my Peyronies journey

[sogwap]

I've been an active member of FT for just over a year when I started using Trimix.

Earlier this year I got sick with Pneumonia and stopped all sex and injections for two months.
In February I awoke with an erection that had a noticeable upward curve and noticed I lost an inch in girth and an inch in length. WTF!
I made an appointment with my urologist but because he is in high demand it took three months to get an ultrasound to confirm I have PD (Peyronies Disease).
I was surprised he did not give me a full erection (with Trimix) and did not measure the size or degree of curvature.
He did inject a small dose of Trimix (3 units) in order to open the arteries and confirm that there is good blood flow into the penis.

He has offered Verapamil injection treatments. Which he said has a 70% success rate.
Xiaflex is not approved for use in Canada.

Currently, I am waiting for the treatment appointments, which are every two weeks for 6 to 10 sessions. (3 to 5 months)
My understanding is they numb the penis and then inject into the affected area with the medicine that is designed to break up any plaque.

I can still get an erection and sex is possible, but it has put a damper on our sex life. I am embarrassed by the loss in size, and my wife misses it too.

[Anonymous FT Member]

Any updates?

[sogwap]

Any updates?

I haven't started the injection treatments yet.

Earlier this month I saw several videos regarding PD. I got conflicting stories about different treatments. So I decided to put the Verapamil injection on pause.
When I saw my urologist. He said he's been doing urology for 29 years, yet seemed annoyed that I asked him questions. I want to find out how many men he has treated. My understanding is treatment success it largely dependent on the experience of the doctor. It takes well over a month just to get a phone consultation.

I have started using a VED twice daily which seems to help. However, it takes time to see any gains.

I continue to use Trimix for sex time with my wife. I also take 25 mg Viagra about twice a week at night to encourage blood flow.
My wife and I are able to have sex, however, with the loss of length, girth, and curvature, it's limited what we can do. Several weeks ago we tried a sideways missionary position which we've done in the past. But with PD, it was a no-go. My wife got upset. The next day I was determined to please her and initiated, and was successful.

Several notes on my PD.

It's been reported that 50% of men with PD experience depression. Essentially it's like your dick is broken.

I still don't know what caused my PD. I was sick with Pneumonia for almost two months during which time I noticed a curve. It could have been from a painful WOT position several months prior. Or a beta-blocker I've taken for 8+ years (although both cardiologist and urologist said there's no conclusive evidence), Or Trimix injection (however the curve is in the dorsal area where I would never inject Trimix, plus my urologist never said to stop Trimix. Note: If you value your penis don't ever stop having erections, they are healthy for you.

I am grateful to be able to have sex howbeit limited because of curve penis and loss of length

My wife is mostly supportive, But she has also voiced, how my PD is like ED all over again. (It's depressing for her too)

The ultimate fix for PD is an implant. The problem is I don't think even an implant will regain size.

[sogwap]

Update.

I've been using VED 1-2 daily for 15 minutes.
I haven't measured, but it seems to have helped with size.

Two weeks ago I did a refill of my Trimix.
I asked the pharmacist about my urologist using Verapamil injection treatments for PD (Peyronies Disease).
He said that my urologist treats 20-30 men every week with Verapamil for PD.
That gave me the confidence to proceed with the injections.


The reason for my hesitancy in doing Verapamil injections was reading reports that the success of these injections largely depends on the skill and experience of the doctor doing the injections.

I start Verapamil injections on September 26.
There are six scheduled treatments every two weeks.
The purpose of these injections is to help break up the plaque (that caused Peyronies) and straighten the penis.

------------------------
On another note, last week I got a refill of my beta-blocker. Which I take to control my heart rhythm.
I've been taking a beta blocker since 2015 seemingly with no ill effects.

After getting PD I rechecked the side effects of beta-blocker.
To my surprise and horror, Peyronies is listed as a possible side effect!
A couple of months ago I had two separate appointments with my cardiologist and my urologist and asked about the link between beta-blocker and Peyronies.
Both doctors said there was not much evidence of the link between beta-block and Peyronies.

However on Saturday when I got my prescription for my beta-blocker I asked the pharmacist if beta-blocker can cause Peyronies.
He asked why I was taking it. And he said beta-blockers can definitely cause Peyronies!

The pharmacist then explained that the reason is beta-blockers slow down your heart, and can cause flood-flow issues to the penis.
This lower blood flow can make for ED issues as well as lack of blood that contributes to Peyronies.

[sogwap]

Today I started my first Verapamil injection treatment.

I was a bit concerned as I've heard several reports of lots of pain and bruising.
The doctor came in and injected a nerve block.
He left and came back and proceeded with the injection. I couldn't feel anything.
I was laying down and could not see anything, Actually, I didn't care to see him stick a needle and probe my penis.
I don't know if he was serious but he mentioned something about his big needle. LOL.

He then wrapped it up.
And told me to start stretching it tomorrow.
Later I took off the wrapping and to my surprise, I didn't see any markings or black and blue bruises.

The idea of the injections is to break up the plaque and regain the length, size, and minimize the 45-degree (estimated) curve that I developed.

I've been using a VED for about three months and have seen an increase in size but no change in the curve.


I have never talked much with my wife about my (penis) size. When I first met her she called me big. To which I thought she was just being nice. I'm assuming before PD I was on the big side. She told me, several months ago after getting PD I'm now average. LOL

Its too soon to see any changes. I plan to do the set of six injections.

The curve really sucks. Masturbation feels different. Putting it in is a sore reminder that it feels broken.
Thankfully, we can still have sex in one (and only) position. But I have to be carefully that it doesn't bind and cause further injury.

My wife brought up today, that PD came when I was sick for almost two months, No sex and no erections for over a month that brought on PD.

My warning to all men is to have good health erections several times a week. You will live longer and be healthier.

[sogwap]

Today I had my 6th Verapamil injection. Tomorrow I will resume VED to encourage, lengthening and stretching.
I've been using the VED since June, twice daily for 10-20 minutes as time allows. I have regained some of the size.
Both my doctor and my wife say there's been an improvement in reducing the curve.

I have to be honest having Peyronies Disease (PD) has been depressing. I've talked with the urologist about my condition, but those conversations last maybe 1-2 minutes. He sees about 20 guys a day on Fridays doing these injection treatments.

Talking with my wife is more difficult. She's a nurse, but she has made it clear that talking about my PD is not in the least sexy. Last week she said I fell asleep which is code for, We could have had sex.

One thing that has helped is hope. When I first learned I had PD. I was in denial. In many ways, it's ED all over again. As my cock didn't want to play.
I never had any pain, and sex is still possible (but limited). But with the size loss and curve, well I (really) miss my old cock.

Regarding hope, after I realized it wasn't likely to get better on its own. I did lots of reading. Most suggested treatments have little unproven value. However, I decided to try VED to regain size. And yes it helps. However, the increased size made the curve more pronounced. I have a 40-50 degree curve. As I mentioned sex is possible, but limited in what I can do.

As far as the curve there are three common treatment options Traction/VED, Injection Treatments such as Verapamil or Xiaflex, and surgery. Surgery is the most successful outcome. However, there is no reversal of surgery. There are at least several different surgeries, some surgeries can leave you with a loss of length of 2 inches. If you have ED a penile implant may be an option.
Traction may work for some guys but may or may not address the curve. As I mentioned I've done VED for six months and have regained maybe 1/2 my size loss.
With injection treatments, they have anywhere from 40-70% success rate.

I've done 6 Verapamil injection treatments and have seen a slight improvement. And I plan to do 10 injection treatments. Because beynd injections the only other option is surgery.

[Flavio]

I'd love to know more about the causes, PD is still a big mystery to me. I'd say the most probable causes are trimix injections and sex positions, I've never heard of beta blockers causing PD.

Good luck and please keep us posted on your progress.

[sogwap]

I'd love to know more about the causes, PD is still a big mystery to me. I'd say the most probable causes are trimix injections and sex positions, I've never heard of beta blockers causing PD.

Good luck and please keep us posted on your progress.

As far as beta blockers causing Peyrinies Google beta blockers and Peyronies. Several sources will come up.
I've also consulted other men, who got PD as a result of beta blockers.
My urologist never once suggested my Peyronies is from Trimix injections.

A lot of guys have said they have no apparent reason for getting PD.

Today I had my seventh Verapamil Injection. I've seen some improvement in curvature but not as much as I hoped.
My urologist briefly said there are surgical treatments. Then asked if sex is possible or painful. While sex is possible, it only somewhat uncomfortable.
He then suggested we pause the injections, wait six months, and evaluate my condition at that time.

The good new is I have regained most of my size that was lost. And sex is still possible.
However, my wife is upset since up until this point it is pretty much the same (boring) position.

[Flavio]

[...] I've also consulted other men, who got PD as a result of beta blockers. [...]

What are those beta blockers?

[sogwap]

[...] I've also consulted other men, who got PD as a result of beta blockers. [...]

What are those beta blockers?

Not sure what you are asking, here's info from Mayo Clinic.
https://www.mayoclinic.org/diseases-con ... t-20044522

I have been on Bisoprolol 2.5 mg since 2016.
As I mentioned both my Cardiologist and my urologist doubted beta blockers cause PD.
However, the pharmacist said that beta blockers can cause PD. The reason is that beta blockers slow the heart down which results in lower blood flow. Low blood flow is bad for penile health.

Since last year I started taking Beta Blocker every other day. And my nocturnal erections have returned.
I tried stopping them altogether. But my heart symptoms returned.