I Have Prostate Cancer

Anything goes when it comes to ED.
DaveKell
Posts: 531
Joined: Tue Sep 04, 2012 7:39 pm
Location: Texas

I Have Prostate Cancer

Postby DaveKell » Mon Oct 21, 2019 12:24 pm

I just accessed my prostate biopsy from last week online. I have a Gleason score of 6 (3+3). Of course I immediately googled that and am somewhat confused by the information I found. One thing I think I've determined is they have no idea whether a low risk cancer can quickly become something more serious. So, I won't officially find out my urologist's recommendation for treatment until my appointment next week. I'm interested in thoughts from you who've been through this.
Became DaveKell 2.0 on July 18th with Dr. Allen Morey in Dallas, TX. AMS 700 CX implant. 18cm with 5.5 RTE's.

mikestap
Posts: 172
Joined: Sat Sep 01, 2012 12:19 pm
Location: Atlanta, GA

Re: I Have Prostate Cancer

Postby mikestap » Mon Oct 21, 2019 12:59 pm

Dave,
I had a steadily rising PSA for over ten years when at age 53, it spiked to over 6.0 and bounced around over 4.0 for a few months. My doc advised on getting a biopsy, which I did and it came back at Gleason 3+3. My age appeared to have suggested that watchful waiting was not the recommended course. I went to Johns Hopkins, the mecca, if not one of the meccas for prostate cancer treatment, and the doc told me that even the radio-oncologists at JHUH would advise on surgery.

I ultimately lost my natural and pharmaceutically-induced erectile functionality, but am super happy with my implant.

Your age and the assessment of the cancer's aggressiveness will direct much of your doc's advice.

I will tell you that my brother a year younger than I was diagnosed with low-risk cancer AFTER my experience. He did not move aggressively and he is just finishing up radiation hormone therapy after his RALP. This has been a tough road for him.

Praying for you Dave.
Mike
64 Years. RALP 2013. Received 22cm Titan Dec 20, 2017 by Dr Hakky. See results at download/file.php?id=5320 and download/file.php?id=4754
Revision 3-25-21 24 cm XL No RTE

tomas1
Posts: 1946
Joined: Tue Jul 23, 2013 5:12 pm
Location: Tempe, AZ

Re: I Have Prostate Cancer

Postby tomas1 » Mon Oct 21, 2019 6:20 pm

Dave, as you may know already, I have exactly the same diagnosis as you.
My course of action is to stop the testosterone injections, monitor the PSA every 6 months, and get more biopsies in 18 months.

I'm sure all urologists have different plans of attack and maybe my age affected mine?
85 years
Inject testosterone weekly.
Implant on 1/22/19 by Dr Avila.
Scrotal, hor. incision just over 1"
18cm AMS 700 CX, 3.5cm RTE 100cc res
Gleason 6 prostate cancer. Monitoring it for now.
Update: On my last biopsies the cancer wasn't found.

User avatar
bldoink
Posts: 3686
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: I Have Prostate Cancer

Postby bldoink » Mon Oct 21, 2019 8:36 pm

Whatever it is you'll get through this and come out fine on the other side. Chin up!
R.R.P 2011 Mayo Jacksonville, Dr. Michael Wehle. Nerve sparing - badly damaged. C in margin. V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ ~ 14 units. Originally Edex20, then compounded PGE-1 - cost. Inject. 10+ yrs. It works. Treasure coast of FL.

Whodat
Posts: 115
Joined: Thu Aug 08, 2019 11:21 pm

Re: I Have Prostate Cancer

Postby Whodat » Tue Oct 22, 2019 12:21 am

Dave, depending on your age what path you might take. If older the longer you can wait. However in any case I would choose active surveillance with PSA and digital exam every three months. Surgery, radiation, seeds, and freezing are all undesirable life changing moments.
Age 80 good health. Radiation prostate 28 hits 4 years ago with 6 months of horrible ADT. Good recovery and ED worse.
Can't tolerate oral drugs but 5 years of Alprostadil 40mcg/ml 25 units is a miracle for 3 hours. GF is happy!!

ftwabeck3533
Posts: 163
Joined: Sat Jun 22, 2019 3:21 pm
Location: South Alabama
Contact:

Re: I Have Prostate Cancer

Postby ftwabeck3533 » Tue Oct 22, 2019 1:41 pm

You have time to research all the options, and then you will choose the course of action which is best for you. I offer two additional sources of information on-line which I track on a daily basis (1) HealthUnlocked.com/Malecare (2) Inspire.com.

All these sites have their own culture and are very informative, for the reason this one is -- we're here to help each other.
Born 1955, Erectile Dysfunction, Robotic Prostatectomy (Oct 2018, Dr Bugg @ UCA, Birmingham, AL), PSA<0.007, Trimix User (30 mg Papaverine HCL, 1 mg Phentolamine MES, 10 mcg Alprostadil per 1 ML. My dose is 0.16 ML)

silver daddy 1960
Posts: 201
Joined: Tue Jul 30, 2019 6:53 pm

Re: I Have Prostate Cancer

Postby silver daddy 1960 » Tue Oct 22, 2019 5:52 pm

Hi Dave,

That's one of the tremendous things about Frank Talk, others to talk to who are open and honest. My story is very much like Mikestap. Found when I was 51 after 10 years of PSA observation, and removed at 52. The Doctor said removal was the best course due to age. At my young for prostate cancer age there was no one else who I knew that had or was having prostate issues. I did the research and meet the doctors in a daze. Make sure you have someone to share everything going through your head right now. It is a very weird time and I wished I had immediate thought to find counseling. You can PM me anytime if you want to talk.

Be thinking and praying for you

Silver Daddy
63 yrs old, NYC, DR. Eid Titan Coloplast Dec 10, 2021

Greg1956
Posts: 1736
Joined: Sun Aug 06, 2017 8:35 am
Location: Atlanta, GA USA

Re: I Have Prostate Cancer

Postby Greg1956 » Wed Oct 23, 2019 6:16 am

Dave,
Many of us have been down this road, but our trips are all a bit different. When I was diagnosed at age 58 I had the biopsies taken. Several of the malignant one were considered aggressive and I was advised not to take the common wait and see approach. I had a robotic Prostatectomy. It was considered a successful surgery but after two years the cancer was growing in the surrounding tissue so I had 9 weeks of radiation treatments to get rid of it. Perhaps immediate radiation at the time of the surgery would have been the way to go, but it did not appear necessary at that time.

Best wishes to you.
I am 64 and had ED from a VL. Implanted by Dr. Ronald Anglade in Atlanta on 9/18/17. I have an AMS700LGX 21 cm via a Penoscrotal incision. Very happy with results. 6" soft and 6 3/4” x 5 5/8” hard.

Flavio
Posts: 889
Joined: Wed May 19, 2010 4:56 am

Re: I Have Prostate Cancer

Postby Flavio » Wed Oct 23, 2019 2:57 pm

We wish you all the best, stay strong. Keep us posted on your progress.
Age 40. Psychogenic ED for over 20 years. Current regimen: Udenafil 200 mg, oral phentolamine mesylate 40 mg, Seredyn.

LMCatman
Posts: 1006
Joined: Wed May 08, 2013 11:11 am
Location: South Florida, USA

Re: I Have Prostate Cancer

Postby LMCatman » Fri Oct 25, 2019 7:07 pm

I went from no (detectable) cancer to an aggressive cancer in a little over a year. DO NOT SKIP YOUR ANNUAL PHYSICAL. I am alive today (9 years later) because my annual physical came back with "high PSA".......follow up, biopsy: yes, you have prostate cancer.

Upon confirmed diagnosis, I went out to my truck and sat and cried. I'm gonna die!

I had a robotic prostatectomy and radiation, recovered quickly, lived with a limp dick for 2.5 years. Went the implant route.

Wait til you see your doctor.

Synopsis: it's 9 years later and I AM ALIVE!!!!!! Good luck man!
73 Years old. RP Oct 2010, No erections after, Botched Titan implant April, 2013, Successful Titan revision, April , 2014 by Dr. Paul Perito, Miami. Titan failure Feb 2017. Rev. by Dr Perito March 1st, 2017. Titan failure Nov 2020. New Titan January 2021


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