Possibility of fake Venous Leak ?

Anything goes when it comes to ED.
s7utty
Posts: 179
Joined: Thu May 19, 2022 6:09 am

Possibility of fake Venous Leak ?

Postby s7utty » Fri Jun 03, 2022 6:50 am

Diagnose:

Currently I was diagonsed with Venous Leak with max EDV of 17 at some point. My PSV in flaccid was 17 on left and 25 on right.
I''m having Cavernosography next Thursday (09.06) which im super afraid of :(

Fun fact: My reaction to 10mg Alprostadil was weird. I had weaker erection than i had 2 days before USD and i wasnt using even pills as I had break from them. I had normal firm erection that lasted enough to have PiV sex. Also im receiving much better erections from pills than i had from injection.

Introduction about me and my case:

Hello everyone.
Im 26 years old. Im suffering from ED since i remember.
I had 2 surgeries on my penis done. One in 2011 when i was 16 - it was hypospadias, very slight one, namely my urethera was like 0,5cm lower than it should be. Next in 2020 when i was operated for extending my urethea hole (I was informed about need to do it even in 2011, doc told me my penile will be growing including my penile glans so my hole will get smaller).
My bloodworks are good in general especially for person who is not moving at all, have remote IT job, have never attended sport gym class in school etc. Only thing i got often elevated is prolactin, my total T is around 450-500. I think i might have silent hypothyroidism as my TSH is always >3(FT3 and FT4 are okay). Also I got super little semen amount that is not liquid but more like thick sticky jelly lumps + water and its another sign of unhealed hypothyroidism. Also I do have high LH >7.5

Last year I met girl that i spent last 8 months(currently i lifed our relationship as my ED drives me mad and im super anxious about it and not only im generally anxious). I was told by her as she have her kid, she had 20+ partners, was even in threesomes - well she is just experienced.
I didnt told her about my ED problems and we spent like first 5 months having sex 2-3 times per day. In this time i was hiding with popping 10mg tadalafil daily(didnt know at beginning that lower dose will be also ok) + 50mg viagra when needed but rarely maybe 10-12 times. Finally I decieded to tell her about my issues and she accepted that and it wasnt good decision actually. All started with going to Penile USD that came positive... She was like ok lets try without pills, she was very supportive she was interested in my case and wanted to help. We started to lowering my doses, replacing with more natural stuff (Arginine) and my anxiety started to grow as I've seen im happening to fail more often...

The heart of the matter and topic:

Before I go to my cavernosography.... I wanted to ask and make sure, is it truely possible that I might have fake venous leak diagnosis ?
My new doctor who is very smart guy one of the best doctors in my country said - If you are responding to 5-10mg cialis there is no chance this diagnose could be good, especially with such high EDV that came as result from my penile USD.
I'm very nervous about my cavernosography and im super anxious praying to god to get some other issue than venous leak :(
I'd be grateful if someone could tell me also how cavernosography look like, is it painfull, how long does it last, will i be put in general sleep?

IMAGES FROM MY DOPPLER:
Image
Image
Image
Image
Image
28 years old. some form of ED always with me entire life.
///
19th May 22' - doppler, 10mcg PGE1, good inflow, terrible outflow (EDV) of 15cm/s.
Currently about to visit Paris to dr Allaire seeking for further help.

User avatar
bldoink
Posts: 3751
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: Possibility of fake Venous Leak ?

Postby bldoink » Fri Jun 03, 2022 9:45 am

Welcome to the forum.
I'm not even remotely qualified to opine on most of your issues. My one comment is that you need to get off your butt and start getting some regular serious exercise.

Good luck.
R.R.P 2011 Mayo Jacksonville, Dr. M. Wehle. Nerve sparing - damaged. C in margin. Radiation 2023, V.E.D, Viagra and PGE-1 (80mcg/ml) injections @ ~ 14 units. Originally Edex20, then compounded PGE-1 - cost. Inject. 12 yrs. It works. Treasure coast of FL.

s7utty
Posts: 179
Joined: Thu May 19, 2022 6:09 am

Re: Possibility of fake Venous Leak ?

Postby s7utty » Fri Jun 03, 2022 10:16 am

bldoink wrote:Welcome to the forum.
I'm not even remotely qualified to opine on most of your issues. My one comment is that you need to get off your butt and start getting some regular serious exercise.

Good luck.


At the beginning I'd like to thanks for salute bldoink! and thanks for this comment. Yes after this breakup with my ex I moved back to my hometown. Here I have collegues that will help me introduce to gym. I cannot start it for my own - many factors are blocking me including my weak thyroid. I'm planning to launch levothyroxine and do some mix of cardio and lifting. Im planning to do gym 3-4 times a week now.
My veins are super weak maybe because I wasn't doing actually anything in my entire life. Also I got elevated cholesterol which is sign of thyroid problems but I cannot lie... I'm eating like pig - KFC, frozen pizzas, burgers with beef, mainly junky food.

I'd love and looking forward for some other opinions.
28 years old. some form of ED always with me entire life.
///
19th May 22' - doppler, 10mcg PGE1, good inflow, terrible outflow (EDV) of 15cm/s.
Currently about to visit Paris to dr Allaire seeking for further help.

s7utty
Posts: 179
Joined: Thu May 19, 2022 6:09 am

Re: Possibility of fake Venous Leak ?

Postby s7utty » Sun Jun 05, 2022 1:31 pm

anyone else with some knowledge ? ^^
28 years old. some form of ED always with me entire life.
///
19th May 22' - doppler, 10mcg PGE1, good inflow, terrible outflow (EDV) of 15cm/s.
Currently about to visit Paris to dr Allaire seeking for further help.

Fran4524
Posts: 193
Joined: Sun Dec 13, 2020 3:33 pm

Re: Possibility of fake Venous Leak ?

Postby Fran4524 » Mon Jun 13, 2022 5:56 am

You need to be in erect state to diagnosticate a venous leak. Doppler exam in flacid state cant show any leaks, because in flacid state the venoclusive mechanism isnt activated.
-1993
-Erection problems since 4 years
-I did jelqs and it is posible I injuried, but I hace to say that ED episodes began before I did jelq.
-Having sex with 30mg of tadalafilo


Return to “General Discussion”

Who is online

Users browsing this forum: sputnik and 30 guests