FrankTalk.org

Hello everyone,

I've been suffering for four years now with erectile dysfunction due to Hard Flaccid Syndrome, all the hallmark symptoms, which, until recently, I believed was an anomalous occurrence exclusive to myself. It came on during a period of intense, protracted stress due to "idiopathic" symptoms, later identified with a hard-to-diagnose bacterial infection that had become systemic. Infection is now cleared up, but nothing seems to work to relieve the condition (pulsed radial waves; stretches to loosen pelvic floor; nitric oxide boosters; even TRT). I turn forty this month, and so I'm now giving serious consideration to an implant, even though I know many in the HF community are opposed to such an intervention. I just don't know what to do at this point; after four years my symptoms are worse, not better.

Any suggestions anyone could give me to help with this condition would be greatly appreciated. I would especially appreciate it if someone could direct me to anyone who currently has an implant who also had hard flaccid.

Thanks.

P.S. Testosterone replacement, which I tried out of desperation, only exacerbates the symptoms of hard flaccid (creates even greater tightness at base, tighter erections). At least it did for me; I would personally advise against if anyone is considering.

Out of interest what are these stories about implants and hf and why are people opposed to them?
Have cpps and occasionally the odd hf symptom... But haven't read these stories.

Thanks.

Never_Enough wrote:Out of interest what are these stories about implants and hf and why are people opposed to them?
Have cpps and occasionally the odd hf symptom... But haven't read these stories.

Thanks.

Hi Never_Enough:

Opposition seems to stem from the contractile nature of hard flaccid, contraction possibly acting as an obstacle to surgical stretching-for-length, hence appropriate sizing.

However, this is speculated to be incorrect on two accounts: 1) that the neuromuscular/skeletal muscle relaxing effect of general anesthesia should temporarily resolve the hard flaccid for implantation; and 2) that the destruction of the corpora via surgical corporotomy eliminates the contraction caused by the bulb of the corpora (the proposed etiology of hard flaccid).

There aren't too many people who have gone this route for hard flaccid. Hard flaccid itself is highly amorphous, with some experiencing contraction and others not so much. There is one person on this board who did receive a penile implant for HF, is happy with the outcome, but as to his previous symptoms I have no clue (whether he had stretch-inhibiting contraction or not). You might try reaching out to him; he goes by the handle "endoftheline." Nice guy; he should respond.

Take care,
F1