Hard Flaccid - success story and hopefully reassurance for others suffering!

One of the most misdiagnosed issues in medicine! This baffling and frustrating condition can create physical and emotion destruction. There is hope! It is VERY treatable. We will set you on the right track.
Fed1981
Posts: 17
Joined: Sat Aug 01, 2020 4:51 am

Hard Flaccid - success story and hopefully reassurance for others suffering!

Postby Fed1981 » Thu Sep 03, 2020 10:12 am

Ok, hard flaccid is definitely real because I cannot tell you the craziness I have witnessed in the past 48 hours.

So my symptoms were barn door hard flaccid:
- no nocturnal/morning erections
- took loads and loads of stimulation to even get any sort of erection and even then it was a very spongy/weak erection
- immediately lost erection without manual stimulation in a matter of seconds
- when flaccid my penis felt hard and rubbery and was always shrunken up
- premature ejaculation (I have always had the opposite in that it used to take me quite long to ejaculate)
- tightness in my anus + some sharp pains now and then in the perineum

Basically, since using a VED for roughly 2 weeks around 4 months ago (on a Consultant urologist's advice for narrowing at my base) I noticed my erections getting worse. Subsequently, the erections only got worse and worse until the past month in which I had struggled to get an erection at all (with girlfriend or alone). I was convinced I had permanently damaged myself with the pump and resigned myself to injections or an implant. I saw several urologists who all had no ideas. I had an USS doppler and MRI which couldn't identify any physical problem. I was beside myself because, despite all the negative scans and urologist reassurance, I still couldn't function at all sexually. This led to anxiety and low-mood + immense amounts of stress which likely only exacerbated the issue and trapped me in a vicious cycle.

A few nights ago, I sat down and tried to calmly think this all through. If I had damaged myself with the pump wouldn't I have had pain, bruising, petechiae, oedema or at least some physical signs to support this (I never had any of those things)? If the urologists all say they can't find any physical problem then I should believe them - they were all specialists in andrology after all and experts in their field. If my USS doppler and MRI were reported as normal, I should also put faith in that. Therefore, I decided to focus on addressing pelvic floor and hard flaccid as the problem. Further credence for hard flaccid as my issue is the fact that I have mild spasticity and tightness in my lower limb muscles anyway due to what the neurologists think was a mild lumbar spinal cord ischaemia during an operation to fix a whole in my heart at the age of 1 (likely a clot embolised from the heard through the spinal artery). It is minor, but nevertheless I know I am predisposed to muscle spasms and tightness in my lower limbs.

I did lots of research on hard flaccid and was surprised how the description of onset, symptoms, triggers were all almost identical to my situation. I watched some videos regarding exercises to relax the pelvic floor and I started doing these about 4-5 days ago:
- cat-camel pose
- child's pose
- pose (don't know what it's called) lying on back with legs raised and apart, knees pulled toward chest and breathing down into pelvic floor
- did all the above with abdominal/diaphragmatic breathing several times a day and also tried to abdominal breathe whenever I could during the day
- did some soft massage of the tissues in my perineum where I felt soreness and tightness
- also tried to reduce my stress and got some diazepam for anxiety

This sounds too good to be true but I swear that after months of poor erections (and a month most recently of no erections and absolute despair), for the past 24-48 hours I have had on demand erections just as before. Just kissing my girlfriend gives me a perfectly normal erection that will last for a long time even without stimulation. There is no sponginess or softness; it is exactly as hard and the same size as I remember it. I can now have sex for a long time without the premature ejaculation rearing its head. My flaccid also feels back to normal. I couldn't believe this myself but I am a firm believer in hard flaccid and pelvic floor dysfunction now; I think that unfortunately there are many men desperately running from urologist to urologist and being made to feel crazy about their symptoms. No matter how many scans you have, a diagnosis of hard flaccid/pelvic floor dysfunction will not be made. Furthermore, the urology community has only started to recognise this as an entity in the past few years and this is just a select few Doctors. It will take many years for an overhaul to happen in which urologists recognise this across the board. Therefore, whilst I'm not blaming urologists, I think it is optimistic to believe they will be able to help you. Of course it is useful to see a urologist to have USS doppler and MRI to reassure yourself that there is no physical problem.

Now I can be reassured there is no severe physical problem as it would be impossible for me to have had erections as I have in the past 48 hours if there were. It seems that the VED caused some initial trauma/trigger to be set off in my neurovascular bundle/pelvic floor which was subsequently perpetuated and maintained by my stress, anxiety and despair - I honestly felt like my life was over and I am a 28-year-old high-functioning Doctor normally. What I mean to say is that you shouldn't feel like you're going crazy. I come from a medical background and many times couldn't explain what was happening; admittedly I felt like I was crazy at some points because urologists repeatedly told me there was nothing physical wrong despite all the symptoms I report above.

I just wanted to write this to give some hope and reassurance to those suffering with similar problems. I know how lonely, desperate and worthless this can make you feel. It can make you feel less of a man and even start to lose who you are as a person. Suddenly the world seems a harsh place and things that made you feel safe and happy become grey. Clearly I'm not saying this will work for everyone, and of course (as with all things) there will be some who truly do have pathology within the penis that needs to be addressed (that isn't to say it can't be rectified); however, there may be many men like me with pelvic floor problems/hard flaccid precipitated by penis exercises, pumps, stretching or even just stress/anxiety who can truly turn things around with the right mental state and exercises. I hope this can help some people and provide some peace of mind - good luck to everyone and stay strong - you can definitely make improvements no matter your situation! There are always options and a light at the end of the tunnel
28-year-old with intermittent psychological Erectile Dysfunction?
Normal stimulated USS and MRI mid-2020
Working with pelvic floor physio since Sept 2020 and seeing good improvements - ?CPPS/hard-flaccid as cause

Simbarn
Posts: 357
Joined: Tue Mar 10, 2020 8:08 pm

Re: Hard Flaccid - success story and hopefully reassurance for others suffering!

Postby Simbarn » Thu Sep 03, 2020 7:16 pm

I am very happy that after all our private communication that you were able to think more on the pelvic floor issue.
I also felt given all your symptoms that fibrosis was most unlikely and also kept coming back to the pelvic floor syndrome myself.
I read a post where you said you were concerned that hard flaccid was a real thing, as being a doctor something like this which is not recognised by the urologists would sound dubious.
I was about to write to you again and say please go ahead with the pelvic floor specialist and have an open mind! However you beat me to it and I am so glad you were able to rationalise your situation and be objective!
I hope the progress continues and please give us updates.
Age 57, ED issues for 15-20 years. Testosterone replacement with Enanthate and Ovidrel. Currently using generic Tadalafil 2.5mgs and Resveratrol daily.

Fran4524
Posts: 174
Joined: Sun Dec 13, 2020 3:33 pm

Re: Hard Flaccid - success story and hopefully reassurance for others suffering!

Postby Fran4524 » Sun Apr 11, 2021 12:22 pm

Ey, partner!

How it is going?have you improve your situation? I am thinking about it could me what happen with me.
1993
-Erection problems since 2 years.
-I did jelqs and it is posible I injuried
-3 dopplers and 1 cavernosography . No sign of leaks(2 priapism with the tests)
-Having sex with 30mg of tadalafilo
-With a sexologist to found out the problem

Markc2008
Posts: 175
Joined: Fri Jul 31, 2020 10:45 am

Re: Hard Flaccid - success story and hopefully reassurance for others suffering!

Postby Markc2008 » Sun Apr 11, 2021 10:42 pm

Did you have loss of pleasurable sensation as well? I’m wandering if I have hard flaccid

Simbarn
Posts: 357
Joined: Tue Mar 10, 2020 8:08 pm

Re: Hard Flaccid - success story and hopefully reassurance for others suffering!

Postby Simbarn » Mon Apr 12, 2021 7:50 pm

Markc2008 wrote:Did you have loss of pleasurable sensation as well? I’m wandering if I have hard flaccid

From all my current research into this; loss of sexual sensation can indeed be a symptom of pelvic floor problems. The pudendal nerve is implicated here. It depends where this nerve is being affected or compressed, whether you experience pain or loss of sensation or both. Other symptoms can be ejaculation problems such as weak ejaculation or retrograde ejaculation, some possible bladder issues such as dribbling after urinating and even bowel issues. Blood supply can also be affected. A shriveled tight penis when flaccid is also symptomatic.
Age 57, ED issues for 15-20 years. Testosterone replacement with Enanthate and Ovidrel. Currently using generic Tadalafil 2.5mgs and Resveratrol daily.

Markc2008
Posts: 175
Joined: Fri Jul 31, 2020 10:45 am

Re: Hard Flaccid - success story and hopefully reassurance for others suffering!

Postby Markc2008 » Mon Apr 12, 2021 10:37 pm

I have a lot of that which I know there are crossings with that and pssd. I do have shrinking when flaccid, some dribbling after urinating(which I always have) loss of pleasurable sensation, Ed
, etc.. wish I could find a fix..

ViaSwiss
Posts: 584
Joined: Fri May 24, 2019 9:09 am

Re: Hard Flaccid - success story and hopefully reassurance for others suffering!

Postby ViaSwiss » Wed Apr 21, 2021 3:30 pm

I have also had some nice improvements in HF from similar stretches/poses. Unfortunately I also have PFS and VL so still many other issues.
Age 35. Venous Leakage & Post Finasteride Syndrome (PFS) since age 18.
Original Implant | June 25, 2021 | 20cm Titan w 1.5cm & 1cm RTEs
Revision | November 16, 2021 | 26cm | Dr. Hakky

Pumpingvictum
Posts: 39
Joined: Mon Dec 13, 2021 11:03 am

Re: Hard Flaccid - success story and hopefully reassurance for others suffering!

Postby Pumpingvictum » Thu Dec 30, 2021 2:46 am

I have the same problem due to the penis enlargment exersise by peins pump
From 10 years and i until now i have the same problem
I hope i can fix That from abstance from masterbation. And stretch pose you mention in your post
I damaged my peins 2012 by enlargment exersise by home made penis pump. 2 penile doppler with normal result and 1 cavernosography with normal result.

Waqas007
Posts: 55
Joined: Mon May 03, 2021 4:01 am

Re: Hard Flaccid - success story and hopefully reassurance for others suffering!

Postby Waqas007 » Sat Feb 05, 2022 1:17 pm

Fed1981 wrote:Ok, hard flaccid is definitely real because I cannot tell you the craziness I have witnessed in the past 48 hours.

So my symptoms were barn door hard flaccid:
- no nocturnal/morning erections
- took loads and loads of stimulation to even get any sort of erection and even then it was a very spongy/weak erection
- immediately lost erection without manual stimulation in a matter of seconds
- when flaccid my penis felt hard and rubbery and was always shrunken up
- premature ejaculation (I have always had the opposite in that it used to take me quite long to ejaculate)
- tightness in my anus + some sharp pains now and then in the perineum

Basically, since using a VED for roughly 2 weeks around 4 months ago (on a Consultant urologist's advice for narrowing at my base) I noticed my erections getting worse. Subsequently, the erections only got worse and worse until the past month in which I had struggled to get an erection at all (with girlfriend or alone). I was convinced I had permanently damaged myself with the pump and resigned myself to injections or an implant. I saw several urologists who all had no ideas. I had an USS doppler and MRI which couldn't identify any physical problem. I was beside myself because, despite all the negative scans and urologist reassurance, I still couldn't function at all sexually. This led to anxiety and low-mood + immense amounts of stress which likely only exacerbated the issue and trapped me in a vicious cycle.

A few nights ago, I sat down and tried to calmly think this all through. If I had damaged myself with the pump wouldn't I have had pain, bruising, petechiae, oedema or at least some physical signs to support this (I never had any of those things)? If the urologists all say they can't find any physical problem then I should believe them - they were all specialists in andrology after all and experts in their field. If my USS doppler and MRI were reported as normal, I should also put faith in that. Therefore, I decided to focus on addressing pelvic floor and hard flaccid as the problem. Further credence for hard flaccid as my issue is the fact that I have mild spasticity and tightness in my lower limb muscles anyway due to what the neurologists think was a mild lumbar spinal cord ischaemia during an operation to fix a whole in my heart at the age of 1 (likely a clot embolised from the heard through the spinal artery). It is minor, but nevertheless I know I am predisposed to muscle spasms and tightness in my lower limbs.

I did lots of research on hard flaccid and was surprised how the description of onset, symptoms, triggers were all almost identical to my situation. I watched some videos regarding exercises to relax the pelvic floor and I started doing these about 4-5 days ago:
- cat-camel pose
- child's pose
- pose (don't know what it's called) lying on back with legs raised and apart, knees pulled toward chest and breathing down into pelvic floor
- did all the above with abdominal/diaphragmatic breathing several times a day and also tried to abdominal breathe whenever I could during the day
- did some soft massage of the tissues in my perineum where I felt soreness and tightness
- also tried to reduce my stress and got some diazepam for anxiety

This sounds too good to be true but I swear that after months of poor erections (and a month most recently of no erections and absolute despair), for the past 24-48 hours I have had on demand erections just as before. Just kissing my girlfriend gives me a perfectly normal erection that will last for a long time even without stimulation. There is no sponginess or softness; it is exactly as hard and the same size as I remember it. I can now have sex for a long time without the premature ejaculation rearing its head. My flaccid also feels back to normal. I couldn't believe this myself but I am a firm believer in hard flaccid and pelvic floor dysfunction now; I think that unfortunately there are many men desperately running from urologist to urologist and being made to feel crazy about their symptoms. No matter how many scans you have, a diagnosis of hard flaccid/pelvic floor dysfunction will not be made. Furthermore, the urology community has only started to recognise this as an entity in the past few years and this is just a select few Doctors. It will take many years for an overhaul to happen in which urologists recognise this across the board. Therefore, whilst I'm not blaming urologists, I think it is optimistic to believe they will be able to help you. Of course it is useful to see a urologist to have USS doppler and MRI to reassure yourself that there is no physical problem.

Now I can be reassured there is no severe physical problem as it would be impossible for me to have had erections as I have in the past 48 hours if there were. It seems that the VED caused some initial trauma/trigger to be set off in my neurovascular bundle/pelvic floor which was subsequently perpetuated and maintained by my stress, anxiety and despair - I honestly felt like my life was over and I am a 28-year-old high-functioning Doctor normally. What I mean to say is that you shouldn't feel like you're going crazy. I come from a medical background and many times couldn't explain what was happening; admittedly I felt like I was crazy at some points because urologists repeatedly told me there was nothing physical wrong despite all the symptoms I report above.

I just wanted to write this to give some hope and reassurance to those suffering with similar problems. I know how lonely, desperate and worthless this can make you feel. It can make you feel less of a man and even start to lose who you are as a person. Suddenly the world seems a harsh place and things that made you feel safe and happy become grey. Clearly I'm not saying this will work for everyone, and of course (as with all things) there will be some who truly do have pathology within the penis that needs to be addressed (that isn't to say it can't be rectified); however, there may be many men like me with pelvic floor problems/hard flaccid precipitated by penis exercises, pumps, stretching or even just stress/anxiety who can truly turn things around with the right mental state and exercises. I hope this can help some people and provide some peace of mind - good luck to everyone and stay strong - you can definitely make improvements no matter your situation! There are always options and a light at the end of the tunnel

Hey I am suffering from HF I am suicidal at this point and don't know what to do ?
Please help me

Pumpingvictum
Posts: 39
Joined: Mon Dec 13, 2021 11:03 am

Re: Hard Flaccid - success story and hopefully reassurance for others suffering!

Postby Pumpingvictum » Sun Feb 27, 2022 5:23 pm

Waqas007
No need to kill your self be paitient
Frist of all may be you have Erectile dysfunction due to overmastarbation or peins enlargment exersise
You need to see doctor to made penile doppler ultrasound
If you have not Scar tissue formation or fibrosis then
You are fine
Then may be you have this what co called hard-flaccid
This is mential not controlled crateria That your body unable to have erection by natural simulation reflax and all you need to reset your natural body abliaty to has natural erection
By
Rebooting your Brain by no fap or masterbation or wayching porn
Be save waqas 007
I damaged my peins 2012 by enlargment exersise by home made penis pump. 2 penile doppler with normal result and 1 cavernosography with normal result.


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