UK Users - Specialist Examination

Sticking a needle Where? Courage, guidance and help.
rich2222
Posts: 46
Joined: Fri Oct 18, 2013 12:28 am
Location: Bristol, UK

UK Users - Specialist Examination

Postby rich2222 » Sat Aug 25, 2018 9:34 am

I am a UK user of Invicorp (aviptadil/phentolamine mesilate) prescribed under the NHS since June of this year.
I was originally prescribed Alprostadil (Caverject / Viridal) in January but found the pain was too much, and was referred by my Specialist Nurse to a Consultant who prescribed Invicorp.

A few weeks ago I had an NHS Urology appointment to follow up on Invicorp.
I was expecting to see the original Consultant, but unfortunately the Registrar that I saw was probably less well-informed than I am about Inter-Cavernosal injections (for the benefit of non UK members, a Registrar in the UK is an NHS Doctor who is who is receiving advanced training in a specialist field of medicine in order to eventually become a Consultant).

When I started injections, I was examined by my Specialist Nurse, and she said that I would have another examination after 6 months, to check for fibrosis / scarring etc.

When I spoke to the Registrar about this follow-up examination, he said that that was not routinely done, and therefore he was not going to examine me. Based on what he said, it sounds like I am responsible for checking myself for any signs of plaque, or scarring.

After he confirmed that the injections were working, he said that I would not need to visit Urology again, and if I had any further problems, I should go to my GP.

Unfortunately, I no longer have access to the original Specialist Nurse, so I can't go back to her.

My question is to other members in the UK who have started to use injections (not specifically Invicorp).

    1) Were you given an initial examination before you started injections?
    2) Did you have any kind of follow-up examination? If so, by who and at what frequency?

Based on what the Registrar said, it sound like I am responsible for checking myself for any signs of plaque, or scarring.

I would like to know whether the Registrar's answer was wrong in the light of other users' experiences.

I would also like to know what I should be looking for if I am going to be self-checking.


I am a frequent user, but I am scrupulous about rotating through 20 different injection sites.
66 yrs old
Hypergonadism (Nebido Injections since 2016)
T2 Diabetes
Initially Tadalafil. Then Alprostadil early 2018, but painful!. Now using Invicorp 3x weekly with great success)
Happy to share experiences of the journey. Message me if you want to talk.

tomas1
Posts: 1946
Joined: Tue Jul 23, 2013 5:12 pm
Location: Tempe, AZ

Re: UK Users - Specialist Examination

Postby tomas1 » Sat Aug 25, 2018 11:30 am

I'm obviously not in the UK but have been injecting 5 years.

My Uro never checked out my penis until last month.
I think he did it to show off for 2 female interns I had agreed to allow at my appointment.
He felt things and said it felt normal.

Maybe it's simply OK for you to monitor things yourself and feel for things like unnatural lumps and bends.
85 years
Inject testosterone weekly.
Implant on 1/22/19 by Dr Avila.
Scrotal, hor. incision just over 1"
18cm AMS 700 CX, 3.5cm RTE 100cc res
Gleason 6 prostate cancer. Monitoring it for now.
Update: On my last biopsies the cancer wasn't found.

willywonky
Posts: 5
Joined: Thu Sep 06, 2018 1:31 pm
Location: Cheshire, England.

Re: UK Users - Specialist Examination

Postby willywonky » Sat Sep 08, 2018 6:34 pm

Hi Rich

I have been injecting Caverject for 2+ years now.

1) Were you given an initial examination before you started injections?
I had an initial exam by my specialist nurse followed by being taught how to inject and carry out my first injection, that was the only physical interaction with a medical professional regarding injections,

2) Did you have any kind of follow-up examination? If so, by who and at what frequency?
The follow up visit was just a discussion around dosing levels and a quick question over how easy I found it to do

This seems to be the norm in the UK but to be honest I don't have a problem with it. I check myself for lumps regularly and if I were to experience problems I would be on the phone like a rocket.

I wonder how you are doing with the Invicorp? I am currently waiting for my doctor to receive the ok to change my Caverject to Invicorp as the Caverject can leave me feeling as if i have been kicked in the nether regions by a small elephant.

Mike
64 Years old, Married 41 Yrs. Cheshire England.
RALP 09/15, Gleason Score 9 (4+5) Lymph nodes free of tumor. pT3a. pN0.
Salvage RT 01/17. PSA now .33 and rising under 3 monthly review. No nerves spared, currently using Caverject and VED to treat ED.

JonrUK
Posts: 21
Joined: Thu Dec 21, 2017 1:38 pm

Re: UK Users - Specialist Examination

Postby JonrUK » Sun Sep 09, 2018 1:00 am

Check your PM inbox
65 years old
ED since 2012 ((Type 2 Diabetes)
Injecting
UK member


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