Where to start and implants

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Joined: Tue Oct 02, 2018 8:48 am

Where to start and implants

Postby bullss00 » Tue Oct 02, 2018 8:19 pm

Hi all,

A bit of background: I hurt my back around 8 years ago when I was 18/19 years old. At the time I was super athletic and I assumed the injury would heal on it's own like they always had. It was minor and definitely not debilitating like I had always assumed back injuries would feel like.

Fast forward a year or two and I'm seeing a doctor here and there because my body feels "off." Nothing comes of it. I'm still in incredible shape and a 19/20 year old boy so I should be fine in their eyes. Fast forward a few more years and I'm demanding MRIs because my feet are feeling cold and numb and my sense of balance is off. MRIs look fine, nerve conduction studies show minor unilateral issues in my left s1 nerves. Around this time my then girlfriend and I break up because I'm just "not the same" and I really haven't been too active since then.

A few years later with no resolution and several other investigations and I have come to realize the slow progression of ED I've had over the years. I always chalked it up to lack of sleep, reduced exercise/cardio, and reduced self-image. Now I realize that it is definitely nerve damage in my sacral nerves that I assume is from arachnoiditis. Poking and stroking around with a sewing needle there is a severe reduction in feeling in the left half of my penis with large dead spots in the glans and definite reduction in my right side as touching my right outer glute gives more sensation. Nocturnal erections do not exist anymore and I cannot remember the last time I had a random erection or thought after masturbation that I felt "good".

Anyway, I've just now started the process of working with this ED issue. Unfortunately there is a lack of resources for ED from sacral nerve damage out there. I've just now started talking to my general doctor about seeing a urologist but it's a slow process as I'm sure I am now labelled as a hypochondriac.

For those of you with experience with sacral nerve damage, did any injections or pills help? Have any of you had a specialized nerve conduction study on your perineal region? I'm afraid at this point that to have any sort of real sex life moving forward I may need to start looking into implants but I want to be as prepared as possible starting this process with a Uro.

Any insight is appreciated.

Posts: 256
Joined: Thu May 10, 2018 12:18 am


Postby FMLFML85 » Wed Oct 03, 2018 2:39 pm

Last edited by FMLFML85 on Fri Jan 24, 2020 1:26 pm, edited 1 time in total.
autistic 34 yo. Implant 26cm titan no rte. Dr Eid 8/16/19. Suffered ED 2.5 years. Made decision when injections started to fail.

Posts: 82
Joined: Sat Mar 11, 2017 4:43 pm
Location: Philadelphia, PA

Re: Where to start and implants

Postby philly444 » Thu Oct 04, 2018 11:08 pm

Check your PM, private messages
AMS 700 LGX 18cm, implanted December 16, 2016, University of Pennsylvania, Dr. Wm. Jaffe Married to a Man

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Joined: Tue Oct 02, 2018 8:48 am

Re: Where to start and implants

Postby bullss00 » Fri Oct 05, 2018 3:36 am


As far as I've discovered from my doctors' office visits the testing of the nerves is just as rare as you've suggested. I find it very strange that such an important area of the body is seen as binary (works/doesn't work) in the medical community. I always thought they would test it just to see if there was anything off normal with the area.The best I've found online is the PNTML, but it appears this is a special procedure and I wouldn't even know where to start looking for that kind of specialist.

The reduced sensation in my penis may very well be from something like a venous leak, hormonal issues, mental issues, etc. I just know after all of these years feeling pins and needles down (now) both of my legs, it would make sense if it's from the nerves. Your input on the men with nerve damage after prostate surgery and their positive response to drugs has made me much more hopeful and a bit relieved though, albeit I have a healthy dose of learned skepticism.

I'll make a point to request a Doppler. I just know from years of dealing with the medical community how slow the process will take. It is draining to know that I might be given a prescription for viagra to take for a month before I go back - when I know my clock is ticking.

Thanks for the input!

Posts: 80
Joined: Mon Apr 17, 2017 8:46 pm

Re: Where to start and implants

Postby torless50 » Fri Oct 05, 2018 3:44 am

It is not true that men after prostate surgery respond well to pills, it is the opposite.
Most men after prostatectomy will need injections or implant
Thinking about implant

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