We need your questions

Sticking a needle Where? Courage, guidance and help.
BelleBite
Posts: 60
Joined: Fri Jun 10, 2022 10:40 pm
Location: New York City

Re: We need your questions

Postby BelleBite » Sun Nov 24, 2024 8:30 pm

[quote="billbillbill" Thanks again for organizing the site. I’d gladly donate if I could find the ‘Donate’ button.[/quote]

billbillbill - The DONATE button is at the top of the screen; just click it and follow the instructions. :)
72 radical prostatectomy surgery at MSKCC. Implanted Nov 2023 w/Dr Eid. Titan Coloplast.

EasyEd2
Posts: 3
Joined: Tue May 27, 2025 6:59 pm

Re: We need your questions

Postby EasyEd2 » Wed Jul 30, 2025 9:58 pm

My biggest frustration is that the first doc I went with to get Trimix, did not know that alprostadil cannot be tolerated by roughly 20% of men. This led to months of experimentation, never being able to find a dose of Trimix that worked well, having painful erections and priapisms (3 trips to the ER). I finally went to another doc who immediately knew that I needed to get on a special Trimix recipe with very low alprostadil, or Bimix. I am now on Bimix. I imagine a custom Trimix recipe with very low alprostadil would be costly, so I am committed to making Bimix work.

I don't know if my response to Trimix had anything to do with my medical condition. I am on aggressive ADT for metastatic prostate cancer, so there is virtually no testosterone in my body until I finish 2 years on ADT.


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