Baffled

Sticking a needle Where? Courage, guidance and help.
Robert51
Posts: 210
Joined: Thu Dec 28, 2017 10:39 pm

Baffled

Postby Robert51 » Mon Jun 10, 2019 7:25 am

Over 1 year of bullshit getting trimix and seems no matter how much i do always the same 70% and vanish when i sit down i started 10.15.20.25.30.35 how high can you go maybe trimix is just not going to work each time seems the same not lasting longer or getting harder
66 years old married 14 years on my 3rd wife /////// had a major operation at 51 hernia below belly bottom ed got really bad after that .. Tried pills not much and side affects.. trying alprostadil without a lot of success but only 3rd time

Robert51
Posts: 210
Joined: Thu Dec 28, 2017 10:39 pm

Re: Baffled

Postby Robert51 » Mon Jun 10, 2019 7:41 am

With 1000 of members i guess i am looking for someone to say. Yes same happened to me then i did this much and got a hard errection. Or someone to say hey i got to 100 units and it never worked. Yea or nay this is so frustrating
66 years old married 14 years on my 3rd wife /////// had a major operation at 51 hernia below belly bottom ed got really bad after that .. Tried pills not much and side affects.. trying alprostadil without a lot of success but only 3rd time

alfa88
Posts: 136
Joined: Sat Jun 30, 2018 2:59 pm
Location: North of Gilligan's Island

Re: Baffled

Postby alfa88 » Mon Jun 10, 2019 2:34 pm

Okay I'll bite. I've pretty much paralleled your timeline(~ 1 year now) . I'm up to a 60/30/3 formula and tried 100 units last night(50 per side). I used a Lyps cock ring around the balls and dick and almost had success laying down but once I tried entering went limp. Stood up, lubed up and had wifey scoot to the edge of the mattress. Finally got some semblance of intercourse. Afterwards my poor dick felt like I had squeezed it in a vice for ,like, an hour. At least sitting down, feet up the pressure eased. At 100 units this routine is getting expensive. Not only that but my Uro. says this is the highest strength the pharmacy makes. At this rate it looks like it's back to a VED until I can get Medicare to help pay for an implant. Bottom line - venous leak. :x
53 years old, married 32 years. Decades of ED & PE. BPH. Tried Viagra W & W/O T-Shots, Levitra and Cialis, Edex, Trimix starter, medium, strong with poor results. VED is a last resort.

bldoink
Posts: 1269
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: Baffled

Postby bldoink » Mon Jun 10, 2019 3:09 pm

Not medical advice. I'm unqualified to give any. Always consult a doctor and follow his/her advice.

Alpha,
Yeah, that's a lot of juice at that strength. Sorry it isn't working out for you.

Robert,
It sounds like your only real option left with the injections is trying the cock ring too. Maybe it'll give you passable results. You can go a good bit higher volume on the meds and probably stronger too but with the pattern you're getting I'm guessing your problem is also a bad leak. So if a good cock ring doesn't do it I don't know of any other injection options.
R.R.P 2011 Mayo Jacksonville by Dr. Michael Wehle. Nerve sparing - damaged. V.E.D, Viagra and Alprostadil (80mcg/ml) injections @ ~ 12 units. Originally Edex20. Switched to compounded Alprostadil - cost. Injecting ~ 8 yrs. It works. Treasure coast of FL.

antelope
Posts: 1445
Joined: Sun Nov 14, 2010 3:17 am
Location: Baton Rouge

Re: Baffled

Postby antelope » Mon Jun 10, 2019 5:11 pm

Robert,

I am not a medical professional; nor do I play one on TV.

Anecdotal evidence suggests you may have a venous leak. Ask your uro to test for that.

Here's to hard times.
Born 1948, married 1969. BPH & Type II Diabetes at age 35. TURP-2002; Some ED even before that. Cardiac valve surgery-2007. ED from diabetes. Poor results with pills. Started trimix injections in Nov, 2010. Great results from the very beginning.

Cigar56
Posts: 570
Joined: Fri Aug 15, 2014 10:56 am

Re: Baffled

Postby Cigar56 » Wed Jun 12, 2019 8:26 am

alfa88 wrote:Okay I'll bite. I've pretty much paralleled your timeline(~ 1 year now) . I'm up to a 60/30/3 formula and tried 100 units last night(50 per side). I used a Lyps cock ring around the balls and dick and almost had success laying down but once I tried entering went limp. Stood up, lubed up and had wifey scoot to the edge of the mattress. Finally got some semblance of intercourse. Afterwards my poor dick felt like I had squeezed it in a vice for ,like, an hour. At least sitting down, feet up the pressure eased. At 100 units this routine is getting expensive. Not only that but my Uro. says this is the highest strength the pharmacy makes. At this rate it looks like it's back to a VED until I can get Medicare to help pay for an implant. Bottom line - venous leak. :x


I am using a 100/30/3 formula -- so you still have a ways to go before you max out on that 60/30/3 strength. Olympia Pharmacy in Orlando, and Coastal Compounding Pharmacy, in West Palm Beach, will mix at 100/30/3. Empower Pharmacy, in Houston, will go as high as 130/30/3. There are other pharmacies that will mix the more powerful blends, but it's a matter of whether they are licensed to ship to your state. Consider checking with those pharmacies about cost compared to your current formula and if they can ship- to your state. If the cost is affordable and they can ship to you, then go back to your doctor and tell him you want to try the stronger mix.

The one thing I have learned in this journey is that as the paitient you have to study, learn and keep pushing your doctor to find a solution that works for you. Trimix is such a small portion of most urologist's business and as a result, frankly, a lot of them don't know how to treat some paitents using injections.

Some of us here -- includng me -- use a combination therapy. We combine pills with the injections. Warning: I am not a doctor and the use of Cialis, Viagra or other pills or other ED drugs while using Trimix is strictly forbidden by most medical professionals.

Combining the drugs could lead to a severe case of priapism --an erection lasting more than four hours.

Despite those warnings some of us on this board successfully combine say, daily Cialis, along with the injections. In my case, as I have said so often here, I don't think I could develop priapism even if I tried. My ED is that severe. But with the higher strength Trimix and the Cialis I am getting some usable results.

Good luck to you in your journey. Don't give up on erections until you have have had a try at that 100/30/3 formula.
62. Was under "active surveillance" for prostate cancer. Scheduled for prostate radiation -- Stereotactic Body Radiotherapy (SBRT) -- July 2019. Using pills and injections but not satisfied. Moving on to an implant via Medicare in 2022.

Robert51
Posts: 210
Joined: Thu Dec 28, 2017 10:39 pm

Re: Baffled

Postby Robert51 » Wed Jun 12, 2019 9:13 am

Cigar56 wrote:
alfa88 wrote:Okay I'll bite. I've pretty much paralleled your timeline(~ 1 year now) . I'm up to a 60/30/3 formula and tried 100 units last night(50 per side). I used a Lyps cock ring around the balls and dick and almost had success laying down but once I tried entering went limp. Stood up, lubed up and had wifey scoot to the edge of the mattress. Finally got some semblance of intercourse. Afterwards my poor dick felt like I had squeezed it in a vice for ,like, an hour. At least sitting down, feet up the pressure eased. At 100 units this routine is getting expensive. Not only that but my Uro. says this is the highest strength the pharmacy makes. At this rate it looks like it's back to a VED until I can get Medicare to help pay for an implant. Bottom line - venous leak. :x


I am using a 100/30/3 formula -- so you still have a ways to go before you max out on that 60/30/3 strength. Olympia Pharmacy in Orlando, and Coastal Compounding Pharmacy, in West Palm Beach, will mix at 100/30/3. Empower Pharmacy, in Houston, will go as high as 130/30/3. There are other pharmacies that will mix the more powerful blends, but it's a matter of whether they are licensed to ship to your state. Consider checking with those pharmacies about cost compared to your current formula and if they can ship- to your state. If the cost is affordable and they can ship to you, then go back to your doctor and tell him you want to try the stronger mix.

The one thing I have learned in this journey is that as the paitient you have to study, learn and keep pushing your doctor to find a solution that works for you. Trimix is such a small portion of most urologist's business and as a result, frankly, a lot of them don't know how to treat some paitents using injections.

Some of us here -- includng me -- use a combination therapy. We combine pills with the injections. Warning: I am not a doctor and the use of Cialis, Viagra or other pills or other ED drugs while using Trimix is strictly forbidden by most medical professionals.

Combining the drugs could lead to a severe case of priapism --an erection lasting more than four hours.

Despite those warnings some of us on this board successfully combine say, daily Cialis, along with the injections. In my case, as I have said so often here, I don't think I could develop priapism even if I tried. My ED is that severe. But with the higher strength Trimix and the Cialis I am getting some usable results.

Good luck to you in your journey. Don't give up on erections until you have have had a try at that 100/30/3 formula.





Well i feel better now here i am at 35 units of 17/17/0.58 with this starter mix 100units will be low compared to these mixes. My doctor seems to think this mix is pretty strong the strongest one he has i think is a 45/1 /20
66 years old married 14 years on my 3rd wife /////// had a major operation at 51 hernia below belly bottom ed got really bad after that .. Tried pills not much and side affects.. trying alprostadil without a lot of success but only 3rd time

bldoink
Posts: 1269
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: Baffled

Postby bldoink » Wed Jun 12, 2019 5:44 pm

^^Good post Cigar^^
R.R.P 2011 Mayo Jacksonville by Dr. Michael Wehle. Nerve sparing - damaged. V.E.D, Viagra and Alprostadil (80mcg/ml) injections @ ~ 12 units. Originally Edex20. Switched to compounded Alprostadil - cost. Injecting ~ 8 yrs. It works. Treasure coast of FL.


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