New Member from Central Florida

[Burt-Man]

Hello all,

I have been following this site for about two or three months now, and although none of us are professional doctors, it sometimes seems like we make more sense than the professional doctors. I would have to echo the response, if I would have known the outcomes of my RP, I would have contemplated my chances of the prostrate cancer being the death of me.
I had my RP in August 2021, and the doctor never mentioned anything about Penile therapy after the operation. He just casually mentioned for me to get a VED and a cock ring off of the Internet, and prescribed Viagra. Said to take 60 mg twice a week.

Below are my issues:
ED
Peyronies disease ( within the last 12-16 months)
Climacturia, also known as orgasm-associated incontinence.
And overall penis length shrinking.
But my PSA has been zero for the last two years, so I am living to talk about this experience.

Just trying to bounce this off of the members of Frank Talk..

Currently, I am living in Florida, but travel would not be an issue for me.
If I treat each of the symptoms separately, it may take me a few years to resolve all of my issues, if that is actually possible.
Or should I just skip to the chase, and make an appointment with one of the providers listed below and become a “bionic brother”???

Dr Clavell Houston Texas
Dr Hakka Atlanta Ga
Dr Perito Coral Gables Fl
Dr Carrion Tampa Florida USF Health

I have tried the generic Viagra, Cialis, and just 2 months ago, began injecting
0.10 cc ( very little) Trimax at a blend of 25/ 25 / 1
My erection seems to be better with the Trimax, but the Peyronies disease and the leaking is still making things difficult.
BTW…. I have a phone conference with Dr. Hakky’s group at 8:00 AM tomorrow.
Thanks all,
Burtman

[Lawnman]

Sorry to hear about your issues.
What to do? I am sure most of us struggle with the proper answer.
I had an RP almost 2 years ago. I was warned about what was in store, but I wouldn’t believe it. I should have. Would I have done anything different had I known I would need injections? Probably not. I’m alive, my PSAs remain undetectable. I hope they stay that way.

My situation is not complicated by peyronies. Injections work, so I’ll keep with them. I can function. Certainly not how I used to. I do deal with significant size loss, and occasional climacturia.

As I understand it, going bionic is permanent. I can’t speak to what it is like to have an implant. I’ve had enough surgeries in my lifetime, and right now, I’m not in a hurry to have another one.

I guess it all comes down to your own situation, and how you think is the best way to deal with it. No one can tell you what to decide, as you already know. Read what people on this forum have experienced, give it some thought, and proceed from there.

Remember, you’re alive. You made it past the first hurdle.

[bldoink]

...

[Burt-Man]

@ lawnman…… Thanks for your response..
Burt-Man

[Burt-Man]

@bidoink….. Your response wasn’t too long and provided much good information.

I am heading on a vacation next week, and plan to discuss all issues & solutions with wife.
Also I had a conference call with Dr. Hakky this week and plan to visit his office in person in Atlanta next month.
Hope to get some clarification on the Peyronies and Climaturia in person.

thanks all,
Burt-man

[RJ_in_Pa]

@Bldoink - great post. I could ‘ditto” some of your experiences, especially the ones about leakage while working in the yard. I’m walking about 2 miles now without leakage (or protection). You gave me that advice awhile back. One thing that really destroys me is having drink or two of alcohol while doing something, like playing pool I still have to wear a full pad during those types of situations. I was doing pretty good pacing myself at a recent Super Bowl party and then it went into overtime. One more drink and the flood gates opened up. What’s crazy is during those times, I can have a completely empty bladder and still be leaking. Ugh!

Back to ED - I’m starting think that solo sex is helping. I can get a much greater “O” by myself than while having sex with my wife. I do VED therapy every other day and thinking solo sex is a nice reward for my time and effort. Your thoughts on how often is beneficial?