Diagnosed with venous leakage, supposed to undergo surgery in about a month

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medit4tive
Posts: 1
Joined: Thu Jun 30, 2022 5:47 pm

Diagnosed with venous leakage, supposed to undergo surgery in about a month

Postby medit4tive » Wed Feb 22, 2023 5:15 pm

Hi everyone, first submission here, I hope I’m posting it in the right place.

So after years of struggling I finally managed to get myself properly checked by a doctor. He diagnosed me with a severe case of venous leakage after checking me with a doppler (genetic vascular anomaly as most probable cause). He recommended surgery right away, a so called DPVL (dorsale penile vein ligation). He said he performed this kind of surgery thousands of times, that he sometimes had to repeat it once, but never twice.

Now, hearing him talk I should be good to go after surgery. But what I read around ranges from disheartening (success rate of about 55% in optimal conditions, though the paper is from 2003) to downright terrifying (“Perioperative complications include wound infection, penile curvature, skin necrosis, painful erections, postoperative shortening of the penis, penile deformity, transient or irreversible numbness, lymphedema, and ligation of the penile artery by error”, I mean holy shit). Most of the stuff I read online seems to point to the fact that this kind of surgery seemed promising at the beginning, but it has been now abandoned in favor of “other treatments” (penile implants being about the only one I was able to find).

Has someone in here undergone this kind of surgery? Or has had the same diagnosis and has been advised against it by his doctor? Is there anyone that managed to fix his venous leakage somehow? Any experience to share at all?

I got my appointment in about a month, and I’m really torn if I should do it or not. Worried it might do more damage than good. Pretty scared overall. I’m 39 and otherwise healthy.

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bldoink
Posts: 3686
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: Diagnosed with venous leakage, supposed to undergo surgery in about a month

Postby bldoink » Wed Feb 22, 2023 5:32 pm

Welcome to the forum.

I have no knowledge on the subject but I think I've only ever seen one positive post on the procedure here on this forum.
R.R.P 2011 Mayo Jacksonville, Dr. Michael Wehle. Nerve sparing - badly damaged. C in margin. V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ ~ 14 units. Originally Edex20, then compounded PGE-1 - cost. Inject. 10+ yrs. It works. Treasure coast of FL.

BillKeel
Posts: 13
Joined: Sun Feb 19, 2023 9:50 pm

Re: Diagnosed with venous leakage, supposed to undergo surgery in about a month

Postby BillKeel » Wed Feb 22, 2023 8:03 pm

I'm about your age, and going through similar issues. I'm currently trying to find a good urologist who can order me a doppler ultrasound to diagnose/rule out venous leak. If I were in your situation, and offered that surgery, I would probably go see another urologist from a different office. A second opinion might help, because like you said, you don't want to make a bad situation worse. More information might help you make a better informed decision.
ED since 15 yrs or earlier.
Currently around 38 yrs.
Anxiety/Depression over ED.
Cialis 5mg daily, more when needed.
Considering implant as last effort.

Zwinny
Posts: 18
Joined: Sat Feb 26, 2022 6:09 am

Re: Diagnosed with venous leakage, supposed to undergo surgery in about a month

Postby Zwinny » Thu Feb 23, 2023 2:51 pm

I've only heard positive things about embolization, but never about ligation

crazyjoe
Posts: 553
Joined: Thu Feb 18, 2021 4:22 pm

Re: Diagnosed with venous leakage, supposed to undergo surgery in about a month

Postby crazyjoe » Sat Feb 25, 2023 11:57 am

I might sound like a shill for implants, but is that something you might consider? I had pretty serious venous leakage and of course the implant took care of that for good!
Just my very non-medical view fwiw.
75, used pills, injections -- all lost effectiveness. Titan implanted by Eid in Feb '22.

s7utty
Posts: 179
Joined: Thu May 19, 2022 6:09 am

Re: Diagnosed with venous leakage, supposed to undergo surgery in about a month

Postby s7utty » Wed Mar 08, 2023 9:15 am

medit4tive wrote:Hi everyone, first submission here, I hope I’m posting it in the right place.

So after years of struggling I finally managed to get myself properly checked by a doctor. He diagnosed me with a severe case of venous leakage after checking me with a doppler (genetic vascular anomaly as most probable cause). He recommended surgery right away, a so called DPVL (dorsale penile vein ligation). He said he performed this kind of surgery thousands of times, that he sometimes had to repeat it once, but never twice.

Now, hearing him talk I should be good to go after surgery. But what I read around ranges from disheartening (success rate of about 55% in optimal conditions, though the paper is from 2003) to downright terrifying (“Perioperative complications include wound infection, penile curvature, skin necrosis, painful erections, postoperative shortening of the penis, penile deformity, transient or irreversible numbness, lymphedema, and ligation of the penile artery by error”, I mean holy shit). Most of the stuff I read online seems to point to the fact that this kind of surgery seemed promising at the beginning, but it has been now abandoned in favor of “other treatments” (penile implants being about the only one I was able to find).

Has someone in here undergone this kind of surgery? Or has had the same diagnosis and has been advised against it by his doctor? Is there anyone that managed to fix his venous leakage somehow? Any experience to share at all?

I got my appointment in about a month, and I’m really torn if I should do it or not. Worried it might do more damage than good. Pretty scared overall. I’m 39 and otherwise healthy.



How old are you ? Are you able to achieve erections and have penetrative sex at all ? Even for short amount of time ? Are you able to do it without PDE5 pills ?

And how does erection and intercourse looks like sober and with assistance of PDE5 ?
28 years old. some form of ED always with me entire life.
///
19th May 22' - doppler, 10mcg PGE1, good inflow, terrible outflow (EDV) of 15cm/s.
Currently about to visit Paris to dr Allaire seeking for further help.

AntonS
Posts: 19
Joined: Wed Mar 15, 2023 3:47 pm

Re: Diagnosed with venous leakage, supposed to undergo surgery in about a month

Postby AntonS » Tue Mar 28, 2023 7:14 am

medit4tive wrote:Hi everyone, first submission here, I hope I’m posting it in the right place.

So after years of struggling I finally managed to get myself properly checked by a doctor. He diagnosed me with a severe case of venous leakage after checking me with a doppler (genetic vascular anomaly as most probable cause). He recommended surgery right away, a so called DPVL (dorsale penile vein ligation). He said he performed this kind of surgery thousands of times, that he sometimes had to repeat it once, but never twice.

Now, hearing him talk I should be good to go after surgery. But what I read around ranges from disheartening (success rate of about 55% in optimal conditions, though the paper is from 2003) to downright terrifying (“Perioperative complications include wound infection, penile curvature, skin necrosis, painful erections, postoperative shortening of the penis, penile deformity, transient or irreversible numbness, lymphedema, and ligation of the penile artery by error”, I mean holy shit). Most of the stuff I read online seems to point to the fact that this kind of surgery seemed promising at the beginning, but it has been now abandoned in favor of “other treatments” (penile implants being about the only one I was able to find).

Has someone in here undergone this kind of surgery? Or has had the same diagnosis and has been advised against it by his doctor? Is there anyone that managed to fix his venous leakage somehow? Any experience to share at all?

I got my appointment in about a month, and I’m really torn if I should do it or not. Worried it might do more damage than good. Pretty scared overall. I’m 39 and otherwise healthy.

do not under any circumstances perform this operation. it will only get worse!
this operation brought terrible complications and ruined my life

otter17
Posts: 36
Joined: Sun Aug 11, 2013 8:16 pm

Re: Diagnosed with venous leakage, supposed to undergo surgery in about a month

Postby otter17 » Tue Mar 28, 2023 8:31 pm

I agree with what everyone else has written above. Penile vein ligation has been out of fashion for 20 years, because it doesn't work, and exposes you to unnecessary surgical complications, including penile scarring and shortening. At the very least please get a second opinion before proceeding.
40 y/o straight married guy with supportive wife. Slowly progressive ED from venous leak since adolescence. Pills were a godsend for years, now as the efficacy fades, I am wading into the land of injections and implant

Randalltx
Posts: 163
Joined: Sun Jan 01, 2023 4:27 pm
Location: Texas - Austin/San Antonio

Re: Diagnosed with venous leakage, supposed to undergo surgery in about a month

Postby Randalltx » Tue Mar 28, 2023 8:43 pm

I just had implant from not being able to hold an erection. Not entirely true, I could get and keep an erection but not strong enough for penetration, only for manual/oral play. I just started cycling and I can tell you that my penis feels pretty much the same as back in the good old days. It reminds me of my hip replacement it is all I thought about for awhile, now it is just my hip. Lets me walk lets me dance, crouch, crawl, all that stuff.

Same with my penis. I can see after only a few days how it is pretty much the same penis I had years ago. We are using it tonight and my wife can't wait. Also, I went from shower to grower with the surgery and I do not mind the bulge at all.

Good luck whatever you decide, but my doctors impressed on me how important it was to get an implant correctly installed. It was the only thing that actually works to fix ED permanently if you cannot hold an erection, regardless of the cause. My doctors did not diagnose me, they just fixed it. I will take that any day. 98% patient satisfaction? Why swim upstream?
76yo, ED Venuous Leak since age 40. South Texas location.
02/09/2023 24 CM Titan Dr. Hofer, Stone Oak Meth San Antonio.
@OEM 7.5L x 6.0/Flaccid 2.0L x 6.0 (Grower)
@5 months 6.50L x 6.0/Flaccid 6.0L x 6.0
@8 months 7.50L x 6.0/Flaccid 6.0L x 6.0

s7utty
Posts: 179
Joined: Thu May 19, 2022 6:09 am

Re: Diagnosed with venous leakage, supposed to undergo surgery in about a month

Postby s7utty » Tue Mar 28, 2023 9:02 pm

otter17 wrote:I agree with what everyone else has written above. Penile vein ligation has been out of fashion for 20 years, because it doesn't work, and exposes you to unnecessary surgical complications, including penile scarring and shortening. At the very least please get a second opinion before proceeding.



What is your opinion on embolization ? Is it worth checking ?
After hearing gollam story im terrified when it comes to any kind of operations.
28 years old. some form of ED always with me entire life.
///
19th May 22' - doppler, 10mcg PGE1, good inflow, terrible outflow (EDV) of 15cm/s.
Currently about to visit Paris to dr Allaire seeking for further help.


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