21 Years old with moderate/ severe Ed looking for help

One of the most misdiagnosed issues in medicine! This baffling and frustrating condition can create physical and emotion destruction. There is hope! It is VERY treatable. We will set you on the right track.
sammeta
Posts: 5
Joined: Wed May 20, 2026 1:56 pm

21 Years old with moderate/ severe Ed looking for help

Postby sammeta » Wed May 27, 2026 6:06 pm

Hello everyone, I am pretty desperate for some help as I am feeling completely hopeless and stuck at the moment and I am hoping someone knowledgeable can chime in with their opinion or experience.

I am currently suffering from severe ED and hard flaccid which i believe was induced through occasional penis enlargement techniques in the past (so stupid i know). At the moment I have hard flaccid, numbness, low libido, nerve pains etc. For the past year i’ve had issues with erections so I always had a tiny piece of viagra to help boost confidence and performance. It then stopped working after developing the hard flaccid symptoms a couple of months ago. I am now on cialis 5mg daily however that is starting to become obsolete. I used to be a very sexual person however this has completely stripped me of my confidence and a major pleasure in my life. I am currently in a relationship which also adds to my stress and depression. In my case there isn’t really many recovery stories and the damage that I have caused seems to be irreparable as it just keeps getting worse. Is a penile implant a realistic option as a 21 year old in the UK? Do i need some sort of proof of physical damage or leakage? Is anyone else in the same position that I can talk to? Am i too young? and what steps can i take?

I have accepted that I won’t be back to normal again which is already hard enough but the thought of never having any function or ability to have a relationship at all is truly terrifying and is leading me down some dark places,
Thank you for reading I hope someone could please offer some guidance or mentorship please

CanGetItUpButNotOff
Posts: 487
Joined: Mon Sep 20, 2021 1:34 pm

Re: 21 Years old with moderate/ severe Ed looking for help

Postby CanGetItUpButNotOff » Wed May 27, 2026 9:51 pm

I don't know anything about hard-flaccid syndrome but I have a lot of personal experience with ED. :oops:

It sounds me that you haven't yet pushed the boundaries of what PDE5i medications can do. A little piece of Viagra and 5mg Cialis are beginner doses. My urologist told me that they start men on 5mg Tadalafil (Cialis) mostly as a placebo to see if anything responds. He put me on daily 10mg plus 50-100mg Sildenafil (Viagra). From there, I moved up to 10mg daily plus injections.

You didn't mention injections in your possible modalities but that is a much easier and less intrusive option before jumping to a prosthetic. As I understand it, TriMix is not available in the UK but some mixes are (Aprostadil, I think). Once you figure out how to use it -- which is easy -- you can go into an encounter with high confidence.

Since you are looking for help. I don't think your libido is an unsolvable problem. I bet confidence would bring it back.
Born 1954. Diabetes, hypertension, atherosclerosis. Sildenafil iffy. Tri-Mix 30/3/20 Pap/Phen/PGE1 godsend pending long-term efficacy. Daily Cialis. Tried LiESWT 4 times, Botox, PT141, Eroxon, QST, DUS, Vertica, Ferticare, cabergoline, psycho+hypnotherapy

sammeta
Posts: 5
Joined: Wed May 20, 2026 1:56 pm

Re: 21 Years old with moderate/ severe Ed looking for help

Postby sammeta » Thu May 28, 2026 2:44 am

Thank you so much for the reply. Hard flaccid is a physical and psychological beast and has worn me down after just under 2 months. Yes I could definitely delve deeper into PDE 5 inhibitor use and I am not opposed to injection therapy as well, it would be interesting to see how it affects someone with hard flaccid syndrome. The only thing I am wary of is that I have a congenital heart condition (aortic stenosis + open heart surgery to correct it) so I am unsure if the increases in dosage could expose me to some dangerous side effects elsewhere; especially long term, but I would just have to see for myself.

At the moment I find myself torn between taking a long multimodal approach to address my hard flaccid and pelvic floor the best I can in the hopes that things improve without the need of invasive measures or pursuing more medical treatment to help with ED. It is a hard choice at the moment as I am a happy relationship however my issues regarding ED and overall identity is beginning to push us apart :(


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