said if I can get an erection whilst masturbating on my own, I should absolutely not be getting this procedure done i.e. unless there is 100% loss of function and my penis is basically an inert twinkie, I should be making use of pump 'n' ring until it's useless.
- I get what she means, but also kinda 'not' as well. If the surgery went wrong, I'm not really sure I'd say to myself "damn, I wish I'd not had the procedure so I could have kept on jerking off". I'm done with jerking off. I'm getting an implant so that, for the first time in 15 years, I might return to the realm of normal human-to-human sex.

Anyway, that's where I'm at - any insight at all on the above would be most helpful.

It would also be *really* good to know - if anyone here has had the drooping glans side-effect after surgery, was it just an inconvenience, or was it quite traumatic?


Claire who? I don't see a claire listed as a UCLH andrology consultant...
Mid 30s. UK. ED since mid teens. Done the pills, injections, P Shot, Gainswave, ESWT shockwave.

Now preparing to take the plunge under care of Professor Ralph at UCLH. Planning on a Rigicon Infla10 AX with Pulse pump.

UpNorth
Posts: 29
Joined: Wed Apr 30, 2025 3:40 pm

Re: Now on waiting list (UK NHS) - but two things they said really hit me

Postby UpNorth » Wed Jul 02, 2025 9:03 am

Seeking
#1 Your analogy could not be worded any better.

#2 I think only you can determine your satisfaction level.

I’m pretty new at this, I’m still exhausted when I go to work and do very little around the house. With what my wife and I are seeing and feeling I wish I would have done mine when I was 38 years old. I have not had one day that I regretted having this done.

Wishing you an awesome outcome.
What is your sex life like? I’m a Romantic She’s a Nymphomaniac.
IPP still unknown
NYC by The Man The Myth The Legend Dr Eid
Penoscrotal W/ Scrotoplasty
Friday the 13th of June, 2025
Ed due to chronic pain, arterial insufiency, etc.

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tooyoung
Posts: 120
Joined: Sat Feb 01, 2025 12:46 pm

Re: Now on waiting list (UK NHS) - but two things they said really hit me

Postby tooyoung » Thu Jul 03, 2025 1:46 am

Seeking wrote:Quick history on me:
- I've had hard flaccid (probably linked to hypertonic pelvic floor) for 15 years, caused by weight lifting (but I also have PTSD which causes constant internal muscle tension). The main symptom is complete lack of sensitivity, like my pelvic floor / penis are always being suffocated by internal muscles around them.
- Tried sclerotherapy from Herwig's clinic in 2016, pills have started to taper off, injections were agony at the injection site, and now I'm rocking at around 60% functional when masturbating, 20% functional human-to-human.

After getting the go-ahead for implant surgey, I went to see a lady named Claire at UCLH who took me through the two kinds of implants. She spotlighted two things though in particular which left me a bit shook and which I'd love some feedback on:

1) She framed post-implant drooping glans as a semi-likely side-effect - not something rare

- Far from giving this a passing mention, she dedicated at least 5 minutes to going over this (which suggested to me they'd received considerable patient feedback around it) and she emphasised that the likelihood of a floppy glans after the implant was perhaps, less likely than 'considerable' but more likely than 'rare'. She said if my penis head doesn't get hard currently (surely most pre-implantees don't?) I should fully expect to have a penis post-implant that'll only be hard at the shaft.
- I was left a bit confused by this. Judging by the outcomes documented on this forum, I get the impression a floppy glans post-implant would be seen as a considerable shortcoming by the surgeon, not something considered out of their control.

2) "You shouldn't get an implant if you can get any kind of erection - full stop"

- She said if I can get an erection whilst masturbating on my own, I should absolutely not be getting this procedure done i.e. unless there is 100% loss of function and my penis is basically an inert twinkie, I should be making use of pump 'n' ring until it's useless.
- I get what she means, but also kinda 'not' as well. If the surgery went wrong, I'm not really sure I'd say to myself "damn, I wish I'd not had the procedure so I could have kept on jerking off". I'm done with jerking off. I'm getting an implant so that, for the first time in 15 years, I might return to the realm of normal human-to-human sex.

Anyway, that's where I'm at - any insight at all on the above would be most helpful.

It would also be *really* good to know - if anyone here has had the drooping glans side-effect after surgery, was it just an inconvenience, or was it quite traumatic?


Soft glans syndrome is different than floppy glans....she's right implants don't replace glans insufficiency...that's why alot of implantees continue using pde5i post implant and it won't be necessarily effective for the same reasons it wasn't before the implant...but it still helps engorgement once inside for those with too bad glans (corpus spongiosum) response. Floppy glans on the other hand could be attributed to either surgeon's incompetency or an inherent risk within the patient...either way it's fixable.

I don't agree with her on (2) because the only reason we get our dicks cut is to restore our ability to penetrate effectively...to keep our wives...to feel alive and whole again. So gladly discard his take on (2).


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