Patient Advocates needed

Anything goes when it comes to ED.

Moderator: Larry10625

Frank Talk Admin
Site Admin
Posts: 469
Joined: Mon May 18, 2009 11:06 am
Location: NYC

Patient Advocates needed

Postby Frank Talk Admin » Fri Jan 04, 2019 11:56 am

Guys,
The American Urological Association is looking for a few men who are willing to sit on panels and represent the patient experience when it come to two specific topics. There will be financial help getting to these meetings.
They are: Premature Ejaculation and Priapism. They are looking for men who are struggling with premature ejaculation on a consistent basis. Ideally, the man will have found a workable solution.
the Priapism position would be best filled by a man who has had more than one priapism and is familiar with treatments and protocol.
Both of these positions need men who will ultimately advocate for men who are suffering from these conditions. They are looking for someone who has good communication skills and compassion.

If you are interested, please respond to this post and you will be contacted!

thank you!

Paul

Frank Talk Admin
Site Admin
Posts: 469
Joined: Mon May 18, 2009 11:06 am
Location: NYC

Re: Patient Advocates needed

Postby Frank Talk Admin » Wed Jan 09, 2019 12:46 pm

Is there anyone who has premature ejaculation who is willing to help out?
No priapism guys?

This involves telling doctors what they need to know about the patient experience.

Paul

bldoink
Posts: 996
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: Patient Advocates needed

Postby bldoink » Wed Jan 09, 2019 1:09 pm

No PE.
No priapism for which I sought medical intervention. Some I should have according to the guidelines. Sorry!
R.R.P 2011 Mayo Jacksonville by Dr. Michael Wehle. Nerve sparing but damaged. V.E.D, Viagra and Alprostadil manually injected. Originally Edex20. Switched to Alprostadil from compounding pharmacy - cost. Injecting 5-6 yrs. It works. Treasure coast of FL.

DaveKell
Posts: 345
Joined: Tue Sep 04, 2012 7:39 pm
Location: Texas

Re: Patient Advocates needed

Postby DaveKell » Wed Jan 09, 2019 2:15 pm

Kind of surprising given the number of comments in this forum about PE. I have no idea if I'm qualified for what they're wanting but I'm definitely available if I am. I had lifelong PE that meant I was always literally a 2 pump chump. Perfectly willing to talk about it with anyone interested in listening. I was beyond elated to find after being implanted that the PE never happened again. The story I've repeated a few times on FT is that I am the only man my wife of 40 years has been with. She never had any idea I had PE because our sex life is what became normal for her. I'll never forget during sex after being implanted how mid stream she blurted out "are you ever going to cum?". To which she quickly added "but I'm not complaining!". During my late teens all the way up to age 26 when I got married my PE directly caused many subsequent sexual encounters to not happen. Girls, with the exception of the needy ones who fell in love with me promptly, just weren't interested in a guy who was done in 10 seconds. It frustrated me as well because there were many beautiful women I would have liked to have remember time with me as fulfilling for them. It never happened. I actually went through a number of those years thinking I was normal and all guys were like me. That continued until a good friend told me he had it so bad he usually couldn't get inside a woman before cumming all over their belly. This cost him the ultimate love of his life at the time who was thoroughly disgusted after finally deciding to have sex with him. I'm available if I qualify.
Became DaveKell 2.0 on July 18th with Dr. Allen Morey in Dallas, TX. AMS 700 CX implant. 18cm with 5.5 RTE's.

alfa88
Posts: 86
Joined: Sat Jun 30, 2018 2:59 pm
Location: North of Gilligan's Island

Re: Patient Advocates needed

Postby alfa88 » Wed Jan 09, 2019 5:31 pm

Ideally, the man will have found a workable solution.

I'm still looking for a solution. I'm hoping once I find a suitable injection formula/dose that takes the pressure, so to speak, off the situation. :|
53 years old, married 32 years. Lifetime ED & PE. Tried Viagra W & W/O T-Shots, Levitra and Cialis, Edex with poor results. VED is a last resort.


Return to “General Discussion”

Who is online

Users browsing this forum: No registered users and 3 guests