Any experience marrige counselling after RP?

What are your fears? Ideas? Hints? to coping with ED. What helps you with your mental game? How are relationships affected?

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Reggieman
Posts: 135
Joined: Sat Jun 04, 2016 7:17 pm
Location: Central California

Any experience marrige counselling after RP?

Postby Reggieman » Wed Jan 24, 2018 8:46 pm

Wife and I want to get some counseling from a marriage or other qualified counselor who has experience in working with prostate cancer survivors. Have any of you had any experience going through this? My uro at UCSF recommended one in San Francisco but that is 90 miles away. Too far for us to drive on a regular basis.

Curious about your experiences and your advice.
Retired. R.P. June 2016 at UCSF. Bilateral nerve sparing robotic surgery. Use .15cc of Bimix twice weekly. Still have some incontinence and not improving. Other side effects: anorgasmia & decreased penis sensitivity.

Oldcrohny62
Posts: 17
Joined: Tue Jan 13, 2015 12:02 am

Re: Any experience marrige counselling after RP?

Postby Oldcrohny62 » Wed Jan 24, 2018 9:12 pm

Yes, your situation with RP is common on this board and it is tough on a relationship. My wife and I have dealt with the ED and incontinence since my RP. We talked about it and, as you know, there are psychological impacts for you and wife. We did not seek a counselor, but did find a great Urological Specialist and surgeon who understood this. Through our experience with him and some self education on what he proposed, the ED and incontintence are history. With impotence from RP and Peyronies and incontintence from RP (see signature for dates) it was clear for us after years of struggles that I get bladder sling for incontintence and implant for ED. Wish I had done it sooner. Since surgery I have not touched a Tena pad and have better erection than we have seen in years!
I am hopeful my story may help you find resolution.
Prostate cancer diagnosis and Davinci Robotic Prostatectomy 2013; Diabetic, Crohns Disease; Peyronies; ED with pills and trimix with limited result; Xiaflex with limited result. AMS IPP 12/2017; bladder sling 12/2017 to correct incontinence caused by RP.

Reggieman
Posts: 135
Joined: Sat Jun 04, 2016 7:17 pm
Location: Central California

Re: Any experience marrige counselling after RP?

Postby Reggieman » Wed Jan 24, 2018 11:09 pm

Thank you for your comments and support. It's a tough nut to crack.
Retired. R.P. June 2016 at UCSF. Bilateral nerve sparing robotic surgery. Use .15cc of Bimix twice weekly. Still have some incontinence and not improving. Other side effects: anorgasmia & decreased penis sensitivity.


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