My situation - some advice and input needed - Hard flaccid for 5+ years

One of the most misdiagnosed issues in medicine! This baffling and frustrating condition can create physical and emotion destruction. There is hope! It is VERY treatable. We will set you on the right track.
newbiehere23
Posts: 34
Joined: Tue Mar 15, 2022 9:24 pm

My situation - some advice and input needed - Hard flaccid for 5+ years

Postby newbiehere23 » Wed Mar 16, 2022 5:07 pm

Hello all,

I'm a 30 year old male that has had hard flaccid for 5+ years. I got it from an accident and it has left me with some ED. I've tried all the pelvic floor, the physio, the trigger point therapies...none of it worked. I will admit by saying that I do still get erections, I get morning wood and sexual intercourse can be completed 75-80% of the time. I have used cialis and viagra but they give me really nasty side effects and I do not think I could use them consistently. They fuck with my heart.

Although I can still get erections, it definitely is not the same. I need hours before I can go again and my erection often weakens during intercourse and then I need to switch positions to get it back again. I cannot thrust as fast because that causes me the erection to weaken and I lose my erection during intercourse 15-20% of the time. If I go more than 2-3x a day (with the help of cialis), I need at least one day of rest. Long story short, my performance is much different and not anywhere near like before.

I have been thinking about an implant but I realize that most surgeons might not touch me because of the fact that I get erections but they are much more different and the performance and no where near as before. What do you guys recommend or am I jumping the gun here thinking about an implant?

Fran4524
Posts: 193
Joined: Sun Dec 13, 2020 3:33 pm

Re: My situation - some advice and input needed - Hard flaccid for 5+ years

Postby Fran4524 » Wed Mar 16, 2022 5:51 pm

I dont have an implant, but I would try with pills until it fails
-1993
-Erection problems since 4 years
-I did jelqs and it is posible I injuried, but I hace to say that ED episodes began before I did jelq.
-Having sex with 30mg of tadalafilo

Gt1956
Posts: 2872
Joined: Fri Apr 05, 2019 2:47 pm

Re: My situation - some advice and input needed - Hard flaccid for 5+ years

Postby Gt1956 » Wed Mar 16, 2022 5:55 pm

Newbiehere23, I think your question falls outside of the realm of what a group of amateurs on a forum can address. Please seek medical advice first. Then report back.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

newbiehere23
Posts: 34
Joined: Tue Mar 15, 2022 9:24 pm

Re: My situation - some advice and input needed - Hard flaccid for 5+ years

Postby newbiehere23 » Wed Mar 16, 2022 6:13 pm

Gt1956 wrote:Newbiehere23, I think your question falls outside of the realm of what a group of amateurs on a forum can address. Please seek medical advice first. Then report back.


Fair point. The problem in Canada is they won’t touch you if you’re young and especially cause my Doppler is normal, they think I’m a head case although all guys with my condition show normal Doppler ultrasounds. I just wanted to see what it’s like where implants are paid for and even tho I can still get erections, would they touch me considering Money is involved.

newbiehere23
Posts: 34
Joined: Tue Mar 15, 2022 9:24 pm

Re: My situation - some advice and input needed - Hard flaccid for 5+ years

Postby newbiehere23 » Wed Mar 16, 2022 6:16 pm

Fran4524 wrote:I dont have an implant, but I would try with pills until it fails


They give me shitty side effects and raise my heart rate a lot so they prob aren’t good for that.

Gt1956
Posts: 2872
Joined: Fri Apr 05, 2019 2:47 pm

Re: My situation - some advice and input needed - Hard flaccid for 5+ years

Postby Gt1956 » Wed Mar 16, 2022 6:34 pm

newbiehere23 wrote:
Gt1956 wrote:Newbiehere23, I think your question falls outside of the realm of what a group of amateurs on a forum can address. Please seek medical advice first. Then report back.

Fair point. The problem in Canada is they won’t touch you if you’re young and especially cause my Doppler is normal, they think I’m a head case although all guys with my condition show normal Doppler ultrasounds. I just wanted to see what it’s like where implants are paid for and even tho I can still get erections, would they touch me considering Money is involved.

Ok, better data points. I would suggest that you gather up all your test results. Find a US doctor that seems at the very least competent on implants. Schedule a video conference with him or if possible, visit him in person. You might have to pay for a video conference. Being non American I'm fairly sure you'll have to pay to see any of them in person. My first appointment with my doctor cost me $5usd. That was with insurance. You'll need to ask his staff about a cash pay appointment.
I'm sorry but this is about all that I can think of that might help you. But I'm fairly sure that you could find an USA surgeon for you. But he might require more testing than an patient that has total ED.
Good luck.
68yo, HBP at 40, high triglycerides at 45. Phimosis at 57. Type 2 at 60. Dr. William Brant May 1, 2023 CX 21cm w/no rte's penoscrotal 6" girth @ 6 months

Lost Sheep
Posts: 6142
Joined: Mon Jul 04, 2016 11:16 pm

Re: My situation - some advice and input needed - Hard flaccid for 5+ years

Postby Lost Sheep » Wed Mar 16, 2022 8:08 pm

Welcome to the forum, newbiehere23 and thanks for trusting us with your question.

When you get negative feedback from the Canadian Healthcare system, have they taken into account your history of injury and treatments tried? Dealing with a bureaucracy can be frustrating, but it seems to me that you should get a positive hearing if your presentation is persuasive enough.

Can you get your primary care physician to write a letter of recommendation?

They might prescribe injections or suppositories which you might find satisfactory.

Good luck.

When you talk with anyone, take notes, remember their names (people love to be remembered) and than everyone (even if they were not helpful - they did give you their time and they may remember you with more kindness the next time you speak). This worked for me when a travel nurse who was not helpful earlier in my quest remembered me and called me up when she heard of a surgeon recently assigned who had actually taught the procedure.
Lost Sheep
AMS LGX 18+3 Nov 6, 2017
Prostate Cancer 2023
READ OLD THREADS-ask better questions -better understand answers
Be part of your medical team
Document pre-op size-photos and written records
Pre-op VED therapy helps. Post-op is another matter

Tokyo_123
Posts: 254
Joined: Tue Mar 01, 2022 3:02 am

Re: My situation - some advice and input needed - Hard flaccid for 5+ years

Postby Tokyo_123 » Thu Mar 17, 2022 1:05 am

Can you get it outside of state insurance (as in paying cash).
Venous Leakage (which I believe caused by my overuse of the Bathmate VED)

Dr. Clavell, August, 2022. Titan One-Touch, 24cm XL cylinders and trimmed off 0.5cm

newbiehere23
Posts: 34
Joined: Tue Mar 15, 2022 9:24 pm

Re: My situation - some advice and input needed - Hard flaccid for 5+ years

Postby newbiehere23 » Thu Mar 17, 2022 12:37 pm

Tokyo_123 wrote:Can you get it outside of state insurance (as in paying cash).


Yes. I live in Canada (public healthcare) but am looking in the USA (private healthcare) to pay in cash.

sweaterfan
Posts: 65
Joined: Sun Sep 06, 2020 7:39 pm
Location: Austin TX

Re: My situation - some advice and input needed - Hard flaccid for 5+ years

Postby sweaterfan » Thu Mar 17, 2022 4:40 pm

The decision to go bionic must not be taken lightly. At your age, there will be a number of revisions and the risk of infection apparently increases with the number of revisions. Then there is the cost (20K or more) and the pain involved with each surgery.

I know you yearn for the glory days (as do I), but many (myself included) would envy your current ability. 2-3 times a day with just a day's rest in between? I'd be happy with 1 decent performance a week!

Weigh your options carefully. Once you are in, you are all in.
Born 1956, TRT, Peyronies (no improvement after 1 cycle of Xiaflex so discontinued), using alprostadil but have possible VL. Considering an implant. Aquablation for BPH Nov 2 2020, TURP 6/14/2021.


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