FrankTalk.org

Hillywilly wrote:

Catmandu wrote:When the pills stopped working they would still give me a slight chubby but I mean about a 4/10 erection at best and that would flop if I wasn't tensing my pelvic floor to push blood into it. In the Doppler test the injection didn't work at all really it just gave me a chub but he could still see there was signs of a leak even with it being flaccid. In the cavernosogram the injection made me very hard, almost painfully hard, he put the ink in the vein to check for a leak and could see it leaking out and said yeah that's.not supposed to happen. If I was you and the pills are still working for you I would still try the embolization before thinking of the implant

Disagree. Long term data is not promising for embolization:

In case of positively confirmed venous-occlusive dysfunction including its morphological demonstration on CT cavernosography, the treatment strategy is occlusion of venous leaks (Box 3). Surgical therapy consists of deep dorsal vein ligation and additional ligation of potential collaterals. However, surgical treatment is rather invasive and usually needs to be performed in an operation room under general anesthesia. Not very encouraging, long-term success rates of surgical ligation of the deep dorsal vein and its collaterals are reported to be ~ 25%

Catmandu wrote:What exactly are you disagreeing with

Just because it's not a long term solution doesn't mean it can't be a legitimate and successful solution in the short term

Thanks to both of you for your feedback and posting your opinion.
As far as I'm concerned, the first thing I plan to do is CT cavernosography for further diagnostics.
After that, I'm really starting to wonder what to do next.

I certainly do not rule out embolization completely. Yes, I know that unfortunately it is not always helpful and even if it is, the effect is not long-lasting. However, I will probably end up with a penile prosthesis sooner or later so it won't make a difference to me because the penis will be cut and destroyed anyway. If embolization alone would help, even for a year or two, I would like to try it. It's always a few years of abstaining from a prosthesis.

Currently, I am not taking pills or anything and I have bizarre situations related to erections that I described above in response to "Catmandu".

I have always been convinced that a true venous leak does not come and go at will, but is a permanent disease and the only improvement should come with the use of pharmacology, whether it be pills or injections.

Hormones are another issue for me - from what I read on the web, venous leakage as a symptom (not physical condition) may also result from these matters. How much truth in this I do not know, although it is possible that it would explain why sometimes there are erections and sometimes there are none, or as I wrote back to Catmandu - at 3 pm, for example, I struggle with erection and orgasm, and 2 hours later I have a correct erection ...

As you can see in my footer, I also had a CT angiography test. Unfortunately, I did not respond to Alprostadil injections at all, but the study was continued(during doppler 10mcg of Alprostadil was given and had 75% erection with EDV of 15cm/s). Correct inflow through the iliac arteries was demonstrated, however abnormalities in the cavernous arteries were demonstrated. Namely, the left one was very very narrow and the right one was not visible at all on the examination. Perhaps this is where the problem lies, and the tablets will, for example, work better or longer on me. However, on the other hand, if this was a problem (narrow arteries) then after the blood flows to the penis with the help of pills, it should not be so difficult to maintain an erection.

I was born with mild hypospadias which I operated on unnecessarily and I had already had 2 operations on the glans. However, I don't know if that would have any effect on my current problem.

I try to think positively, but the very name of this disease is so terrible that it causes me incredible fear.

Another weird thing is morning erections that I have almost every day, they can last a few minutes and 30 minutes later after waking up I am not able to reproduce them with porn and masturbation.

Thank you for reading.

s7utty wrote:

Hillywilly wrote:

Catmandu wrote:When the pills stopped working they would still give me a slight chubby but I mean about a 4/10 erection at best and that would flop if I wasn't tensing my pelvic floor to push blood into it. In the Doppler test the injection didn't work at all really it just gave me a chub but he could still see there was signs of a leak even with it being flaccid. In the cavernosogram the injection made me very hard, almost painfully hard, he put the ink in the vein to check for a leak and could see it leaking out and said yeah that's.not supposed to happen. If I was you and the pills are still working for you I would still try the embolization before thinking of the implant

Disagree. Long term data is not promising for embolization:

In case of positively confirmed venous-occlusive dysfunction including its morphological demonstration on CT cavernosography, the treatment strategy is occlusion of venous leaks (Box 3). Surgical therapy consists of deep dorsal vein ligation and additional ligation of potential collaterals. However, surgical treatment is rather invasive and usually needs to be performed in an operation room under general anesthesia. Not very encouraging, long-term success rates of surgical ligation of the deep dorsal vein and its collaterals are reported to be ~ 25%

Catmandu wrote:What exactly are you disagreeing with

Just because it's not a long term solution doesn't mean it can't be a legitimate and successful solution in the short term

Thanks to both of you for your feedback and posting your opinion.
As far as I'm concerned, the first thing I plan to do is CT cavernosography for further diagnostics.
After that, I'm really starting to wonder what to do next.

I certainly do not rule out embolization completely. Yes, I know that unfortunately it is not always helpful and even if it is, the effect is not long-lasting. However, I will probably end up with a penile prosthesis sooner or later so it won't make a difference to me because the penis will be cut and destroyed anyway. If embolization alone would help, even for a year or two, I would like to try it. It's always a few years of abstaining from a prosthesis.

Currently, I am not taking pills or anything and I have bizarre situations related to erections that I described above in response to "Catmandu".

I have always been convinced that a true venous leak does not come and go at will, but is a permanent disease and the only improvement should come with the use of pharmacology, whether it be pills or injections.

Hormones are another issue for me - from what I read on the web, venous leakage as a symptom (not physical condition) may also result from these matters. How much truth in this I do not know, although it is possible that it would explain why sometimes there are erections and sometimes there are none, or as I wrote back to Catmandu - at 3 pm, for example, I struggle with erection and orgasm, and 2 hours later I have a correct erection ...

As you can see in my footer, I also had a CT angiography test. Unfortunately, I did not respond to Alprostadil injections at all, but the study was continued(during doppler 10mcg of Alprostadil was given and had 75% erection with EDV of 15cm/s). Correct inflow through the iliac arteries was demonstrated, however abnormalities in the cavernous arteries were demonstrated. Namely, the left one was very very narrow and the right one was not visible at all on the examination. Perhaps this is where the problem lies, and the tablets will, for example, work better or longer on me. However, on the other hand, if this was a problem (narrow arteries) then after the blood flows to the penis with the help of pills, it should not be so difficult to maintain an erection.

I was born with mild hypospadias which I operated on unnecessarily and I had already had 2 operations on the glans. However, I don't know if that would have any effect on my current problem.

I try to think positively, but the very name of this disease is so terrible that it causes me incredible fear.

Another weird thing is morning erections that I have almost every day, they can last a few minutes and 30 minutes later after waking up I am not able to reproduce them with porn and masturbation.

Thank you for reading.

Hello again. From everything you wrote, I ABSOLUTELY DEFINITELY think that you have not reached the time for an implant! DEFINITELY

Your a long way off thinking about an implant anyway if you've not even made full use of pills. Do your cavernosogram to confirm it's venous leak, stick with the pills, try stay off this forum so your not constantly thinking about your ED even though, from experience, I know that's very hard, counselling could be useful for you and try get the embolization procedure done.

Catmandu wrote:Your a long way off thinking about an implant anyway if you've not even made full use of pills. Do your cavernosogram to confirm it's venous leak, stick with the pills, try stay off this forum so your not constantly thinking about your ED even though, from experience, I know that's very hard, counselling could be useful for you and try get the embolization procedure done.

When you said pills not worked and u went for implant, pills once take were like literally nothing happens ? Full immunity to them ? Or they just gave little erection that wasnt enough to have penetrative sex even for 2-3 minutes so you can cum at least ?

Regards

Yeah I was taking 20mg of Cialis to masturbate and would only get a 3/10 erection sometimes nothing, in the later months for sex I was taking both Viagra and Cialis and would get about a 4/10 erection hardly worth using that flopped after a few minutes, some times I had been to girls houses to fuck them, taken the pills and gotten zero reaction at all. Shit

Catmandu wrote:Yeah I was taking 20mg of Cialis to masturbate and would only get a 3/10 erection sometimes nothing, in the later months for sex I was taking both Viagra and Cialis and would get about a 4/10 erection hardly worth using that flopped after a few minutes, some times I had been to girls houses to fuck them, taken the pills and gotten zero reaction at all. Shit

Hey man quick question, did you get your CT Cavernosogram in the US? Could you share which doctor you did it with? Looking to get it done.

No I had it done in Australia

returntocenter wrote:

Catmandu wrote:Yeah I was taking 20mg of Cialis to masturbate and would only get a 3/10 erection sometimes nothing, in the later months for sex I was taking both Viagra and Cialis and would get about a 4/10 erection hardly worth using that flopped after a few minutes, some times I had been to girls houses to fuck them, taken the pills and gotten zero reaction at all. Shit

Hey man quick question, did you get your CT Cavernosogram in the US? Could you share which doctor you did it with? Looking to get it done.

If you are from USA contact with dr. Kably from Miami.
He can do cavernosogram and angiogram.
Goodluck

Catmandu wrote:It's hard to find good information on it man, my urologist said it might not give me a fully hard erection and that there is less than 50% success rate after 2 years but surely that is a good enough reason to try it instead of committing to the implant. I got my implant and I regret not trying embolization first

What do you make of Gollam's experience with sclerotherapy/embolization though? He was left completely impotent by that procedure, and two other people on his 'my story' thread mention how that surgery left them worst off.

Hello, yes, I had an embolization, due to a venous leak seen in 3D tomography... The leak in the deep dorsal vein was covered with special foam and a coil or some kind of plug was placed in the pudendal veins... the results lasted 3 weeks. The first few days the morning erections returned normally, strong and hard erections, after the 2nd week I was able to have normal intercourse along with pills, at the 3rd week I began to notice the glans floppy again and a little cold as before... every day 6 months ago today I am practically the same as before.