Hello! from new member w/ Peyronie's & ED

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SteveSW
Posts: 20
Joined: Sat Sep 08, 2018 6:23 pm

Hello! from new member w/ Peyronie's & ED

Postby SteveSW » Mon Sep 10, 2018 2:46 pm

When Peyronie's hit me unexpectedly about 13 years ago (64 now) the curve worsened over the first 10 months or so, and the ED started. Both issues worsened, and I've battled ever since. Doctors with real Peyronie's experience are few and far between. Viagra still helps a bit giving me about a 50% hardened state, and the curve has been reduced from 90 to about 60 degrees through Verapamil injections, VED and use of a traction device. The point of all this, is regarding an implant. Next year, with Medicare and private insurance, an implant may be plausible. My urologist has serious reservations about the implant being installed (inserted?) however, due to the very, very large plaque mass covering over half of the dorsal side. Thanks for the opportunity to share with others in this forum. Steve.
64 with 15 years of chronic Peyronie's which caused ED, that of late is has gotten worse. Hoping to get a pump in 2019, in spite of large dorsal plaque mass. Live in Albuquerque, New Mexico USA.

bldoink
Posts: 905
Joined: Mon Apr 03, 2017 12:58 am
Location: Fl.

Re: Hello! from new member w/ Peyronie's & ED

Postby bldoink » Mon Sep 10, 2018 6:47 pm

Welcome and good luck in your search for a satisfactory resolution to your ED issues.
R.R.P 2011 Mayo Jacksonville by Dr. Michael Wehle. Nerve sparing but damaged. V.E.D, Viagra and Alprostadil manually injected. Originally Edex20. Switched to Alprostadil from compounding pharmacy - cost. Injecting 5-6 yrs. It works. Treasure coast of FL.

naginati
Posts: 134
Joined: Fri Mar 30, 2018 1:03 pm

Re: Hello! from new member w/ Peyronie's & ED

Postby naginati » Mon Sep 10, 2018 6:58 pm

Hi,

Why would the plaque be an issue?

The insertion is normally through the scrotum.
30 years old. Venous leakage from jelqing. Soft glans and difficulty with cavernosal erection. Using osbon tension bands to cope, works so far. Good erection with the bands. Hope it doesn't get worse.

Floridian
Posts: 287
Joined: Mon Aug 22, 2011 5:20 pm

Re: Hello! from new member w/ Peyronie's & ED

Postby Floridian » Wed Oct 03, 2018 9:06 am

Steve

There is help for you and your doctor may not wanting to be positive about it. I had Peyronies with plaque with indentations on the sides of the shaft. It started out with an indentation and then a curve left 45 degrees but luckily it didn't stay. Perhaps there was a balance of "dents" on either side.

Evertually i went to Dr. Eid and now my dick looks normal and I was lucky I didn't wait too long for the implant.

Stay with Medicare and you will have the implant done without any problems. The curve may be a little tricky but i am certain you will be very happy when its done.

FL
Titan implanted by Dr Eid---- Due to the "wasting" from Peyronies, Implant was the only option for me.

Greg1956
Posts: 1246
Joined: Sun Aug 06, 2017 8:35 am
Location: Atlanta, GA USA

Re: Hello! from new member w/ Peyronie's & ED

Postby Greg1956 » Thu Oct 04, 2018 9:38 am

Steve,
Welcome and best wishes. I hope you get the help you want and need.

Greg
I am 62 and had 30 years of ED. Implanted by Dr. Ronald Anglade in Atlanta on 9/18/17. I have an AMS LGX 18cm w/3cm RTE via a Penoscrotal incision. Currently 5 1/4” deflated and 6 3/8” inflated, 5.75” girth. Willing to Show & Tell.

User avatar
Larry10625
Posts: 3651
Joined: Sat Apr 15, 2017 10:56 am
Location: Ontario, CANADA

Re: Hello! from new member w/ Peyronie's & ED

Postby Larry10625 » Thu Oct 04, 2018 10:13 am

SteveSW wrote:When Peyronie's hit me unexpectedly about 13 years ago (64 now) the curve worsened over the first 10 months or so, and the ED started. Both issues worsened, and I've battled ever since. Doctors with real Peyronie's experience are few and far between. Viagra still helps a bit giving me about a 50% hardened state, and the curve has been reduced from 90 to about 60 degrees through Verapamil injections, VED and use of a traction device. The point of all this, is regarding an implant. Next year, with Medicare and private insurance, an implant may be plausible. My urologist has serious reservations about the implant being installed (inserted?) however, due to the very, very large plaque mass covering over half of the dorsal side. Thanks for the opportunity to share with others in this forum. Steve.



Welcome to Frank Talk Steve. I'm not sure where you are but if you let us know, maybe someone near you can suggest a great doctor that doesn't involve flying all over the USA. Many of our members have Peyronie's and have been successfully treated. Keep us all posted on how you are doing... we are a pretty tight community of guys who, sometimes argue but, we all share the same misery (ED) and we all stick together to treat this god awful affliction. Hang in there brother :)

Larry
Moderator
51 years old, married 29 years. Implanted Mar 30/17 by Dr. Brock of London, Ont, CANADA. (AMS 700 CX 18 + 2). Had implant removed Apr 29/17 due to Septic Shock. Liposuction By Dr. Gan and re-implant by Dr. Brock (AMS LGX 15 + 2) Dec 14/17.

SteveSW
Posts: 20
Joined: Sat Sep 08, 2018 6:23 pm

Re: Hello! from new member w/ Peyronie's & ED

Postby SteveSW » Fri Oct 05, 2018 3:31 pm

Larry, Thank you for your supportive words. I have yet to receive a positive, or encouraging encounter with our local Urologists. So any information would be greatly appreciated. Thanks for the offer! I live in Albuquerque, New Mexico. Steve.
64 with 15 years of chronic Peyronie's which caused ED, that of late is has gotten worse. Hoping to get a pump in 2019, in spite of large dorsal plaque mass. Live in Albuquerque, New Mexico USA.


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