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Dr Eid has never heard of hard flaccid
Posted: Sat Apr 16, 2022 2:34 pm
by Endoftheline
It's really that rare, the most popular implant surgeon has never heard of this dysfunction. Since this board has started we need to reach out to the right people and get this researched. We all share the same synptoms and know how debilitating it is, if we work together we can get them to listen.
Stop being told its in our head, all doctors would be informed of what it is and it's treatment. We can make that happen. We lost so much time and suffered too long, but if we stop any future cases from experiencing what we did, that's still a victory.
Re: Dr Eid has never heard of hard flaccid
Posted: Sun Apr 17, 2022 4:26 pm
by newbiehere23
Endoftheline wrote:It's really that rare, the most popular implant surgeon has never heard of this dysfunction. Since this board has started we need to reach out to the right people and get this researched. We all share the same synptoms and know how debilitating it is, if we work together we can get them to listen.
Stop being told its in our head, all doctors would be informed of what it is and it's treatment. We can make that happen. We lost so much time and suffered too long, but if we stop any future cases from experiencing what we did, that's still a victory.
Is he considering you as a candidate for an implant? how did the consult go? I plan on meeting with him as well next month. My doppler ultrasound with injection was normal so I hope this does not dissuade him from doing one potentially.
Re: Dr Eid has never heard of hard flaccid
Posted: Tue Apr 19, 2022 4:18 pm
by Frank Talk Admin
It's important to remember that urologists (which is the umbrella that most sexual medicine specialists fall) is a surgery field. Surgeons are taught ONLY to do surgery.
CPPS/pelvic floor stuff they would recognize as "Non-bacterial Chronic Prostatitis". This is a perfect example of the limitations of the urology world. There is nothing a urologist has to offer the pelvic floor patient. There are no tools in the urologist box to treat this.
Pelvic floor dysfunction is NOT rare at all. Somewhere around 20% of all men have, or had, it. The diagnosis is what is missing. It does not belong in the urology world. So, if you go to a urologist, they will say nothing is wrong because there is nothing that needs surgery. The problem is, NO DOCTORS are taught about this condition. Up until 10 years ago, it was thought that this was a female only condition. Just in the last 5 years are we gaining widespread acceptance that this condition actually exists for men.
So, yes, we all have to do our part. Hand out the Book "A Headache In My Pelvis" to everyone!
Paul